Ok, so I fell off the blogging wagon for a little bit (much of that due to migraines and other chronic pain flareups), but the good news is I haven’t fallen off the “trying to be healthier” wagon. I’m still trying to exercise whenever possible (swimming or cycling on good days, doing some light aerobics or walking on so-so days, and taking bad flareup days off).
Lately I’ve gotten into doing at home aerobic dance videos by the Fitness Marshall, which I would highly recommend. He is hilarious and very encouraging to all kinds of people, not just fitness buffs. I love how he uses plus size demonstrators as well!
I am still trying out LDN (low dose naltrexone) for my chronic pain, migraines, and inflammation. It hasn’t been a magic bullet, but may be helping some. I’m on a very low dose (1.5mg). I’ve tried the 3mg and 4.5mg doses, but they actually seemed to make me feel worse. I’m looking for good OTC supplements or meds to use for my migraines, so if you know of any good ones, please share! I can’t take Excedrin or Tylenol Migraine most of the time because the caffeine seems to upset my stomach a lot.
Feeling a little discouraged today about the whole getting healthy thing. This always happens when I try to change my bad habits. At first I’m all gung ho, ready-to-change-the-world optimism, but normally after a little bit of time, the excitement starts to fade and then when the pain gets bad or chronic illness creeps up on me again, I start feeling like it is hopeless and that nothing I do does any good.
I AM NOT giving up, but just wanted to be honest about where I’m at right now. Yesterday was a bad IBS day, so I spent most of the day in bed and having to be super careful about what I eat. Today hasn’t been much better. Also, am dealing with low level migraine symptoms and still having significant pain in my injured hand. If it isn’t better by tomorrow, the doctor wants me to get more xrays, and at this point it is hard to believe it will be better by then.
Lastly, It is raining today, so most of my favorite exercise activities aren’t as attractive 😦
It’s the 4th of July, so did some celebrating, but kept it pretty chill and close to home. My husband and I cooked out (butter burgers, chips, and corn on the cob) and then followed that up with some ice cream (strawberry shortcake flavored).
I did get a little bit of exercise in by going swimming at our community pool. It was actually less crowded than I expected for the 4th of July. Guess many of our neighbors went out for the holiday rather than staying home.
Healthwise, my hand is still hurting, worried I may have to get that second set of xrays. Also, I am discontinuing the Emgality injections due to side effects and tomorrow will be a month from the last injection, so I am a bit worried about migraines attacking more when I don’t take the shot again. Not much I can do to change that, so hoping for the best but nervous.
Not a great day. Started antibiotics for an ear infection and it messed up my digestive system. Lots of cramps and bathroom breaks 😦 My bruised hand has also been really painful, even worse than yesterday. Wondering if swimming yesterday did irritate it after all, or if I accidentally hit it overnight while asleep or something. My primary care doctor wants me to get another set of xrays if the pain is still there in a few days. Apparently fractures can sometimes be missed on xrays right after an injury, or at least that is what she told me.
Due to the issues above, I didn’t do any type of real exercise for the first time since starting this journey. Honestly, I spent much of the day in bed watching movies and kind of feeling sorry for myself. That’s ok though, we all need wallow days once in a while, right? At least my diet was still pretty good, mostly healthy with a few cookies thrown in.
Feeling like shit today. Woke up after sleeping 10-11 hours, ate breakfast, and then went to take a nap for another couple of hours. So, why am I so exhausted and feeling like I got run over by a steamroller?
Well, yesterday my husband was driving home from work when a tire fell off his car. I had to go pick him up and once I got there, we had to wait for the tow truck to come get the broken down car. It was supposed to be about an hour before the tow truck arrived, instead it was almost three hours. Three hours of sitting in the cold (we did turn on the heat in my car occasionally, but didn’t want to run it the entire time we were waiting). Three hours of sitting in a position that is not good for my back, neck, and joints. Three hours of my joints stiffening due to the cold and being cramped in the car.
I knew today I would feel rough after all that and expected my CFS/ME and Ehlers Danlos to flare up. As usual, I was correct, but I wish I wasn’t. Those who don’t have chronic illness and chronic pain have no idea how easy it is for normal, annoying life events to set us back for days. I think it is something you have to experience to truly understand.