Bronchitis (Again!) and Short Bits of Blackout Poetry

address-book-2246432_960_720

I’ve come down with another nasty case of bronchitis, so I’m taking it easy, hoping the antibiotics kick in soon, and putting together bits of loosely created blackout poetry (using some magazines and comics I’ve read lately). Here are a few of these creative little bits:

1)
Not a single one
became a hugely successful
project,
save the seals, coins,
and animal bones.

2)
The result
of a terrible illegality
controls
a large new stairway
down
to the mounds of holy dirt.

3)
To arms!
To the ramparts!
To let me nap in peace.

4)
The pin
is mightier
than the sword –
if gouged
into thine eye.

These bits of poetry are short, random, and sometimes a bit nonsensical, but I enjoy playing with language, and even the most ambiguous ones have a sort of language musicality to me.

Advertisements

Social Security Disability Rant

leo-350690_960_720

Ok, so I had another subject planned for today’s post, but I need to rant a bit, so I’ll save that topic for later. I hope you won’t mind listening to my frustration today.

So, I’m part of a group on Facebook for people with certain mental issues, and I have noticed many of the people in the group getting social security disability solely for those mental issues, which I happen to share. I am not upset that they got disability for their problems, but I can’t help but compare it to my own situation and feel angry at how I have been treated by the system.

I’ve been fighting for several years to try and get disability benefits, my worst conditions that affect my ability to work are: Bipolar Depression, Asperger’s, PTSD, social anxiety disorder, fibromyalgia, chronic fatigue syndrome, IBS, degenerative disc disease and bulging discs, chronic bronchitis/ear infections, and severe plantar fasciitis. ALL THAT and yet I am still fighting! It pisses me off because I know people who got it much quicker for SO MUCH LESS or just ONE of my conditions. And none of these conditions are light, even the last rejection letter from social security said the conditions are indeed severe…and yet I got turned down AGAIN? I have a plethora of medical evidence and have tried to follow medical advice to the letter. What more can I do???

I DO have an attorney (my 2nd actually), and I am now waiting for a court date, the 2nd time I will have to go to a hearing for this. The last judge I got had a record for barely approving anyone, which seems unfair in itself. How can it be a fair system when some judges approve a majority of people and other judges approve hardly anyone? Were it not for my husband, I would likely be homeless by now.

To make matters worse, one person in the Facebook group insinuated that plantar fasciitis and chronic ear infections/bronchitis aren’t severe enough to affect your ability to work long term. Well, I’ve had the plantar fasciitis for 15 YEARS. I’ve seen specialists, done meds, physical therapy, long-term steroid therapy, custom orthotics, cortisone shots, nothing helped. Doesn’t seem like it will magically get better at this point. It is so severe I have a noticeable limp and have almost passed out from the pain at times when I was forced to be on my feet for long periods of time.

As for the recurring infections, I’ve had chronic ear infections and bronchitis for many years, often getting up to six within a six month period. I’m now on my 3rd course of antibiotics this year (2018) for the chronic ear infections and bronchitis. Again, I’ve seen specialists, tried a host of medications and other treatments (both medical and alternative) and nothing has worked so far. The amount of antibiotics I have had to take has led to issues with antibiotics not working as well anymore, worsening IBS symptoms, and even episodes of MRSA, C Diff, and colitis which I had to be hospitalized for. These are not minor, fleeting problems.

To make matters worse, I have TRIED to work while fighting for disability. The last job I had (working only two days a week) I was let go from for missing work too much due to medical issues, most of which I was in the hospital or ER for, so they know I wasn’t just “faking”. I also tried being a greeter at Walmart, since it is about one of the only places that actually hires really disabled people and I couldn’t even do that due to my social anxiety, depression, and other health issues. I am not even fighting for welfare here, only the benefits I worked for over the years!

Bronchitis Art Therapy

The last few days have been rough, as I haven’t felt well due to the bronchitis and the side effects of the medicine I am taking for it. About the only thing I’ve been able to do is lay on the couch, watch tv, do sudoku puzzles, and create some ACEO marker drawings/paintings. So, I’m afraid there isn’t much exciting to talk about right now. However, I figured I would share a few more of the artworks I have done while feeling poorly:

DSC08423.jpg

DSC08424

DSC08425

As always, you can find my art for sale on my Ebay store!

Bronchitis Update

I wanted to give a quick update on my health situation since so many of you commented on yesterday’s post about coughing up blood. Thank you to all of you who sent your thoughts and prayers. I did end up going to Urgent Care, where they did a chest x-ray and came to the conclusion it was bronchitis. So I’m on antibiotics yet again (the third time in the last few months).

Coughing Up Blood

I’m a little freaked out today. I’ve had a chronic cough for years, which we have always contributed to sinusitis and my chronic sinus infections. But today for the first time, I actually coughed up blood. I’m not sure if I should go to Urgent Care or if it is really that big of a deal. I may have to contact my doctor to see what she thinks. My chest hurts too, which concerns me even a little bit more. So needless to say, I’m not up for writing a long post today.

How Accurate are Blood and Skin Allergy Tests?

needle-1291172_960_720.jpg

Well, I’ve officially started allergy shots. Not long ago they conducted a skin allergy test on me to see if that might be contributing to my chronic ear/sinus/respiratory infections. They had already once run an allergy blood test on me (which showed I was only allergic to dogs), but they said the skin allergy test was more accurate and wanted to see what it read. So, I took a week off from all allergy medicines (which was awful in itself in many ways…and who knew that going off Zyrtec could cause withdrawal symptoms???), and then went for the allergy test.

They ended up poking me almost 100 times, checking various strengths of 27 different common allergens. By the time the lady had gotten to the third round of testing (around the 60th shot), I was really struggling to make it through. Fibromyalgia makes your pain response to anything worse anyhow, and getting stuck that many times can begin to feel like some kind of medieval torture device. By the end, my arms looked like cheese graters, with rows of holes all over them.

I waited a few minutes for the nurse to tally the results and found out I was allergic to 22 of the 27 things they tested for, which means 3 vials worth of shots that I’ll have to take for the next 3-5 years. While the ENT doctor does not think this alone is at the root of my chronic infections, she definitely thinks it could help.

The thing that frustrates me greatly is that I was tested for all this stuff by blood test a few years ago and it only showed ONE allergy! How in the world could the blood test be that inaccurate that it didn’t show one other allergen, when I am allergic to at least 21 other common allergens to the point that I need long-term treatment? I know for a fact many of the things I tested greatly allergic to in the skin test WERE also things they tested for in the blood test. In fact, for the skin test, I tested LESS allergic to dogs than many of the other allergens that didn’t show up at all in the blood test! How could the first test have been so inaccurate, and do physicians know exactly how inaccurate the test can be? If so, it sure would have been nice if someone would have told me back then. Maybe it could have helped prevent a few years’ worth of pain and suffering!

I’m curious, has anyone else had both tests and had such widely varying results? If so, did anyone ever explain to you why? I would sure like to know for myself.