Six! (countdown) Five! (until) Four! (my) Three! (next) Two! (breakdown) One! DAMN.
This morning I woke up thinking about my online reputation and what I would like it to be. When others read my poetry and personal blog posts (especially the ones having to do with mental illness, autism, or chronic pain/chronic illness) the things I strive to represent are honesty, openness, relatable vulnerability, realistic hope when possible, comforting solidarity, the healing power of sharing our pain, and the courage and inspiration to keep going, even when things feel hopeless.
However, since I myself struggle from mental illness and chronic pain, being transparent and honest means that often my viewpoint comes across as dark and bleak. I don’t try to hide that or tone it down when it happens, because to me, that is part of being honest and vulnerable enough to share what the experience of dealing with those issues is like on a daily basis. Putting a happy face on it would be lying.
My only worry is that sometimes the reality of dealing with daily mental and physical pain is that you can start to sound whiny. Part of me says, “well, of course, you are going to sound whiny now and then if you are in pain all the time! No shit!”, but for some reason our culture makes whining out to be such a negative thing that most of us want to avoid that look at all costs.
Maybe we as readers and audiences have to decide rather we really want full honesty and openness (even if it includes some whining and negativity) or if we pretend to want the truth, but in reality just want a short, scrubbed clean, feel good version of life. I know which I prefer, but I guess everyone has to decide for themselves.
The whole covid mask thing has been a struggle for me. Probably for several reasons:
#1 – I have bad asthma, especially in hot weather and wearing a mask makes it much worse. Sometimes to the point that I have to escape a store or building immediately so I can breathe again before I have a full-out asthma attack (masks are required in buildings in our county).
#2 – I’m autistic. I have sensory issues galore and masks drive me crazy. I don’t like the feel of them and for me, I never really adjust. Of all the kinds of masks I’ve tried, the only ones I can even kind of stand are the surgeon ones, but even those bug me, and I can only bear them for a short time.
#3 – I have a little piggy nose, so I can’t keep a mask up, it is always slipping below my nose. It has gotten to the point that sometimes I quit pulling it up because it will just slip down again in 2 seconds, and it is easier to breathe with my nose uncovered anyway.
#4 – Anxiety. I think this plays into the asthma and the sensory issues thing. The more my asthma and sensory issues worsen, the more my anxiety kicks in, till the point where I’m not even sure if I’m having trouble breathing because of the mask and asthma, or because of the anxiety.
At this point, I pretty much just try to do outdoor activities or if I do have to go to a store or something, I get in and out as quickly as possible. Thank God I don’t have to work at a business. I don’t know how I would survive.
So what has your experience with masks been? Do they bother you? Did you adjust and get used to them? Are they required where you live? Do you have any of the same issues I have with them?
Been feeling stressed. I don’t know if it is because I am autistic or just part of my personality, but even the smallest changes to my routine tend to throw me off and cause a lot of anxiety…and the holidays seem to be filled with those kinds of routine manglers.
For instance, tonight I have a friend’s Yule party to go to and tomorrow I am supposed to meet my mom for an early Christmas dinner/present exchange. Part of me is looking forward to these events and even wants to go, but part of me is stressed out and just wants to go back to bed and hide under the covers until the weekend is over.
All the anxiety takes a physical toll too. It turns my tummy into a wreck and brings on headaches that can easily slip into migraines if I’m not careful. The anxiety last night about the events this weekend was so bad that it did give me a migraine, so I had to take my migraine prescription. Hoping that won’t happen again.
I often tend to think depression is worse than anxiety because its symptoms are more obvious and immediate, but I think I underestimate the compounding ability of high anxiety.
This week has been stressful. I’m not sure if I’m just overreacting to things because I’m autistic and hypersensitive to everything (especially changes in routine), or if this would even throw many normal people off their game, but since Monday:
- I had to wait hours at the BMV to renew my driver’s license and then sweat it out when they weren’t sure if my two forms of address verification were acceptable. (Thank God they ended up accepting them in the end so I didn’t have to do the whole process over again.)
- Our electricity went out Monday night (along with 3,000 other homes and businesses in the area, eventually they did get it restored.)
- My husband’s birthday was on Monday and I ended up going to 4 different stores looking for a birthday balloon for him because everyone was out 😦
- My psychiatrist appointment got moved up today from 3pm to 2pm which meant I had to alert my husband who drives me. He then had to check to see if the school could get a substitute teacher in earlier to relieve him so he could take me.
- I almost got kicked off Instagram again (I got warnings again but luckily they haven’t kicked me off yet. I think I may have discovered the issue. I have used an app to track unfollowers and I think that might be what they were picking up on as a “3rd party”. So, I’m just not going to use that app right now.)
The last few days have been rough. I’ve been dealing with dark, obsessive thoughts that I know aren’t healthy for me to dwell on. Dark thoughts of restlessness, dark thoughts of jealousy and resentment, dark thoughts about relationships and craving attention, and dark thoughts about life and death. Craving attention might not sound like such a bad thing, but the negative part is some of the twisted ways my brain comes up with to get it. Luckily, I don’t act on these dark thoughts, so I must have a good amount of self-control, but the obsessiveness of the thought patterns bother me.
I feel a little bit like Dr Jekyll and Mr Hyde at times (which I actually reread recently for the first time since childhood). There is a really good side to me, but there is definitely a dark side as well, and when that dark side becomes obsessive and stuck in a groove, the intensity of my thoughts and emotions can become a bit frightening to myself.
I’m not entirely sure what causes these bouts of dark fantasizing. The ocd? The C-PTSD? Mood disorder? The anxious/avoidant attachment style I developed from a dysfunctional family system?
Today I’ve been trying to stay busy in an attempt to distract myself and it has helped some, but my brain is like a boomerang that just keeps circling back around to the same place again and again. It is exhausting to be honest.
I have a lot of amazing talents (thank you, autism)…now, if only more of those remarkable abilities were marketable! Here is a list of things I am awesome at that I wish I could get paid to do:
- Sudoku Master
- Snake Spotter
- Hidden Pictures or Spot the Difference Finder
- LEGO put-together-er
- Build a Bear Expert (no, I do not want to work in the busy store, I just want to be paid for collecting/playing with Build a Bears and knowing a lot about the brand lol)
- Video Game Babysitter (I am awesome at babysitting on video games, I’ve gotten a promotion twice in the past week on my new Nintendo DS game)
- Online Medical Information Gatherer and Hypochondriac
- Dance Moms super-fan (I’m way too obsessed with that show)
- The ability to quote The Lion King (the original of course) from beginning to end – every spoken word, every song lyric.
- Cartoon character/toy identifier
- Unicorn admirer
Yesterday I saw my psychiatrist. We spent a lot of time talking about the dark, morbid interests I have and whether those might be contributing to my depression and anxiety. I’ve always been drawn to studying the dark side of things, whether it be the occult, serial killers, suicide, the dark side of history, horror movies and books, or psychopaths. I know these interests may not be the best things for my mental state, but they are all things that fascinate me and it is hard for me to resist things that fascinate me.
At one point in the conversation, my psychiatrist asked if there were any happy interests I have. I told him I love cartoons, but then I told him one of my favorite cartoon movies is Anastasia, which he pointed out is about the mass murder of the royal family lol, so maybe not so happy after all.
Today I have an MRI scheduled on my head and neck to try to figure out what might be causing my recent migraines. I’m really not looking forward to it. I hate MRI’s, especially on the head and neck because I feel really claustrophobic and hate not being able to move for so long.
Sometimes I feel like mental health disorders are like Pokemon: Gotta catch’em all!!!
Is there a point where collecting mental health labels gets ridiculous and almost humorous? Sometimes I wonder if all the stuff that has been ascribed to me is really wrong with me, and if it is – is it actually just one thing with many different facets?
Here are the mental health diagnoses I have collected to this day (that I know of and can remember):
PDD-NOS (high-functioning autism)
Asperger’s Syndrome (a slightly different form of high-functioning autism lol)
Bipolar Type 2
Major Depressive Disorder
Generalized Anxiety Disorder
Social Anxiety Disorder
Avoidant Personality Disorder
OCD (Obsessive Compulsive Disorder)
SAD (Seasonal Affective Disorder)
I may be leaving some out or have ones I don’t even know I have in my medical record, but am I getting close to winning this odd, mentally ill game of Pokemon Go yet? I CHOOSE YOU!…