Isolation and Loss from Chronic Illness

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I’ve been feeling rather sad and isolated the last few days. I think a lot of it comes from the stress of dealing with chronic illness and chronic pain. Anyone who has chronic illness is probably familiar with spoon theory, an illustrative way to describe why you have to choose carefully how to use your energy to do things when you have very limited physical ability.

In other words, sometimes you have to choose whether you would like to go out and socialize for a short period of time, spend that energy getting some much-needed housework done, work on a hobby or personal interest, or even simply take a shower…because you just don’t have the energy and the physical ability to do them all within the same day like a healthy person could.

Most of the time I end up choosing to spend my “energy” and limited abilities to either spend time with my husband, work on my art/writing/blogging, or take care of personal hygiene or light housework. Prioritizing these things leaves no extra energy or time to socialize on a wider scale or do much outside of the house, other than maybe occasionally going out for dinner or doing a little necessary shopping. Even the thought of going to a movie is often too exhausting to contemplate.

All of this makes me sad, especially when I remember how I used to enjoy so many other things I can’t do any longer. I used to love hiking, playing tennis, roller skating, bowling, dancing, working, swimming, being a foster parent, and going out to various activities with people I know or share interests with. I’ve pretty much lost all of that for good. And that is depressing.

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Twittering Tales #125 – Empty Bed

Here is the photo prompt and my entry for this week’s Twittering Tales writing challenge hosted by Kat Myrman:

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Olivia sat on the edge of her daughter’s unmade bed. She ran her fingers over the ridges and bulges of the white blankets. She leaned down to sniff the fluffy pillow at the head of the bed, then laid her head down on it heavily.

She’s really gone. The pain hit hard and fast.

(275 characters)

(Note: The photo prompt this week really reminded me of the novel I am currently reading, “The Night Olivia Fell”, by Christina McDonald. So, I stole the character name for the writing exercise.)

Abstract ACEO Artworks – Oil Pastel & Markers

Lately I’ve been in an abstract art frame of mind. I created the following ACEO artist trading cards with a mixture of textured papers and either oil pastel or art markers. I hope you like them!

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If you would like to buy one of these artworks or want to see what others I currently have for sale, visit my Ebay store!

SSDI Hearing Update

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Sorry I didn’t update you all yesterday after the hearing, but I was just too exhausted mentally, emotionally, and physically after the stress of the day. Overall, I think the hearing went ok. It didn’t start out very well since my husband and I had trouble locating the right building and ended up walking through the thick, slushy snow so far that I had an asthma attack, started crying, and was totally soaked from the knees down by the time we actually found the right building. The roads were bad too from the snowstorm and parking was almost impossible since none of the parking lots had been cleared yet.

Once we got into the building, I had a few minutes to recover from the asthma attack and calm down at least. I also had about 15 minutes to meet with my lawyer before the hearing to go over everything again. During the hearing itself, I was quite nervous. I was doing a lot of rocking back and forth (“stimming” in autistic terms).

I think I only had the nerve to look at the judge two or three times the entire hour I was in there. I mostly stared at the microphone and tried to block out everyone else there while answering questions. That seemed to help my social anxiety. I think I did a decent job answering the judges questions…and she asked a lot. I never lost control of myself, although in my closing remarks I did tear up a bit and got a little emotional talking about how hard it had become for me to keep a job due to my physical and mental disabilities.

Unfortunately, the judge did not tell me her decision yesterday. I will have to wait to receive the official verdict letter. On the positive side, my attorney did say afterwards that he thought it went great and even on the off chance that the judge gave a negative verdict, he thought I had a strong enough case that he would appeal that. I hope it doesn’t come to that though, God only knows how much longer that would make the whole thing drag out…and quite honestly, we need the money as soon as possible, especially since I just got a $1,500 ER bill (our deductible sucks).

Worries about My SSDI Hearing Tomorrow

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Tomorrow morning is my SSDI hearing. I’m super anxious about it. I feel a little nauseated just thinking about it. I’m afraid I’ll do or say the wrong thing. I’m afraid I’ll burst into tears and feel embarrassed. I’m afraid I’ll somehow misrepresent my reality. I’m afraid the judge will say no and ruin my foreseeable future.

I know the judge probably won’t even give a straight “yes” or “no” answer tomorrow, but that makes it even worse because then I have to wait who-knows-how-long in suspense and worry. I hope I’ll feel better when it is over, but knowing me, I’ll probably spend the next few months picking apart the experience and everything I think I did wrong until I get an answer.

 

Micropoetry: 3 Elfchen Poems

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Recently I discovered Elfchen poems, which are 5-line poems that follow this pattern:
Line 1 – 1 word
Line 2 – 2 words
Line 3 – 3 words
Line 4 – 4 words
Line 5 – 1 word (different than the first line word)

It is also common to take the last word of someone else’s Elfchen poem to start off your own new one.

Here are several of my first tries with this poetic genre:

1.
Always
means never
when you live
in an unstable world,
alone.

2.
Stronger
and yet
weakness creeps in
settles on the edge,
waiting.

3.
Unsaid
the words
lie firmly under
your tongue in cheek,
bitter.

Valentine Sticker ACEO Trading Card Collages

Happy Valentine’s Day! I bought some Valentine stickers at Dollar Tree recently and decided to make some ACEO collages with them. Here are the finished results:

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My favorites are the food themed ones. I thought those were really unusual for Valentine’s themed stickers. I always like to find the weird, different stuff!

You can find these and more for sale on my Ebay store!