I found out recently that my Social Security Disability (SSDI) hearing has been set for February 2019. When I found this out, I contacted my attorney’s office to ask for a copy of my medical records since I honestly don’t even know what all is in them other than what my doctors have told me and what little is available on the online portals. I was rather shocked when they told me that they could give me the physical health records, but it is a HIPAA violation to allow me to see my complete mental health records.
To be honest, this bothered me. I’m not allowed to see some of my own mental health records? This doesn’t seem right to me. Maybe I could understand if I were violent or a real danger to others and they feared me getting pissed at what the doctors wrote and trying to harm them or something, but the closest I’ve ever come to violence is just having a meltdown and yelling at someone because I was overwhelmed (normally this has only happened at work places when I was put under a lot of pressure). Even yelling is pretty rare for me though. I am much more likely to just burst into tears, lock myself in the bathroom, or try to get away from the situation by finding another “safe” area where I can be alone.
Am I alone in being frustrated by the seemingly patronizing system hiding my own truth from me? Who else deserves to know my doctors’ real, honest perception of me more than myself? I’m not a child. I can handle knowing what my doctors really think of me and maybe knowing those things would help me in my own personal growth.
For at least a year or two now, I have been debating with my husband whether we should get a handgun for home protection. You see, I have an intense fear of home invasions. I often have nightmares about it. I think part of it may stem from being robbed at gunpoint when I was 17 years old. Or maybe some of it comes from living in several areas over my lifetime that were crime ridden in one way or another. A history of physical abuse and c-ptsd certainly doesn’t help either.
That is why I believe that I might feel a little more safe with a handgun in the house (most likely locked up in a safe). My husband worries about keeping a loaded gun in the house though because of my intense periods of depression. I have bipolar type 2, and while I have never had a psychotic episode, have never tried to commit suicide, and do not think I am generally a danger to myself, my husband has seen me go through some extreme emotional lows that worried him. He fears that if we had a loaded gun in the house there is always the possibility that in a moment of intense depression I might make a rash decision.
I am thinking that perhaps I should discuss the possibility with my therapist and psychiatrist. I know both of them have said they do not think I would ever actually commit suicide. Personally, I agree that I am very unlikely to commit suicide unless my husband died and I was somehow left all alone without any help in the world. I do not think I could kill myself unless the prospect of living genuinely became worse than death. I also would not want to cause anyone who cares about me pain, as I know first hand what it is like to lose someone close to suicide.
Do you ever wonder if it all matters? I sure do. I try to be positive most of the time when I think about the things I do and whether they make a difference, but when I get depressed, the voices of doubt tend to get louder. They say some pretty mean things:
Are you just wasting your time writing and making art? Who really cares?
Why would anyone care what you have to say? Who do you think you are?
You try to support others, but do they even notice? Does it even help them?
You only focus so much on art and writing because you can’t keep a REAL job.
Your own family never cared that much about you, why would anyone else?
If you died today, barely anyone would notice or care. Your funeral would be empty.
You are selfish and everyone sees through you.
You are a drain on your husband and society in general.
I know these are very negative (some would even say abusive) thoughts, but when I am feeling low, they play in my head like a stuck record. By writing them out, I am hoping they will finally shut the hell up. Do any of these thoughts (or similar ones) ever haunt you?
I just want to take a moment today to say that I love and cherish those in the autistic and bipolar communities. I know I may be extremely biased, but I find other autistic and bipolar people to be some of the most honest, creative, caring, and talented people around. I don’t want to bash neurotypicals or everyday “ordinary” people, but I often find them boring compared to others who share my abnormal brain neurologically or chemically.
I feel like no one can truly understand me or the struggles I deal with on a daily basis unless they share some of those issues. I am grateful when those outside of my reality try to understand what I go through and have empathy for myself and others like me, but some things have to be experienced to be fully understood. Here’s a special THANK YOU to all of you who make me feel less alone in this alien world!
Today was a busy (but good) day! I had therapy this morning, which went well. I am a bit hypomanic, so I think I talked for the entire hour straight with my therapist not getting much room to say anything. We discussed my difficulty dealing with criticism (which I may do a separate post on later this week) and we also talked about my long list of things I would do if I weren’t so anxious and scared to try. It was a long list! Maybe I will share that sometime too if anyone is interested.
After therapy, my husband and I went to the local Sweet Corn Festival in Fairborn, Ohio. We shared a delicious funnel cake, then bought some homemade soap, a jar of a concoction called “Black Bear Jam” (made with blackberries, blueberries, and black raspberries), and a little bit of handmade maple candy.
Lastly, we went to do a little shopping and I found these awesome 35th Anniversary My Little Pony Windy and Skydancer toys for sale at Target:
They even came with 80’s style puffy stickers! I had been hoping they would re-release some unicorn and pegasus ponies, so that made my day!!!
Just like with my thoughts and feelings, my self image changes so wildly with my mood. A good example of this is my view of my looks and/or attractiveness. Most days I think I look average when I look in a mirror. I’m not delusional, thinking I am some kind of supermodel or show-stopping beauty, but I also don’t feel like I am a troll or a goblin.
Once in a while, when I am slightly or fully hypomanic, I look in the mirror and think I am beautiful. I will never be gorgeous in the artificial Hollywood kind of way, but when my mood is just right I can see a kind of classic or wholesome beauty in myself that I like.
But then there are days, like one I had recently, when I feel as if I am sitting in the rock bottom level of despair and gloom. On days like these, I may accidentally catch a glimpse of myself in a mirror (because I wouldn’t intentionally look), and upon viewing my reflection, I feel down to my very soul that I must be the ugliest thing in existence.
Bipolar and other mood disorders can skew our view of reality so much, sometimes I feel like I am living in different realities from day to day. Today isn’t too good, but it ain’t too bad either, so I guess average wins out again.
I recently sold this oil pastel drawing shown above, but I wanted to share it because it is one of my favorite pieces I have done recently. If you can’t tell, the image is of a person and a little dog walking through a rainbow world (which represent happiness and life), but ahead of them lies the darkness of depression and they either don’t see it coming, or are impelled to continue walking, perhaps against their own will.
As someone who struggles with bipolar type 2 and chronic severe depressive episodes, this is clearly a personal feeling conjured into a visual image. I thought I would share though, because I bet some of you can relate to it too.
Yesterday was a weird day. I started feeling hypomanic (probably because of my psychiatrist upping my antidepressant again). Even though I was already feeling restless and off, I decided to go ahead and go with my husband to our weekly meditation group. Turns out that wasn’t the best idea. Have you ever tried meditating or even just sitting still in the dark for 30 minutes while hypomanic? STRESSFUL.
I didn’t outwardly spaz out or draw attention to myself, but I sure felt like it. My head was buzzing with what felt like a million thoughts and feelings, and my body wanted to get up and run around the room. I wanted to scream, but of course I didn’t want to make a scene and freak everyone out, so I screamed on the inside. By the time it was over, I felt like a nervous wreck.
As we were leaving, I told my husband what was going on and how much I had struggled, but I’m pretty sure he didn’t really get it, because a few minutes later he sort of sent me over the edge a bit. We stopped at the Chick-fil-A drive-thru to get some ice cream, and I became pretty agitated because there were two lanes and the one we joined took FOREVER. People who joined the other line after we got there had gotten their food and driven off BEFORE we ever got to order! Normally this kind of thing wouldn’t bother me so much, but in the state of mind I was in, it was infuriating.
My husband tried to distract me and cheer me up by being playful and sort of tickling/poking me. Normally this would make me laugh, but with all my senses already on overdrive and feeling angry, I screamed at him to stop and smacked his hand away. It was a huge overreaction and I felt bad afterwards, but I simply couldn’t help it. The rest of the drive home I could tell he was not sure how to act and that made me feel even worse.
Today I’m feeling more normal again, but we’ll see how it goes once I take my medication…
I’ve been severely depressed for a week or two now and yesterday it kind of hit a boiling point. I decided to try to get out of the house and drive to a local park to do some journaling, but all that ended up doing was causing a breakdown. I cried on the drive over, I cried while at the park, I cried on the drive home, and when I got back home I collapsed into bed and sobbed for at least an hour straight. By the time it was over, my pillow was soaked clear through and I had a migraine coming on.
I did journal while I was at the park, but it sort of ended up turning into a mock suicide letter – I was that depressed. I didn’t have the intention to go through with any form of suicidal action, but I sure felt the desire to do so. I felt so low that I had almost convinced myself that even my husband would be better off without me and would probably be relieved to be rid of me. Depression is a masterful liar and can be very persuasive.
Today I’m not feeling a lot better. More numb than anything I suppose. My body feels extremely heavy, like I have put on several hundred pounds, although I know the real weight is internal, not external. I might try to force myself out of the house again, just to see if today might go better than yesterday, but right now, I can’t even drum up the energy to take a bath. The most depressing thing is that THIS is my life. THIS is what living with Bipolar type 2 is like. I’m stuck on a wheel that I can’t get off. I’m so sick of this cycle.