This week has been stressful. First off, I have a sick kitty that has recently cost us over $700 in vet bills (for severe diarrhea) and even after spending all that money and giving him antibiotics and treating him for parasites just in case, he isn’t any better. The clean up hasn’t been any fun at all either.
I’m not sure if he is not any better because something else is wrong with him or because we had a hell of a time getting him to eat the food with his medicine in it. I don’t know how much of the medicine he even got down. He has a follow up with the vet this Friday, so we’ll see what they say. Maybe they’ll give us another way to give him the meds or run more tests to see what is going on. Either way, more $.
I have also been struggling with exhaustion, full body achiness, and general malaise since our trip on my birthday near the end of October. My CFS/ME is flaring big time. Chronic fatigue syndrome sucks and the name is misleading, because it is so much more than fatigue. It is more like the worst flu that keeps on going and going and coming back again and again.
Wish I had better things to report, but that’s the truth, and I always try to be honest with you all.
Well, things are still a bit rough. My back is still not doing great although it has been a slight bit better. I have been able to cut back a little bit on the pain killers, which I am thankful for. I hate having to take opioids too often. Unfortunately, I did trip over my TENS unit cord and that didn’t do my back or my knees and legs a lot of good:
I was thankful the fall didn’t make my back way worse though as that easily could have happened.
Yesterday I even felt up to going down to a nearby thrift store and just walking around a little bit to see if I could loosen my back up any. I even found a new Eeyore to add to my collection while there (the pink and light blue one on the far right):
Well, my back is no better after 5 days, so I ended up visiting the ER last night. They gave me a steroid shot and 2 trigger point injections. It was the first time I’ve had trigger point injections and they hurt like hell! Luckily, the pain is brief, but I couldn’t help yelling out a bit in pain and squeezing my husband’s hand like a stress ball during the procedure.
Unfortunately, the shots didn’t seem to work. I’m not any better than I was before going to the ER. That makes me think that it is probably my spine causing the issue – either my degenerative disc disease or my bulging discs. At the ER doc’s suggestion, I also bought a TENS unit and have tried it out a couple times. I’m not sure it is helping either, but I figure at this point I’ll try anything.
I’m so very tired of this constant pain. This is enough to drive a person crazy.
Hey everyone! The upper GI endoscopy is officially done! Luckily, the anesthesia worked great and I didn’t feel a thing until afterwards. They were running behind schedule so I had to wait a while to get into the procedure room, but once I got in there, the rest was easy. I woke up with a bad case of the hiccups, but that didn’t last too long.
The doctor said that the results looked pretty good. She did fix some scar tissue in there (I’m assuming from the acid reflux) and took a biopsy (mostly to check for celiac). The worst after-effect has been that when I ate lunch it hurt quite a bit to swallow food. Drinking hasn’t been too bad though. I grabbed a smoothie and some fruit and veggie juice on the way home, so I’m set for the rest of the night, even if it is hard to eat solid food.
I want to thank all of you for your kind thoughts and prayers for this appointment. I tend to get super anxious about anything I haven’t been through before and hearing your encouraging words and personal stories helps. I’m planning to take the rest of the day easy and just relax or maybe nap.
First off, I wanted to share that I got another monetary donation to my blog! Thank you so much! It looks like the donation came from China, which is really cool, I didn’t even know I had regular readers in China!
Also, I finally got my SSDI payment for last month…and even more exciting, I got all my backpay!!! We plan to use the backpay to do some repairs around the house and on the car, replace some electronics and appliances that are breaking down, and hopefully build a porch onto our house! I love spending time outside, but being directly in the sun for very long makes me physically ill (vampire genes?), so having a porch with a roof will really help.
I also got a new phone with a much better camera, so I am hoping to be able to make more YouTube videos and maybe do some YouTube livestreaming. We’ll see though. I already have a lot on my plate, but I do have over 3,000 followers on YouTube and would like to communicate with them more. Here’s a cute pic from when I was playing around with the new phone last night:
My husband and I went to Loveland, Ohio today to see a real castle built by hand by one guy (allegedly by a French knight, but that turns out to be more legend it seems). Here are a few of my favorite photos from the tour. First, the castle itself:
Me, trying to look regal sitting in the throne chair, but instead doing a good giraffe impression:
Me in black and white, dancing on the top of the turret:
First off, I want to thank the person who made a supportive donation to my blog through Paypal today! I believe this is the second donation I’ve received that way and I really appreciate the support! If you are interested in ways to support me, please check out the Support My Blog page on this website.
Also, I got some good news today that I don’t have to do the second part of the MRI that went disastrously last week. That is such a relief. I was afraid if I did the rest of the MRI it would just trigger another migraine. The MRI results I did receive were pretty good, with no seeming worsening of my cervical issues! Thank goodness!
I did have to visit the GI doctor today and found out I need to have an endoscopy, which I am nervous about, but I realize it is important if they are to find out why I am having such horrible bouts of esophageal pain and difficulty swallowing. At least I will be sedated for the procedure and hopefully won’t feel or be aware of what they do. My appointment for that test isn’t until next month, so at least I get a little break from medical tests.
I finally passed the 1k mark for blog followers! Thank you so much to everyone who has supported my efforts and made my life more full and rich! You guys have no idea how much you help my mood and keep me going! If it weren’t for the encouragement I get for my poetry and art on here, I’m not sure I would create as much of it as I do.
The past few days have been rough. My back went out again, so my upper back and neck have been causing extreme pain again. I think the gluten free diet isn’t really helping much, as all the things I thought it was helping have suddenly flared up the last couple weeks. My GERD has been awful to the point I’ve had trouble swallowing again, the night sweats are back, and I seem to be having a widespread inflammation flare-up again.
I know I shouldn’t have put so much hope on the diet to solve all these issues, but I feel like I’m so desperate for something to make me better that I often put high expectations on each new treatment idea, hoping it will be “the one”. Of course, I probably need to accept that since I have Ehlers Danlos (a genetic connective tissue disorder), that nothing is probably going to be that cure-all I have been hoping to find.
How I wish that there was a cure to whatever is going on inside me. I often long for one of those scanners like they have on Star Trek that could easily pinpoint exactly what is going on and what the treatment should be without being invasive. I guess I was born too early for that. We might be headed that way technologically, but it is probably well off on the horizon.