Tag: Chronic Fatigue Syndrome

  • Stressful Week – Sick Kitty & CFS Flare Up

    This week has been stressful. First off, I have a sick kitty that has recently cost us over $700 in vet bills (for severe diarrhea) and even after spending all that money and giving him antibiotics and treating him for parasites just in case, he isn’t any better. The clean up hasn’t been any fun […]

  • I Miss Having Kids Around

    Today my husband and I went to go see one of his students dance in a special recital: Seeing all the cute little kids dressed up in their costumes and dancing made me really miss having kids around. I used to be almost constantly surrounded by kids between foster parenting, volunteering with the kids at […]

  • EEG Update & Going Gluten-Free

    Had my EEG yesterday morning. It wasn’t too bad. The flashing strobe light part was almost kind of like what I imagine doing psychedelic drugs would be like – all the swirling lights and patterns…it was kind of crazy. I was supposed to nap for like 15 minutes or so, but just couldn’t fall asleep. […]

  • After the Battle is Over…

    I’m feeling a bit like this weird-looking guy I sketched the other day. Dazed, confused, and like I’ve been through the wringer. I am so very happy I won my SSDI case, but I’m almost a little in shock and kind of feeling like “what do I do now”? After fighting for something for so […]

  • I Won My SSDI Case!!!

    Here is what I wrote on my Facebook page today, I think it pretty much sums it all up: Six long years, and I finally won my SSDI case! Fully favorable! Feel like crying and screaming. Been sick and in pain so long, sometimes I wanted to give up hope and die, but glad I […]

  • Star Trek Exhibit Highlights at Indianapolis Children’s Museum

    Over the weekend my husband and I visited Indianapolis to see the Star Trek exhibit at the Indianapolis Children’s Museum. My husband was in heaven lol. I was there. I did find a few fun things to concentrate on though. I annoyed my husband by sitting in the captain’s chair like this: My personal favorite […]

  • Afraid of Living

    I am not afraid to die – but I am not yet unafraid of living. I’m not sure I have ever written truer words than the 3-line poem above. This little gem came to me while taking a bath last night, so I repeated it to myself like a mantra until I got out of […]

  • CFS/ME Flare Up and Park Outing

    It’s been a rough week physically. I had a CFS/ME flare-up, which feels a lot like mono if you’ve ever had that, or the worse flu you can imagine. During these flare-ups, I run a fever, my body aches horribly, I feel too exhausted to move, too exhausted to breathe, and if I sit up […]

  • Bad Flare Up After Car Broke Down

    Feeling like shit today. Woke up after sleeping 10-11 hours, ate breakfast, and then went to take a nap for another couple of hours. So, why am I so exhausted and feeling like I got run over by a steamroller? Well, yesterday my husband was driving home from work when a tire fell off his […]

  • Isolation and Loss from Chronic Illness

    I’ve been feeling rather sad and isolated the last few days. I think a lot of it comes from the stress of dealing with chronic illness and chronic pain. Anyone who has chronic illness is probably familiar with spoon theory, an illustrative way to describe why you have to choose carefully how to use your […]