Why Doctors Frustrate Me – Trying to Get Testing Done


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I want to begin this post by sharing a horrible dream I had last night. I was sitting in row G of a live outdoor show (my dreams are pretty specific sometimes), when someone behind me threw up all over my head. It was disgusting! I still remember the smell and feel of the vomit as it trickled down my face and hair. Ick! By the way, how do you “smell” things in a dream? I don’t know, but I sure did!

Ok, now that I got that off my chest, on to the main topic of this post. I am frustrated with doctors. Why? Because time and time again, I have had to fight to get testing that I feel is important, because many doctors tend to think I am just being a hypochondriac or overly anxious when I tell them I suspect a particular diagnosis.

However, time and time again, I have been proven RIGHT when I finally got the testing. C Diff, MRSA, medication allergies, asthma, CFS, fibromyalgia, costochondritis, pancreatitis, Aspergers, bipolar…all of these are conditions I highly suspected long before I actually got diagnosed, and yet, I had to fight to even get them checked out because doctors thought I was just being paranoid.

The most recent testing I am fighting for is Ehlers Danlos (EDS). I meet the major and most of the minor criteria for the condition, but have been fighting to even get a referral for testing. EDS is often comorbid with high-functioning autism, so that is what first made me interested in the condition. I am positive I score at least 6 or 7 out of 9 on the Beighton Score (higher on the Brighton Score).

I guess I can sum up this post in one sentence: Why is it so damn hard to get a simple test done???


23 responses to “Why Doctors Frustrate Me – Trying to Get Testing Done”

  1. Private providers and healthcare insurances seem the reasons why is so difficult to get a test done, if the test is required by the patient and it is not on the ” cheap-typical tests” list. Basically, if you live in a country with a private healthcare system, doctors are not their own bosses and they have to keep costs down for their office and for healthcare insurances. Thus, expensive tests and unique tests are a “no-no!”

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  2. I go through this with my son. “Doctors” and their schooling and x amount of years experience have yet to impress me over the simplest of things. I admit I don’t think very highly of them. I learn more from google..

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  3. I know it isn’t good to do that stuff, because I often notice if I do, that I get achy and stiff afterwards. I always thought it was weird though that with all the pain, stiffness, muscle issues, and joint pain that I was still so flexible in many ways even though I didn’t exercise or stretch much at all anymore.

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  4. On the beighton score I can do all, except it is painful to touch my right thumb to my forearm anymore (likely due to injuries and stiffness), so I typically don’t, and I can do the leaning over with palms on the floor thing, but do have to bend my knees slightly because my hamstrings have become so tight from years of severe plantar fasciitis. I could do it easily as a kid though.

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  5. More power to you for continuing to push. Sadly those conditions such as Asbergers and Ehlers-Danlos Syndrome are among those that doctors just don’t seem prepared to even diagnose outside of childhood.And if they can, sometimes they don’t see the point of it. Speaking from personal experience. Wish we could move the whole field away from simply treating the symptoms.

    Liked by 1 person

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