Chronic Pain Kills Dreams

cat-4269479_960_720

My migraine, neck, and back issues have been flaring up on and off ever since my bad MRI experience almost two weeks ago. I feel like I’m not getting anything done and am struggling to get the bare minimum of my daily routine done. All this has me feeling depressed and has killed my enthusiasm for the new book I started writing.

The logical side of me knows the pain will eventually subside, but while I am stuck in this misery it feels infinite and everlasting. Chronic pain wears you down, destroys creativity, and can stomp all over your goals – at least anything short term. I hope I’ll be back to normal someday soon.

Advertisements

I Got a Blog Donation and Other Good News!

african-american-3810584_960_720

First off, I want to thank the person who made a supportive donation to my blog through Paypal today! I believe this is the second donation I’ve received that way and I really appreciate the support! If you are interested in ways to support me, please check out the Support My Blog page on this website.

Also, I got some good news today that I don’t have to do the second part of the MRI that went disastrously last week. That is such a relief. I was afraid if I did the rest of the MRI it would just trigger another migraine. The MRI results I did receive were pretty good, with no seeming worsening of my cervical issues! Thank goodness!

I did have to visit the GI doctor today and found out I need to have an endoscopy, which I am nervous about, but I realize it is important if they are to find out why I am having such horrible bouts of esophageal pain and difficulty swallowing. At least I will be sedated for the procedure and hopefully won’t feel or be aware of what they do. My appointment for that test isn’t until next month, so at least I get a little break from medical tests.

Last Night was a Disaster

forensics-3926577_960_720

That headline is not an exaggeration. First off, my MRIs went bad. I had MRIs for my brain and neck scheduled last night, both with and without contrast. I didn’t even get to the contrast part because the first part gave me a migraine, triggered severe neck pain, and gave me a major panic attack. I was almost sobbing by the time they got ready to give me the contrast, so they sent me home.

I left feeling embarrassed for not being able to keep myself from crying in public yet again. I also felt feelings of failure as I couldn’t do something as simple as completing two MRIs. Now I have to contact the neurologist that ordered the tests and tell him I wasn’t able to make it through and see if he wants to make separate orders for the contrast part. So, I might have to go through it again soon.

Also, we ate at a local restaurant yesterday that served me some bloody chicken. I didn’t notice right away because the blood pooled beneath the chicken breast. Anyhow, last night I got really sick and had to sleep with a trashcan beside me. I took both Mylanta and Zofran and nothing helped the nausea. I suspect I might have gotten a little bit of food poisoning from the underdone chicken.

At least I’m not fighting down vomit anymore, but still feeling nauseated and sick. Understandably, all this has made my mood rather blah too. I just want to huddle under the covers and hide from reality right now.

Dark Obsessions and MRI’s

skull-1193784_960_720

Yesterday I saw my psychiatrist. We spent a lot of time talking about the dark, morbid interests I have and whether those might be contributing to my depression and anxiety. I’ve always been drawn to studying the dark side of things, whether it be the occult, serial killers, suicide, the dark side of history, horror movies and books, or psychopaths. I know these interests may not be the best things for my mental state, but they are all things that fascinate me and it is hard for me to resist things that fascinate me.

At one point in the conversation, my psychiatrist asked if there were any happy interests I have. I told him I love cartoons, but then I told him one of my favorite cartoon movies is Anastasia, which he pointed out is about the mass murder of the royal family lol, so maybe not so happy after all.

Today I have an MRI scheduled on my head and neck to try to figure out what might be causing my recent migraines. I’m really not looking forward to it. I hate MRI’s, especially on the head and neck because I feel really claustrophobic and hate not being able to move for so long.

Another Inflammatory Flare Up and False Hope

brain-3168269_960_720

The past few days have been rough. My back went out again, so my upper back and neck have been causing extreme pain again. I think the gluten free diet isn’t really helping much, as all the things I thought it was helping have suddenly flared up the last couple weeks. My GERD has been awful to the point I’ve had trouble swallowing again, the night sweats are back, and I seem to be having a widespread inflammation flare-up again.

I know I shouldn’t have put so much hope on the diet to solve all these issues, but I feel like I’m so desperate for something to make me better that I often put high expectations on each new treatment idea, hoping it will be “the one”. Of course, I probably need to accept that since I have Ehlers Danlos (a genetic connective tissue disorder), that nothing is probably going to be that cure-all I have been hoping to find.

How I wish that there was a cure to whatever is going on inside me. I often long for one of those scanners like they have on Star Trek that could easily pinpoint exactly what is going on and what the treatment should be without being invasive. I guess I was born too early for that. We might be headed that way technologically, but it is probably well off on the horizon.

I Want to Feature YOUR Art!

kids-2985782_960_720

Hello there! For a while I have been wanting to feature artwork by other artists, especially other outsider artists, here on my blog. First choice of artists would go to those who have autism, other disabilities (physical or mental), or are self-taught. I want to let the art speak for itself, as I normally do for my own art, so here is what I would need if you want to be featured and how to submit it:

  • Up to 3 photos of your favorite or recent artworks you have created (good quality, high resolution photos preferred). Please include the name of each artwork, what medium was used to create it, and size if applicable.
  • I don’t necessarily want to do whole interviews, as I want the art to be center stage, but if you wish to share if you are neurodivergent, self-taught, or suffer from one or more disabilities, feel free to notify me of that. You can also share a couple links where people can follow you or find more of your art.
  • Email all this to Shojobeatgirl@live.com, with subject headline: Blog Art Feature.

I’m not sure how much response I will get to this offer, so it may take a while to be featured if I get a lot of entries. I hope to share a new artist every week or so.

Feel free to ask if you have any questions.

Not Having the Best Week

nature-3201619_960_720

This hasn’t been a great week for me. I’ve been struggling with headaches, earaches, fatigue, and stomach issues physically, and then on top of that I’ve been rather depressed and lethargic. Last weekend we were supposed to go to a baby animals festival I always love, but I didn’t feel up to it either day. Tomorrow is my 16th wedding anniversary, but I don’t feel much like celebrating, even though I am very thankful for my wonderful husband.

We also found out that my husband’s health insurance through his work is going up $100 a month and that I might actually be dropped from the plan now that I have SSDI and can get Medicare. I’m not sure how that might affect my current healthcare and doctors. I really hate our healthcare system here in America.

I guess a couple of good things I can concentrate on are that I just hit over 2,000 Instagram followers, and am only 5 subscribers away from 1,000 followers here on WordPress! If you don’t follow me already, please help me reach that goal!!! I would be most grateful and it would make me smile.

Mental Health Labels – Gotta Catch’em All!!!

maxresdefault

Sometimes I feel like mental health disorders are like Pokemon: Gotta catch’em all!!!

Is there a point where collecting mental health labels gets ridiculous and almost humorous? Sometimes I wonder if all the stuff that has been ascribed to me is really wrong with me, and if it is – is it actually just one thing with many different facets?

Here are the mental health diagnoses I have collected to this day (that I know of and can remember):

PDD-NOS (high-functioning autism)
Asperger’s Syndrome (a slightly different form of high-functioning autism lol)
Bipolar Type 2
Major Depressive Disorder
Generalized Anxiety Disorder
Social Anxiety Disorder
Avoidant Personality Disorder
Complex PTSD
OCD (Obsessive Compulsive Disorder)
Phobias
Cyclothymia
Adjustment Disorder
SAD (Seasonal Affective Disorder)
Dysthymia
Somatic Disorder
Attachment Disorder

I may be leaving some out or have ones I don’t even know I have in my medical record, but am I getting close to winning this odd, mentally ill game of Pokemon Go yet? I CHOOSE YOU!…

Complicated Mother’s Day

lily-of-the-valley-4169440_960_720

Mother’s Day always creates such a barrage of mixed emotions for me. There was a lot of trauma, abuse, mental illness, and foolish decisions that marked my childhood. My mother was far from a perfect parent. Luckily, she does admit to that and seems to be really trying to be a better person now, but being around her always triggers so many memories, thoughts, and feelings – some good, some bad, some funny, and some tragic.

I think part of the issue is that my brain has a tough time seeing how she acts towards me now and reconciling it with memories of how my sister and I were treated while growing up. I do believe in forgiveness (within reason), and I do love my mother, but I doubt there will ever be a day in her company that doesn’t create confusion for me internally.

I write this post today to recognize those of us who struggle on Mother’s Day to even know how to feel…