Physical Therapy and CFS

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Having CFS/ME really sucks sometimes. On Tuesday I went to my traction physical therapy appointment for my bulging disc in my neck and they asked me to do a few minutes of really easy, simple exercises that should have been a breeze. Instead, here I am, 35 years old, looking fairly healthy and fit, and yet, I had to constantly take breaks from even these few little stretching and postural exercises. It makes me feel like I’m really living in an 80-year-old body.

It is embarrassing as well, because I fear the judgment of those who see how little I am actually able to do. I worry they will just judge me as lazy or think I am just being difficult, which is entirely the opposite of my personality. I’m the kind of person who goes out of their way NOT to cause trouble or slow things down. I often wish other people really understood how crippling chronic fatigue syndrome can be. For instance, all my adult life I ALWAYS took a shower every single day and washed my hair. Now, I’m lucky if I can find the energy to wash my hair every other day, even though my OCD traits are going crazy at the change in my lifelong routine. Even typing these blog posts requires frequent breaks.

Sorry if this post seems a bit whiny, it just sometimes hits home over little simple things, how much my life is affected by my new physical limitations, and it is hard to accept.

* Art by Maranda Russell

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3 thoughts on “Physical Therapy and CFS

  1. I’m glad I clicked over to your site Maranda, when you asked for a follow back…. usually I don’t (alot of scammers etc etc!) lol but, here I am. Several of your tags/topics are quite relevant to my own life it seems. My granddaughter is high functioning on the spectrum & its a massive learning curve.
    What you have written in This post, I could have written. word for word. Only exchanging the diagnosis(s) and…. the age! laughing! it has been a horrible, up hill battle. and no one, has a clue. they can’t, possibly ‘get it’ or ‘believe’ it. at one point I was told I was an anorexic ie and in denial. when it was stomach gut autoimmune issue.
    My struggle for years against being told it was normal tiredness, depression (here, Take these antidepressants for it!) no. I am not depressed, I am ill, dammit! figure it out people. 🙂 finally, years later…. some autoimmune diagnosis were made, more years, more trial meds. at this point, I feel better than I have for several years. whew. hope it lasts.
    smiling.
    yes. I will follow you too Maranda. cheers, Debi

    Like

    • Thanks so much! I’m glad you did come over! I understand, I get a lot of spam comments too. Personally, I really think fibromyalgia and cfs are autoimmune issues, although I know they haven’t proven exactly what causes either. I’ve been tested for so many autoimmune illnesses though because my symptoms mirror so many autoimmune conditions, so I definitely believe we probably do share many symptoms and daily trials.

      Liked by 1 person

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