Another Inflammatory Flare Up and False Hope

| marandarussell

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The past few days have been rough. My back went out again, so my upper back and neck have been causing extreme pain again. I think the gluten free diet isn’t really helping much, as all the things I thought it was helping have suddenly flared up the last couple weeks. My GERD has been awful to the point I’ve had trouble swallowing again, the night sweats are back, and I seem to be having a widespread inflammation flare-up again.

I know I shouldn’t have put so much hope on the diet to solve all these issues, but I feel like I’m so desperate for something to make me better that I often put high expectations on each new treatment idea, hoping it will be “the one”. Of course, I probably need to accept that since I have Ehlers Danlos (a genetic connective tissue disorder), that nothing is probably going to be that cure-all I have been hoping to find.

How I wish that there was a cure to whatever is going on inside me. I often long for one of those scanners like they have on Star Trek that could easily pinpoint exactly what is going on and what the treatment should be without being invasive. I guess I was born too early for that. We might be headed that way technologically, but it is probably well off on the horizon.

30 thoughts on “Another Inflammatory Flare Up and False Hope”

  11. Oh Maranda, I’m so sorry. I know in the years I had chronic constipation, before my stoma, I was desperate and tried anything and everything. I always kept my fingers crossed that a supplement, a change of diet, cutting out certain foods, eating lots of something else etc, would be the answer. It’s beyond frustrating and disheartening. Now, it’s not constipation I’m trying to resolve but pain and exhaustion and it seems there’s just no answer, no cure, nothing that really makes anything any better. I wish I could say something to help. I’ll send hugs your way, though that’s woefully unhelpful to you right now  ♥ ♥
    Caz xx

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