About People Who Self-Diagnose as Autistic

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Hello everyone! So today I’m going to talk about a subject that might tick off some people, especially those who tend to hang out on Tumblr a lot. I’ve noticed that it has almost become fashionable or a cause for pride for people to research mental health or psychological conditions (or in this case a neurological condition) and then decide for themselves that they suffer from said condition. This worries me for several reasons which I will discuss here.

#1 – What if you are wrong? Put simply, many psychological conditions share almost the exact same symptoms. Even among professionals, misdiagnosis is an enormous problem in many people getting the help they need. I have no issue with people saying that they suspect that they may have autism. I just wish people wouldn’t say they have it for sure unless they have been adequately evaluated and diagnosed. I do understand that in the US at least, it can be an issue getting diagnosed because health insurance is a crap-shoot, and many people don’t even have access to regular health care, let alone psychological healthcare, but if you don’t know for sure whether you have autism, bipolar, another mood disorder, borderline, sensory integration disorder, or one of the other many conditions often misdiagnosed as autism, please don’t make definite claims.

#2 – You can actually do damage to the Aspergers or autism community. You may not think of it that way, but if you DO NOT actually have autism and yet go around claiming you do, you are likely feeding into certain stereotypes about autism that are already a problem or you are inaccurately portraying what it is like to be autistic in this world. Some of us who live with autism every single day can tend to get a little annoyed about that. Although some in the community have no issue with self-diagnosis, we are ALL different and some of us don’t like the whole self-diagnosis phenomena.

#3 – People who self-diagnose sort of have a reputation for being attention seekers. I do not think this is the case all the time, like I said, I think some of it has to do with lack of adequate healthcare, but I do believe there are a few at least that are doing it for the attention and that is really irritating.

#4 – Unfortunately, some people already see high functioning autism as a BS diagnosis, and when they see people just randomly deciding they have it without any kind of actual medical oversight, it tends to feed that destructive belief. Yes, they are the assholes to feel that way in the first place, but we don’t want to feed the assholes any more than we want to feed the trolls.

As a final note, I want to reiterate that I do not condemn people thinking or suspecting they have autism, just claiming an actual diagnosis without one. If you do suspect you may be autistic, doctors that diagnose adults can be hard to find, but they CAN be found, so don’t give up. It took me quite a while to find one who would test adults, and I only found him by contacting a professor at a local college who specializes in autism research and asking him if he knew any doctors who diagnose adults, so that might be a way for you to seek out a diagnosis as well.

Also, there are self-assessments made by professionals that can be useful in deciding if you might have autism, but they are NOT meant to be diagnostic material in themselves. However, they can help a great deal in figuring out if you might be autistic and are often used by professional doctors to assist in diagnostic criteria, so using them can be helpful in narrowing down whether you display autistic symptoms or not.

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7 thoughts on “About People Who Self-Diagnose as Autistic

  1. Excellent points! I’m glad that you wrote about this. People sometimes pick a “mental illness of the year” and without really knowing that much about it start labeling based on personality types and subtle traits. It really does hurt people who truly have diagnoses by perpetuating misunderstanding.

    I have bipolar disorder and have struggled with it for years. My eldest nephew has formerly known as Asperger’s disorder. So did my younger nephew, who also had bipolar disorder. Both of their lives have been/were extremely affected. Unfortunately they didn’t get quite as much help as they needed, in my opinion. My youngest nephew committed suicide from depression this past June.

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  2. I don’t think it is very well known that the assessment process for ASD diagnosis is actually incredibly rigorous. Hours and hours of appointments, IQ testing, interviews with parents, childhood history, etc. The same goes for mental illness diagnoses. It’s not just a label your GP can slap on you in a 10 minute consult! And I agree it that this misconception does diminish the experience of those with a correct diagnosis.

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      • Yes, it was a long process for me when I was diagnosed, but it was worth it to know for sure. I would recommend anyone who can get officially diagnosed do so, because if it is something else, it might need treatment and if it is autism, there are things that can help some of the symptoms that are most bothersome. I do realize here in the US though that access to healthcare is a huge issue in itself. However, I feel we should work to try to change that rather than just have everyone start diagnosing themselves.

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