I’ve been having a tough time lately mentally and physically. These constant migraines and stomach/digestive issues have really got me down. Sometimes I feel like life isn’t even worth it if every day is going to be like this. If you’ve ever had chronic, unrelenting migraines day after day, you probably understand how I feel.
I am trying hard to get this fixed or at least lessened and my doctors are trying different things, but nothing has come close to solving the issue yet. I feel like I’m just being dragged through each day and the only time I feel good is when I’m asleep.
This is my favorite time of year and I normally love to go out and do Halloween-ish or fall-ish things, so not being able to do so compounds my sadness. This weekend my husband has plans to take me several hours away for my birthday to see the Jack-o-lantern spectacular in Louisville, Kentucky. I want to go so bad and will try to go if at all possible, but I fear I won’t be able to if the health issues are acting up bad.
Luckily, the event is a drive-thru event, so I wouldn’t have to do much physically, but if I have a migraine or stomach issues, driving that far obviously wouldn’t be fun and would kind of spoil the weekend. Keep your fingers crossed for me!
Ironically enough, someone commented on my last post about how maybe some of the drugs I’m on are part of the problem with my digestive issues recently. They were right about part of it at least. Turns out the stomach pain and nausea (and possibly some of the constipation) were caused by all the NSAIDS they had been giving me for the migraines lately. The toradol shots, the ibuprofen and naproxen I was told were safer than the other pain relievers when it comes to rebound headaches, etc.
So, now it seems I’ve developed ulcers and gastritis. Yikes. No more NSAIDS for me, at least for right now. They also found a hiatal hernia, but didn’t know if that was actively causing any problems at this point as it didn’t look very big yet.
So, now I’m just chilling out at home, eating bland foods, watching horror movies on tv, reading on my new Kindle Fire, and letting my body heal.
This past week has been a digestive nightmare. I went to the doctor last week about my recent migraine issues and we also discussed the worsening of my IBS. I used to have IBS-D (diarrhea), but lucky me switched over a few years to IBS-C (constipation). It is an ongoing issue that is made worse whenever I have to take a lot of painkillers and certain other medications (like many of the ones I take for migraines and the symptoms they bring on).
Before you ask, I do all the stuff you are supposed to do. High fiber, prunes, stool softeners, milk of magnesia, walking, gentle yoga, and I’ve tried other things like Miralax which I didn’t like and didn’t work well for me. So anyhow, the doctor put me on Linzess, which is a medicine made specifically for IBS-C.
The first day I took it, it worked well for what it was supposed to do, but it also gave me a high fever, horrible all-day nausea, extreme dizziness, stomach and bowel pain, and fighting off vomiting. At the doctor’s recommendation, I quit taking it. We are scheduling another appointment to discuss other options. So since then it was another 4 days of bad constipation and then I took an OTC laxative because I couldn’t take it anymore and when I took that it caused another day of nausea, dizziness, stomach pain, and wanting to vomit (none of which is normal for me with an OTC laxative). At least I didn’t have a fever this time.
Now I’m staring to worry maybe something more is wrong than just the IBS. I hope not, but I generally know how my body reacts to things, and it worries me when that changes.
Waiting for your call
I lay down,
I stand up,
I check the time,
I wipe the sweat away,
I pretend to read,
I sweat more,
I change shirts,
I remember to breathe,
I evaluate my chest pain,
I fidget and tic,
I freeze, catatonic
as the phone rings,
and I am exhausted
before I even begin.
Just 17 days after my last ER visit for the same reason, I had to pay another visit this past Sunday because I had yet another migraine lasting 3 days or longer. This is getting to be a habit and that is really not a good thing. Some of these migraines are lasting longer than 72 hours which puts them into a dangerous category that less than 1% of migraine sufferers have called status migrainosus. Reportedly this is one of the 4 ways that migraines can actually kill.
Needless to say, this is not reassuring. I am meeting with my doctor to reevaluate my meds and hopefully that will help, but who knows. I’m afraid to get my hopes up at this point. If I’m not as active on WP, please don’t think it is because I am ignoring you all, I am just not up for much right now.
I had two topics in mind for blog posts today, so decided to just combine them into one post. First off, my newest poetry chap book, “Can’t Keep Me Down“, is free on Kindle today through Thursday, so if you wanted to read it, grab a copy! If you do read the book, please consider leaving a rating and/or review on Amazon and/or Goodreads so I’ll know what you think!
By the way, there is a print version of the chapbook available on Amazon now as well! It is $5.99 and can be found at the same Amazon link above.
Lastly, about a couple weeks ago I gave up sugary drinks. This was mostly a big deal because I drank Coke pretty much every day. Since giving up the pop, I’ve already lost about 5 pounds! I don’t even really crave the sugary drinks much anymore. It will be interesting to see if I continue to lose weight!
Yesterday was kind of hellish. My migraines were worsening and I had already reached my limit of medicine I’m supposed to take in a week for them, so I ended up going to the ER. There they gave me what they call the “migraine cocktail”, which includes Toradol, Benedryl, and a nausea medicine.
Unfortunately, I had a horrible reaction to the Benedryl. It is really weird because I take it all the time at home, but I guess the IV version doesn’t agree with me. As soon as they started giving it to me, I could already feel chest pain around my heart area and the room started spinning, but figured it was just my anxiety. However, within a few minutes, my resting heart rate had jumped from below 100 to over 165!
I felt like I was dying. It was a horrible feeling. My body was trying to throw up the offending agent, but of course it couldn’t, as it was administered by IV. It was at least a half hour to an hour before I didn’t feel like screaming and stopped thrashing around in incredible discomfort.
I ended up having to stay in the ER longer so they could do an EKG and blood work, which they hadn’t originally intended to do, but with the heart rate spike they wanted to make sure nothing else was going on. Luckily, that stuff came back ok (although I was deficient in potassium and had to drink a nasty concoction to help that).
On the plus side, the migraine is better, but still not feeling great. Going to try to take it easy all weekend.
Three days straight of migraines that won’t go away. They’ll ease up a bit when I take migraine medicine, but then they come back. Sadly, my migraine medicine (Sumatriptan) is one that you aren’t supposed to take more than 4 pills a week, so I don’t know what I’m going to do if they keep coming back. Please keep me in your thoughts and prayers. If I’m not very active on WP, you’ll understand why.
My husband is a special education teacher and he starts back to work this week. Even though covid rates have been rising in the area and many schools near here who opened earlier have already had to close down due to spreading coronavirus cases, my husband’s school is still opening at full capacity, full-time. I’ll admit it worries me.
I don’t want my husband to get sick. I don’t want him to bring it home and get me sick. I don’t want the other teachers and employees to get sick. And I certainly don’t want the kids or their families to get sick.
To me, this all seems like it might be a really bad idea. I expect that they will only be open a short while before they have to close down again anyway. Especially with fall coming, when there is likely to be a true 2nd wave (not just the 2nd rise in cases we’ve already seen due to poor handling of the whole thing from the beginning).
I want to be positive, and part of me has felt this whole thing seems really off from the beginning, so maybe it isn’t as bad as they make it out to be, but I still worry.