Fears of Becoming Home-Bound

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I’m still struggling with bad neck pain. Yesterday it felt a little bit better, so I figured I would try to get out of the house for the first time in a while (other than ER visits). Unfortunately, once I got in the car, the vibrations from the car itself and the movement from driving kicked the pain back into high gear. I did at least make it to Wendy’s so my husband and I could get some dinner, but then it was straight back home because I was in too much pain to do anything else.

Honestly, after two weeks of these headaches and severe neck pain, I’m starting to worry this might be a long-term problem, just like my right shoulder blade and the arches of my feet. I’ve been incredibly depressed the last few days, partly because of the pain itself, partly because I can’t do much of anything, and lastly because I worry if my body continues to deteriorate at the rate it seems to be going, I may eventually become completely home-bound. I believe that all these chronic pain issues are mostly related to my Ehlers Danlos Syndrome, which sucks even more because there is no cure for connective tissue disorders 😦

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2 Colorful Kitty ACEO Collages

I’m feeling pretty down in the dumps as I am still struggling with migraines and neck pain, but thought I would share some cheerful art in an attempt to cheer myself up as well as anyone else who needs a lift. The following two ACEO (artist trading card) collages feature cute kitty puffy stickers that I received for Christmas stocking stuffers:

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Visit my Ebay store to see all my art currently for sale!

Twittering Tales Fun

I came across these “Twittering Tales” writing prompts yesterday and thought it looked like a lot of fun. The challenge is to take a photo prompt and write a short story, poem, or whatever comes to mind, but you have to keep it under 280 characters, just like a tweet on Twitter. I decided to go ahead and write a twittering tale for last week’s prompt as well as this week’s prompt.

Here is the one I came up with for last week’s prompt (photo from Pixabay):

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Hearts and stars. Hearts and stars. Simple shapes that any preschool child could identify, but symbolic of so much more.

The heart…love, obsession, passion, heartwarming, heartbreaking, blood pumping.
The star…cosmic, mysticism, alchemy, popularity, holidays, holy days.

And here is the second prompt (photo also from Pixabay). This one took a bit of a dark turn, but it was what came to mind for some reason:

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It starts with one word:

Helium. A harmless word? Parties. Balloons floating around the room. Rough, gruff voices becoming chipmunk squeaks.

Or do you picture tragedy? Helium tanks hooked up to hoses. Bodies lying still with bags over their heads. Voluntary euthanasia. The end.

Let me know if you guys enjoyed these. Maybe I’ll do more!

Migraines Caused by Neck Issues?

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I’m still struggling with migraines, but am starting to think that they might actually be cervicogenic headaches (caused by issues in the neck). The last few days, the left side of my neck has been visibly swollen and extremely tight, causing a great deal of pain. I can’t help but notice that the worse the neck pain is, the worse the headaches, nausea, dizziness, and fatigue become as well.

One person on Facebook who also suffers from Ehlers Danlos even suggested that perhaps the migraines may be due to a chiari malformation or craniocervical instability, which are both common issues associated with Ehlers Danlos Syndrome. I have wondered about the neck instability possibility, as I often feel like my head is excessively heavy, not supported well by my neck, and sometimes bobbles around almost like a bobblehead. Whenever I sit for long, I have to have a neck rest because my pain worsens quickly if I have to hold my head up without support.

Unfortunately, it looks like if instability is the issue, the answer might be this huge, horribly-uncomfortable-looking neck brace that looks like it would be sensory hell for me. Of course, I do know from a prior MRI that I also have degenerative disc disease throughout my cervical and thoracic spine, and at least a couple herniated cervical discs. Whatever the issue, I wish it would clear up soon! This is miserable and I feel like I am living on NSAIDS, muscle relaxers, and Lidocaine right now.

I Am An Obsessive Collector

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Part of my toy/collectibles/art room, unfortunately you can’t see all the stuff organized in the closet or in the cabinets behind me.

I collect too many things. I collect tons of toys/action figures/dolls/squishies/stuffed animals/minifigures (Barbie, My Little Pony, Sesame Street, Looney Tunes, Lego, Nickelodeon, Disney, Schleich, Funko Pops, Reborns, Cabbage Patch Dolls, Coraline, etc.) I have an entire room for all my toys and collectibles. I collect books, especially children’s books and books about subjects I am obsessed with, ranging from Michael Jackson, Nirvana, and Dance Moms, to art/artists, writing/writers, poetry, comics/manga, and antique books. The books also have a room of their own, which they share with my husband’s smaller but still sizable book collection (mostly history, true crime, and science fiction grace his shelves).

I have a huge collection of art supplies and stickers (which also get shoved into my extra “toy room”). I have a large collection of cds, especially from my favorite artists (MJ again, Nirvana, Foo Fighters, Enya, Simon & Garfunkel, The Beatles, 60’s 70’s & 90’s hits, Disney soundtracks, etc.)

I have an entire dresser drawer full of bookmarks, a wide selection of cute or nerdy notebooks/journals/stationery and a cabinet full of magickal/pagan themed objects I use for my little ritual altar. I also have a large collection of sentimental items I have saved ranging from photos to cards to letters to objects from loved ones who have passed on.

I am emotionally connected to many of the things I collect and the idea of parting with them is traumatic. I figure this need to collect things is part of the autistic side of me, but sometimes I become overwhelmed by the size of my own collections!

I Hate Disappointing People

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You ever go to a doctor’s appointment and feel like you somehow disappointed them? That’s how I’m feeling today. I went to see my psychiatrist and while he didn’t say anything overly negative or mean, I just left with the feeling that somehow he was a little disappointed in me.

Perhaps I am projecting here, but I kind of feel like he isn’t quite as supportive as my other doctors about my going on SSDI. Not because he doesn’t think I have real problems and medical conditions, but because he seems to think I have a lot of potential and maybe he thinks if I get disability I’m just going to sit around and do nothing the rest of my life.

This may be partly my fault if he has that impression. After all, I don’t normally talk about all the stuff I do enjoy doing while there. I only see him every couple months for a short visit, so I tend to focus on what is going wrong, not what is going right. I don’t talk about all the art I make and sell or the books I write and sell. I don’t talk about my blogging. I don’t talk about all the people I correspond with on social media. I didn’t mention that I was recently made a board member on the International Board of Sensory Accessibility. I didn’t tell him about the art contest I submitted three artworks to this month. I don’t tell him about the online communities for chronic illness, chronic pain, autism, and other conditions that have given me a chance to support others and receive support myself.

I kind of wish I had mentioned some of those things now. Maybe next time.