Had my EEG yesterday morning. It wasn’t too bad. The flashing strobe light part was almost kind of like what I imagine doing psychedelic drugs would be like – all the swirling lights and patterns…it was kind of crazy. I was supposed to nap for like 15 minutes or so, but just couldn’t fall asleep. I’m hoping I won’t have to do the home sleep study, but I guess we’ll see what the doctor thinks. The gel they put on my hair to keep the electrodes connected drove me crazy, so I had to come right home and wash it out.
Other than that, not much exciting is going on. I am attempting to embrace a mostly gluten-free diet in hopes that it helps my digestive and chronic inflammatory issues, but it is hard because many of my favorite foods (pasta, pizza, bread, cereal, cookies, etc.) have to be eliminated or replaced with gluten-free substitutes which don’t always taste as good or have the same texture. As an autistic gal, food texture matters A LOT to me and it takes a good long while for me to get used to changes. Thank goodness a few mainstream cereals are already gluten free (like Cheerios, Lucky Charms, most Chex varieties, Fruity/Cocoa Pebbles, and a few more).
My mood today is rather blah. Just not feeling much of anything, except tired.
I had to have an EEG a few years ago. Very odd experience. I was permitted to close my eyes during the strobing, I just couldn’t cope with it, but was never sure if that defeated the object of having the test!
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My eyes were closed during the strobing too. The entire time, but I still had quite a trip lol.
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They actually told me from the beginning to close my eyes during the strobing, so maybe that is just how they do it now? Idk
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That’s good to know. I had the option. No idea how anyone could keep their eyes open. It certainly is weird, & I agree pretty psychedelic!
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Maranda, I hope the tiredness lifts and that you achieve something special as if you were only given this one day! Check out Louis Schwartzberg’s nature beauty gratitude Tedtalk, I hope you enjoy it, particularly from 3.30 minutes onwards.
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Thanks for the idea, will try to look it up. I do love Ted Talks.
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Like to hear what you think!
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I’m trying to cut out dairy and gluten for the same reasons. I do think it’s helped but it is difficult. So miss proper pizza and bread and biscuits.
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I have found many pizza places around here have gluten free crust. Rapid Fired gluten free pizza is really good if you have those around you!
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They do but don’t do a dairy free option sadly. Found a couple of shop pizzas that do and they are sort of ok, just very expensive
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Yeah, that is rough. I try not eat a lot of dairy either because I have lactose intolerance, but most cheeses don’t affect me nearly as bad as straight milk or ice cream for instance.
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Glutinos cookies if you like oreos, and Udis for your gf pizza dough, bagels and bread. But, if you aren’t full celiac, consider also true 36-hour sourdough. It breaks down enough of the wheat proteins I’m allergic to to let me have some real stuff . But, my wheat allergy won’t so far lead to full-scale anaphylaxis, so take the sourdough advice with a healthy ‘grain’ of salt considering your own health. But, trust me on the Glutinos and Udis. They taste the most “real” of most gf products I’ve tested since having to suck it up and admit that I’m too reactive to wheat now to just keep ignoring my allergy test results.
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I am definitely not anaphylaxis level allergic or intolerant. I have often wondered if some level of gluten allergies adds to my IBS, colitis, and chronic widespread inflammation though. I know it is common for those on the autism spectrum to have gluten allergies anyhow, and I do have other food intolerances and a ton of other allergies.
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Gluten free is not a great diet but I know you will be ok. It should make you feel better.:)
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Yeah, right now I’m pretty much testing it out to see if it really helps reduce some of my symptoms or not.
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Hope is the key and going forward.:)
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My son (age 7 at the time) had 2 EEGs last year. He was supposed to sleep for the sleep deprived one but he really couldn’t manage it (he usually takes melatonin to help him sleep so I’m not surprised) They still found some abnormalities despite it all – amazing as he also refused to do some of what the Drs asked for. I hope yours shows what it needs to (or not) and no further testing is required. Good luck on going Gluten free.
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I hope it doesn’t show seizures or mini strokes or anything like that. The lady that did the test said it looked pretty normal to her, but the doctor had to look more closely at it of course.
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In my son’s case it showed little seizures but that is exactly what we expected as we had seen them happening prior to the test. Fingers crossed for you.
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Those strobe lights didn’t sit well with me, at all, for days afterward. Hoping the results turn out as you’d like. Whole Foods has some great gluten free alternatives. Daiya makes gluten free, dairy free, soy free stuff and it’s really yummy. Hoping you’re able to find some stuff you enjoy!
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Thanks for the tips!
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