Bad Flare Up After Car Broke Down

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Feeling like shit today. Woke up after sleeping 10-11 hours, ate breakfast, and then went to take a nap for another couple of hours. So, why am I so exhausted and feeling like I got run over by a steamroller?

Well, yesterday my husband was driving home from work when a tire fell off his car. I had to go pick him up and once I got there, we had to wait for the tow truck to come get the broken down car. It was supposed to be about an hour before the tow truck arrived, instead it was almost three hours. Three hours of sitting in the cold (we did turn on the heat in my car occasionally, but didn’t want to run it the entire time we were waiting). Three hours of sitting in a position that is not good for my back, neck, and joints. Three hours of my joints stiffening due to the cold and being cramped in the car.

I knew today I would feel rough after all that and expected my CFS/ME and Ehlers Danlos to flare up. As usual, I was correct, but I wish I wasn’t. Those who don’t have chronic illness and chronic pain have no idea how easy it is for normal, annoying life events to set us back for days. I think it is something you have to experience to truly understand.

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Twittering Tales #126 – This Is It

The prompt for this week’s Twittering Tales writing challenge immediately brought back sad memories of an ill-fated tour of a great entertainer (one of my all-time personal favorites), so I went with it. Here is the photo prompt and my entry:

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“It was meant to be my swan song. I pulled out all the stops…the moonwalk, the sequins, the white glove, the gangster getup for Smooth Criminal.

It was the only chance my children would ever have to see me live on tour. When I said This Is It, I meant it, but it came too soon…”

(280 characters)

I wanted to add the video and song by the same title as well. It is a beautiful, though sad song and the video features footage of rehearsals for the tour that never was…

 

Abecedarian Writing Exercise – On Climate Change

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While reading a book called “Flash! Writing the Very Short Story”, written by John Dufresne, I came across the writing form called a abecedarian. This writing form is where you write a story or other form of creative writing where each new sentence starts with a new letter of the alphabet, going sequentially from A-Z of course. I thought it sounded fun and tried it myself, with a creative writing piece I call On Climate Change:

Another world is not an option. Before we give up on this one, let’s at least put up a fight.

Clean up your mess. Don’t think you can cut corners. Everyone has to learn to work together. Failing to do so, may lead to the annihilation of us all. 

Give up the fossil fuels. How? Imagination – learn to use yours. Join together, share ideas. Keep trying. Let no temporary failures steer you off course. 

Make clear the risks we face. None of us live alone, quit acting like we do. Open your eyes, open your mind, open your heart. 

Practice makes perfect, but persistence wins the game. Quit fighting each other and fight the corrupt system. Right the wrongs that have persisted too long. 

Stop worshiping consumerism. Turn your trash into treasure. Undo the damage our selfishness has created. 

Voice your appreciation for the strong, proud nature of our mother planet. Watch how she rallies to protect her own. X-ray her heart and share the joy you find within. 

YOU hold the future in your collective hands. Zealously protect and celebrate your beautiful home while she is still beautiful.

I hope you liked this little writing exercise. It was indeed fun and I think I might try it again sometime and maybe do a fiction piece.

 

Poetry – When I Was Hit By a Truck

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Not many 10-year-olds
could be hit
by a speeding
delivery truck
while crossing the street
and live
to tell the tale…
but I always was
a weird statistic.

The truck ran
me over
with the ease
of a speed bump.
I even had the
tire tracks
and imbedded gravel
across my stomach
to prove it.

When I woke up
in the ER
I screamed out the names
of all the people
I was going to sue…
until my mother
bought my silence by
bribing me
with the promise
of a brand new
Barbie doll.

(Poetry by Maranda Russell, marandarussell.com)

Isolation and Loss from Chronic Illness

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I’ve been feeling rather sad and isolated the last few days. I think a lot of it comes from the stress of dealing with chronic illness and chronic pain. Anyone who has chronic illness is probably familiar with spoon theory, an illustrative way to describe why you have to choose carefully how to use your energy to do things when you have very limited physical ability.

In other words, sometimes you have to choose whether you would like to go out and socialize for a short period of time, spend that energy getting some much-needed housework done, work on a hobby or personal interest, or even simply take a shower…because you just don’t have the energy and the physical ability to do them all within the same day like a healthy person could.

Most of the time I end up choosing to spend my “energy” and limited abilities to either spend time with my husband, work on my art/writing/blogging, or take care of personal hygiene or light housework. Prioritizing these things leaves no extra energy or time to socialize on a wider scale or do much outside of the house, other than maybe occasionally going out for dinner or doing a little necessary shopping. Even the thought of going to a movie is often too exhausting to contemplate.

All of this makes me sad, especially when I remember how I used to enjoy so many other things I can’t do any longer. I used to love hiking, playing tennis, roller skating, bowling, dancing, working, swimming, being a foster parent, and going out to various activities with people I know or share interests with. I’ve pretty much lost all of that for good. And that is depressing.

Twittering Tales #125 – Empty Bed

Here is the photo prompt and my entry for this week’s Twittering Tales writing challenge hosted by Kat Myrman:

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Olivia sat on the edge of her daughter’s unmade bed. She ran her fingers over the ridges and bulges of the white blankets. She leaned down to sniff the fluffy pillow at the head of the bed, then laid her head down on it heavily.

She’s really gone. The pain hit hard and fast.

(275 characters)

(Note: The photo prompt this week really reminded me of the novel I am currently reading, “The Night Olivia Fell”, by Christina McDonald. So, I stole the character name for the writing exercise.)

More Elfchen Poems – Suicide, Trump, Potemkin

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Here are a few more Elfchen poems (5 line poems that have the following number of words per line: Line 1 = 1 word, 2 = 2 words, 3 = 3 words, 4 = 4 words, 5 = 1 word, the words on line 1 and line 5 should not be the same word).

1.
Suicide
time to
open those cuts
and suction the blood
flowing

2.
Pity,
you believe
the orange gremlin
in the white house?
Sucker.

3.
Potemkin
funny name
on the cover
of a paperback novel
misread

(My apologies to any Trump supporters for #2 lol, as you can tell, I am not a supporter)

(For #3 I just had to write something because I love the name Potemkin)