Depressing Health Update

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I went to the doctor today because my ear is still killing me and I’ve been running a fever for several days. Turns out I have another middle ear infection…this has to be about the sixth one in six months. Boy, am I getting tired of this. Not much I can do either, since I have tried many “alternative medicine” cures for ear and sinus infections and have went the whole ENT and allergy specialist route, only to find that nothing really works. In the end, I feel like it is just my own immune system working against me.

The doctor also said that she suspects the mouth sores I was dealing with might have been related to Coxsackie Virus (or Hand, Foot, and Mouth Disease). Adults don’t catch that illness nearly as often as kids do, but it can happen, and with my autoimmune issues, I guess it wouldn’t surprise me to find out I did get it.

So, I am on ANOTHER course of antibiotics. Something that depresses me to no end because I fear with all the antibiotics I have had to take lately that I may end up developing C Diff again, which caused me to be hospitalized for almost a week a few years ago. Needless to say, I am not in a good place physically or mentally and am just tired of it all. This chronic illness shit sucks.

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CFS Flare Up Causing Painful Sores?

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The last week has been rather rough. Healthwise, I seem to be having some immune system issues. For some reason, I have gotten sores all over my gums and strangely, under my tongue. They aren’t like regular canker sores, they are more like little painful little red balls and swollen, ulcerated patches. I’m not sure exactly what they are, although while looking around online, I did find forums full of people with CFS and fibromyalgia who have experienced similar outbreaks, so I am guessing maybe it is related to that.

Unfortunately, the sores that are near the back of my jaw are causing an immense amount of ear pain, to the point that it feels like an ear infection. I was also running a low grade fever last night, which makes me think it is some kind of virus or infection causing the sores. I am taking some antivirals suggested by the doctor, but they don’t seem to be helping at all and are only serving to make me nauseated on top of everything else.

Today I was supposed to go to a birthday picnic for one of my husband’s coworkers, but I simply didn’t feel up to it. I feel bad for letting him down because I know he really wanted me to go so that I could get to know his friends better, but socializing is the absolute last thing I feel like doing right now.

All of this has me rather depressed and feeling lethargic. It feels like ever since I overdid it on our mini vacation to Kentucky, my health has taken a nosedive and is struggling to recover. That is what many people don’t understand about CFS, that once you trigger a relapse, it can take weeks to get back to “normal”…and our “normal” is far below average to start with! Chronic pain and chronic illness are no joke and make for a rough life sometimes.

 

A Female Aspie’s Thoughts On Jordan Peterson

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Lately I’ve been listening to a lot of interviews and lectures with controversial thinker and psychologist Dr. Jordan Peterson. This Canadian bloke is a rather interesting mix if you really listen to his thoughts and beliefs. Many on the left, especially those on the social justice warrior side seem to hate his guts and believe he is sexist, racist, abusive, and a number of other unpleasant adjectives. I don’t believe he is actually as far right wing as many seem to think, but he does definitely have some classical views on innate gender differences and he certainly has a hatred for what he sees as newfangled pronoun madness.

As far as the whole pronoun thing goes, I do agree with him in many ways. I have seen the charts of all the new pronouns that supposedly exist now and I just don’t see how using all of those in common vernacular will ever really catch on. How many people will bother to memorize such a chart as the lengthy ones I have seen online? I see no issue with people wanting to be referred to with particular existing pronouns (he, she, they, etc.) as long as they don’t expect people to be able to read their minds and know which pronoun they prefer. I believe if you ask people to call you a particular thing, most will agree and try to do so, as long as it isn’t too hard to remember or seemingly insulting.

Aside from that whole controversy, what I really find interesting about Peterson is his obsession with Nietzsche (one of my personal favorites), Jung, and his love of archetypes. He sees a story arc in everything apparently, and usually a metaphor-laden one at that. I do find it interesting how he likes to deconstruct pop culture favorites, be they movies, tv shows, books, or other works of art, using Jungian thought. I have heard complaints that he entirely misconstrues Nietzsche’s work, but I’m not sure I’ve seen too much of that personally. Sure, his personal views bleed into his interpretation, just as everyone’s does, but I’m not sure it is to any greater extent than most philosophical analysts.

I do think his latest book “12 Rules for Life” sounds fairly simplistic and seems to lack much deeper introspection, instead almost falling into the common self-help book market. “Clean your room”? “Stand up straight”? Thank you, Grandma. I hear his earlier book, “Maps of Meaning”, is far more thought-provoking and deep, so maybe I will give it a try at some point.

Lastly, I just want to comment a bit on Peterson’s personality and the impression I get from him. Dude does seem awfully angry and easily provoked over nothing at times. Maybe this is frustration at feeling constantly misunderstood and misrepresented, but it still makes him look a bit snowflakish himself, which I’m sure isn’t the impression he wants to give. I also often wonder if he ever appears happy or genuinely smiles? He almost seems very depressed to me…and I would know as I struggle with the same beast. He talks a good game about finding meaning in life, but there is a big part of me that thinks deep down he struggles constantly with the seeming meaninglessness and absurdity of life and is resentful of it. But perhaps I am projecting a bit there.

I have also heard him accused of using “word salad” or droning on and on without making much of a point. I’ve seen a bit of this myself, but I think part of the issue is how many tangents he seems to wander off on while making a point. I feel his lectures could definitely benefit from some streamlining and sticking more closely to each point until its conclusion.

Many have suggested that Peterson seems to have a bit of a “savior complex”, which I do see signs of now and then. My antenna especially went up when he talked about how if he went to prison for refusing to use someone’s pronouns and pay the fine, he would go on a hunger strike. Calm down a little! Is it really worth all that? Why not just set yourself on fire on Main Street? I think someone so famous going to prison over something so stupid would be enough in itself to garner attention.

Vacations: A Harsh Reality of Chronic Illness

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Over the weekend my husband and I took a short vacation to Louisville, KY to celebrate our 15th anniversary and spend some quality time together. I did have a good time, but I must admit that I dread and sometimes even regret vacations just as much as I look forward to them.

Why? Simple. Chronic Fatigue Syndrome. Vacationing when you have CFS sucks. Big time. Planning the vacation wears you out. Packing wears you out. The travel wears you out. Even though I don’t do the driving, I am still exhausted by the time we even get to our destination. Often, as soon as we get to our hotel I immediately have to lay down for at least a couple hours to recuperate, even if it is only a 2 or 3 hour drive as this one was.

The main excursion we planned was to the Louisville zoo. We had never been there before and both my husband and I love animals. Luckily, it wasn’t a huge zoo, but by the time we had toured about half of it, I was in really poor shape. I had to sit on each bench we came by and rest. I even had to make do with the floor a few times and just collapsed. I was nauseated, felt like passing out, developed a migraine-like headache, and felt extremely overheated, even though it wasn’t that hot out and I stayed hydrated. Heck, most of the buildings were even air conditioned. THIS is what living with CFS is like.

I didn’t get to see much of the rest of the zoo. I was too busy looking for places to rest and recuperate for the trek back to the car. My legs ached so badly and felt so weak that I feared they would give out on me multiple times. My entire body felt like I had been run over or slammed into by something big and heavy. Somehow I did make it back to the car (after resting many, many times on the way there), and then we went directly to our hotel so I could recuperate for the rest of the day. I didn’t even have the stamina to go out for dinner a few hours later, so we ate at the hotel.

I went to bed early, hoping I would feel better in the morning, which didn’t really happen. The next day we visited a cool indie bookstore I had wanted to go to, but I was almost too tired to even enjoy that. We went and found a place by the Ohio River to sit and watch barges pass by, which was peaceful and relaxing. During the drive times to our locations, I curled up with a pillow and laid my seat back to doze.

By the time we headed back for home, I was too exhausted to care about much of anything. When we arrived home, I went almost straight to bed, even though it was only 5pm. The next day (Labor Day), my hip and back were so sore (with a pinched nerve thrown in), that I spent most of the day laying in bed watching a Lake Placid marathon on the Syfy Channel. Any form of movement was excruciating.

All of this makes me wonder if vacations are really worth the trouble. It also makes me wonder if maybe sometime soon I will need to get a motorized chair to even survive simple outings like this. I hate to give in and do that, but my worsening symptoms make it an almost certain possibility eventually.

Life Update: Weekend Trip, Nerdy Interests, Depression Lifting

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This weekend I am going out of town with my husband to celebrate our 15th anniversary, but I wanted to write a short post first just to let you all know how I’m doing. Fortunately, my depression has let up a little bit, and I think having this weekend to look forward to has helped. Everyone just needs to get away now and then and do something different.

I have been highly into toy collecting and comic books again lately, which I’m sure you have noticed if you follow my Instagram or watch my nerdy YouTube channel. Whenever I am able to lose myself in special interests like these, it also greatly helps my depression and anxiety. I suppose that is the Aspie side of me kicking in. I can always tell when my depression is hitting its worst because one of the first things that happens is that I lose all interest in the things I normally love…which is especially hard to deal with when you have Asperger’s and your obsessive interests are so much a part of your life and coping skills.

As far as art goes, I’ve still been into doing mostly sticker collages (like the one pictured above) and other kid-inspired art. I know many people think art is “bad” if it looks “childish”, but I have always aspired to be as creative as children naturally are. Saying that my art looks like something a child did is actually a roundabout compliment to me lol. If interested, you can see my recent art on my above mentioned Instagram account.

Tonight I am hopefully going to visit the comic book store and then play some trivia at a local Italian restaurant with some other nerdy types from a local meetup group. Then it is off on our trip!

Depression: Complete and Utter Apathy

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Today I woke up feeling like utter dog-shit. Depressed to the point of feeling nothing and not caring about anything. I honestly don’t even care about this blog post lol, but I’m writing it anyway. I often think of this mood as the “don’t give a fuck” mood. The house is dirty? Don’t give a fuck. The cats are whining and tearing the bathroom apart? Don’t give a fuck. I’m hungry and my stomach is growling? Don’t give a fuck. I forgot to take my medicine? Don’t give a fuck. There are aliens invading earth? Don’t give a fuck.

In a sense, it is almost an enjoyable, freeing feeling. As someone who is usually extremely anxious and overthinks everything, feeling like I honestly don’t give a shit about anything is kind of relaxing and oddly calming. Of course, the downside is that if I let it, this feeling will paralyze me and I won’t do anything I need to do or live up to the responsibilities I have (even as few as they are).

Hopefully people won’t be offended by the harsh language of this post, but if they are, you can probably guess what my reaction would be today.

Over 1 Million Views on YouTube!!!

I am not the type of person to typically “toot my own horn” or brag about my achievements, but my psychiatrist and psychologist both say I need to “become my own cheerleader” in a way and learn to celebrate small victories, so I figured I would take the time to mention that my YouTube channel, Maranda’s Toys & Books, just passed the 1 MILLION views mark! To me, this is huge!

I simply can’t believe that over 1 million people have wanted to watch something I created! That is simply crazy. I know for huge YouTubers, 1 million views is probably what they get on one single video, but for me, I am just so proud that I hit such a benchmark! So, just for today, I’ll say “Go me!!!” and do a little happy dance in my mind (since my body is too tired to do it with me)!