Dark Obsessions and MRI’s

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Yesterday I saw my psychiatrist. We spent a lot of time talking about the dark, morbid interests I have and whether those might be contributing to my depression and anxiety. I’ve always been drawn to studying the dark side of things, whether it be the occult, serial killers, suicide, the dark side of history, horror movies and books, or psychopaths. I know these interests may not be the best things for my mental state, but they are all things that fascinate me and it is hard for me to resist things that fascinate me.

At one point in the conversation, my psychiatrist asked if there were any happy interests I have. I told him I love cartoons, but then I told him one of my favorite cartoon movies is Anastasia, which he pointed out is about the mass murder of the royal family lol, so maybe not so happy after all.

Today I have an MRI scheduled on my head and neck to try to figure out what might be causing my recent migraines. I’m really not looking forward to it. I hate MRI’s, especially on the head and neck because I feel really claustrophobic and hate not being able to move for so long.

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I Want to Feature YOUR Art!

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Hello there! For a while I have been wanting to feature artwork by other artists, especially other outsider artists, here on my blog. First choice of artists would go to those who have autism, other disabilities (physical or mental), or are self-taught. I want to let the art speak for itself, as I normally do for my own art, so here is what I would need if you want to be featured and how to submit it:

  • Up to 3 photos of your favorite or recent artworks you have created (good quality, high resolution photos preferred). Please include the name of each artwork, what medium was used to create it, and size if applicable.
  • I don’t necessarily want to do whole interviews, as I want the art to be center stage, but if you wish to share if you are neurodivergent, self-taught, or suffer from one or more disabilities, feel free to notify me of that. You can also share a couple links where people can follow you or find more of your art.
  • Email all this to Shojobeatgirl@live.com, with subject headline: Blog Art Feature.

I’m not sure how much response I will get to this offer, so it may take a while to be featured if I get a lot of entries. I hope to share a new artist every week or so.

Feel free to ask if you have any questions.

Mental Health Labels – Gotta Catch’em All!!!

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Sometimes I feel like mental health disorders are like Pokemon: Gotta catch’em all!!!

Is there a point where collecting mental health labels gets ridiculous and almost humorous? Sometimes I wonder if all the stuff that has been ascribed to me is really wrong with me, and if it is – is it actually just one thing with many different facets?

Here are the mental health diagnoses I have collected to this day (that I know of and can remember):

PDD-NOS (high-functioning autism)
Asperger’s Syndrome (a slightly different form of high-functioning autism lol)
Bipolar Type 2
Major Depressive Disorder
Generalized Anxiety Disorder
Social Anxiety Disorder
Avoidant Personality Disorder
Complex PTSD
OCD (Obsessive Compulsive Disorder)
Phobias
Cyclothymia
Adjustment Disorder
SAD (Seasonal Affective Disorder)
Dysthymia
Somatic Disorder
Attachment Disorder

I may be leaving some out or have ones I don’t even know I have in my medical record, but am I getting close to winning this odd, mentally ill game of Pokemon Go yet? I CHOOSE YOU!…

EEG Update & Going Gluten-Free

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Had my EEG yesterday morning. It wasn’t too bad. The flashing strobe light part was almost kind of like what I imagine doing psychedelic drugs would be like – all the swirling lights and patterns…it was kind of crazy. I was supposed to nap for like 15 minutes or so, but just couldn’t fall asleep. I’m hoping I won’t have to do the home sleep study, but I guess we’ll see what the doctor thinks. The gel they put on my hair to keep the electrodes connected drove me crazy, so I had to come right home and wash it out.

Other than that, not much exciting is going on. I am attempting to embrace a mostly gluten-free diet in hopes that it helps my digestive and chronic inflammatory issues, but it is hard because many of my favorite foods (pasta, pizza, bread, cereal, cookies, etc.) have to be eliminated or replaced with gluten-free substitutes which don’t always taste as good or have the same texture. As an autistic gal, food texture matters A LOT to me and it takes a good long while for me to get used to changes. Thank goodness a few mainstream cereals are already gluten free (like Cheerios, Lucky Charms, most Chex varieties, Fruity/Cocoa Pebbles, and a few more).

My mood today is rather blah. Just not feeling much of anything, except tired.

I Won My SSDI Case!!!

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Here is what I wrote on my Facebook page today, I think it pretty much sums it all up:

Six long years, and I finally won my SSDI case! Fully favorable! Feel like crying and screaming. Been sick and in pain so long, sometimes I wanted to give up hope and die, but glad I hung in there.

All those people who doubted me or thought I was just being “lazy” or “dramatic” can kiss my ass. To all those who have showed love, empathy, and encouragement, thank you so much for helping to keep me alive and fighting.

My fellow bloggers here on WordPress definitely fall into the second category of supportive, encouraging people, so thank you all so much!!!

By the way, the decision was just made yesterday and my lawyer was the one who called and told me, so it will still be a little while before I get the back pay or monthly payments started, but I’m on my way!

I’m Livestreaming on YouTube

I’ve started livestreaming on my YouTube channel just for something to do and another way to connect with people. I’m doing most of the streams on my personal channel, rather than my toys and books channel. My personal channel has a lot less subs (around 200 compared to over 3,000), so if you are a YouTube watcher, please consider subbing to my channel! Here are a couple recent livestreams if you are interested:

The YouTube playback for the livestreams is a bit blurrier than normal vids, but I’m working on that! You probably want to watch them in the highest quality available to minimize blurriness.

Dental Cleaning from Hell

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That headline isn’t exaggerating. I had a horrible dental cleaning experience yesterday. Now to be fair, my teeth are extremely sensitive, just like everything else on my body (thanks autism), so cleanings are never fun for me anyhow. There are always at least a few painful nerves hit during the process.

However, yesterday the lady who regularly cleans my teeth was on maternity leave so I had a new lady who was incredibly slow, annoying, and seemed to manage to hit about every nerve on every tooth, at least on the front ones. I can’t recall the number of times I flinched from the pain. At least a couple times I teared up. I was starting to wish I was having a filling instead, because at least then I would be numbed up some.

I feel bad calling the lady annoying, but to be frankly honest, she was. She was one of those people who just talks and talks and talks, which drives me crazy. It was especially hard not to be annoyed when I was already having a bad experience. A few minutes into the cleaning I was tempted to get up and say “I’m sorry, but I just can’t do this today”, and reschedule for when my normal person gets back. I managed to tough it out though. Glad it is over and my regular cleaner should be back before my next cleaning!

SSDI Hearing Update

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Sorry I didn’t update you all yesterday after the hearing, but I was just too exhausted mentally, emotionally, and physically after the stress of the day. Overall, I think the hearing went ok. It didn’t start out very well since my husband and I had trouble locating the right building and ended up walking through the thick, slushy snow so far that I had an asthma attack, started crying, and was totally soaked from the knees down by the time we actually found the right building. The roads were bad too from the snowstorm and parking was almost impossible since none of the parking lots had been cleared yet.

Once we got into the building, I had a few minutes to recover from the asthma attack and calm down at least. I also had about 15 minutes to meet with my lawyer before the hearing to go over everything again. During the hearing itself, I was quite nervous. I was doing a lot of rocking back and forth (“stimming” in autistic terms).

I think I only had the nerve to look at the judge two or three times the entire hour I was in there. I mostly stared at the microphone and tried to block out everyone else there while answering questions. That seemed to help my social anxiety. I think I did a decent job answering the judges questions…and she asked a lot. I never lost control of myself, although in my closing remarks I did tear up a bit and got a little emotional talking about how hard it had become for me to keep a job due to my physical and mental disabilities.

Unfortunately, the judge did not tell me her decision yesterday. I will have to wait to receive the official verdict letter. On the positive side, my attorney did say afterwards that he thought it went great and even on the off chance that the judge gave a negative verdict, he thought I had a strong enough case that he would appeal that. I hope it doesn’t come to that though, God only knows how much longer that would make the whole thing drag out…and quite honestly, we need the money as soon as possible, especially since I just got a $1,500 ER bill (our deductible sucks).

Worries about My SSDI Hearing Tomorrow

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Tomorrow morning is my SSDI hearing. I’m super anxious about it. I feel a little nauseated just thinking about it. I’m afraid I’ll do or say the wrong thing. I’m afraid I’ll burst into tears and feel embarrassed. I’m afraid I’ll somehow misrepresent my reality. I’m afraid the judge will say no and ruin my foreseeable future.

I know the judge probably won’t even give a straight “yes” or “no” answer tomorrow, but that makes it even worse because then I have to wait who-knows-how-long in suspense and worry. I hope I’ll feel better when it is over, but knowing me, I’ll probably spend the next few months picking apart the experience and everything I think I did wrong until I get an answer.