Fears of Becoming Home-Bound


I’m still struggling with bad neck pain. Yesterday it felt a little bit better, so I figured I would try to get out of the house for the first time in a while (other than ER visits). Unfortunately, once I got in the car, the vibrations from the car itself and the movement from driving kicked the pain back into high gear. I did at least make it to Wendy’s so my husband and I could get some dinner, but then it was straight back home because I was in too much pain to do anything else.

Honestly, after two weeks of these headaches and severe neck pain, I’m starting to worry this might be a long-term problem, just like my right shoulder blade and the arches of my feet. I’ve been incredibly depressed the last few days, partly because of the pain itself, partly because I can’t do much of anything, and lastly because I worry if my body continues to deteriorate at the rate it seems to be going, I may eventually become completely home-bound. I believe that all these chronic pain issues are mostly related to my Ehlers Danlos Syndrome, which sucks even more because there is no cure for connective tissue disorders 😦

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Hi! I am an artist, author, and blogger who also happens to have Asperger’s Syndrome. I have won several awards and honors for my writings and artwork. I suffer from a few severe mental illness and chronic pain conditions (Depression, Anxiety, PTSD, Fibromyalgia, CFS/ME, Ehlers Danlos, Degenerative Disc Disease, etc.), which greatly affects my life and makes me want to advocate for others going through similar things. Other interests of mine include reading, writing, drawing, watching cartoons and movies, collecting toys, hanging out with my family, and annoying my 3 cats.

21 thoughts on “Fears of Becoming Home-Bound”

  1. At times, I’ve been house-bound, or home centered. And of course, I can’t walk any more. I’ve gotten a lot of comfort from Toni Bernhard books. She’s got a great Buddhist philosophy on being permanently sick. She writes from experience and is not preachy. She doesn’t off solutions but gives a way of viewing our lives as valuable, even if restrained and made smaller by illness.

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  2. I’m so sorry to hear you’re in such pain. There are few things worse. One resource I’ve found both inspiring and incredibly helpful is FoodMattersTV (FMTV). I realised a lot of my ailments stemmed from some of the foods I was eating – as they cause inflammation or make it worse. Maybe worth a look? It’s a paid site but they have a lot of trailers on YouTube so you can get a sense of what it’s like before you decide whether or not it’s for you. I hope that helps.

    Liked by 1 person

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