Well, my back is no better after 5 days, so I ended up visiting the ER last night. They gave me a steroid shot and 2 trigger point injections. It was the first time I’ve had trigger point injections and they hurt like hell! Luckily, the pain is brief, but I couldn’t help yelling out a bit in pain and squeezing my husband’s hand like a stress ball during the procedure.
Unfortunately, the shots didn’t seem to work. I’m not any better than I was before going to the ER. That makes me think that it is probably my spine causing the issue – either my degenerative disc disease or my bulging discs. At the ER doc’s suggestion, I also bought a TENS unit and have tried it out a couple times. I’m not sure it is helping either, but I figure at this point I’ll try anything.
I’m so very tired of this constant pain. This is enough to drive a person crazy.
Sorry I haven’t written in a few days. I threw my back/neck out again and it has been bad. Probably the worst it has ever been. I have been constantly downing pain killers and muscle relaxers and still no change. Usually the worst only lasts a day or two during these flareups, but now I’m on day 3 and it still hurts to move in any direction.
Naturally, this has me rather depressed too. I had appointments and fun plans this weekend that I had to cancel due to the pain. I feel like it doesn’t matter how hard I try to be social or how much I try to take good care of myself, my efforts always end up jinxed.
This is why I normally end up isolating myself, because I feel like all my health issues make me unreliable. It feels like no matter how understanding other people are, when I have to call off at the last minute several times, they start to get frustrated (and understandably so).
I just wish this horrible pain would pass.
not sure where to go
so many roads
pick foot up
put back down
Am I moving forward
or standing still?
The shadows move
but my footprints
stay right here.
Man, I’m pretty bummed today. I was supposed to go ghost hunting at a local cemetery with a paranormal investigation group, but yesterday my earache turned into a raging ear infection and between the ear pain and the nausea from the antibiotics, I had to choose to stay home and rest. I guess there will likely be other opportunities, but still wish I could have gone.
Among other news, my first SSDI payment got messed up and didn’t come. Took me two days and multiple phone calls to multiple agencies to get it solved and will hopefully get my payment within the next couple weeks. I had a huge meltdown over the whole situation Thursday, which probably didn’t help my immune system and may have contributed to my current infection. I can’t help but notice that my already weak immune system takes a nosedive when I’m stressed or upset.
Even thinking about it now makes me mad lol. The worst part was that the automated phone answering systems would NOT let me talk to a live person for the longest time! Ugh. It was like a labyrinth to find my way through to talk to a living, breathing human. I realize this post is pretty negative and maybe a bit whiny lol, but that’s where I’m at today. Hope you are all feeling better than I am at the moment!
First off, I want to thank the person who made a supportive donation to my blog through Paypal today! I believe this is the second donation I’ve received that way and I really appreciate the support! If you are interested in ways to support me, please check out the Support My Blog page on this website.
Also, I got some good news today that I don’t have to do the second part of the MRI that went disastrously last week. That is such a relief. I was afraid if I did the rest of the MRI it would just trigger another migraine. The MRI results I did receive were pretty good, with no seeming worsening of my cervical issues! Thank goodness!
I did have to visit the GI doctor today and found out I need to have an endoscopy, which I am nervous about, but I realize it is important if they are to find out why I am having such horrible bouts of esophageal pain and difficulty swallowing. At least I will be sedated for the procedure and hopefully won’t feel or be aware of what they do. My appointment for that test isn’t until next month, so at least I get a little break from medical tests.
That headline is not an exaggeration. First off, my MRIs went bad. I had MRIs for my brain and neck scheduled last night, both with and without contrast. I didn’t even get to the contrast part because the first part gave me a migraine, triggered severe neck pain, and gave me a major panic attack. I was almost sobbing by the time they got ready to give me the contrast, so they sent me home.
I left feeling embarrassed for not being able to keep myself from crying in public yet again. I also felt feelings of failure as I couldn’t do something as simple as completing two MRIs. Now I have to contact the neurologist that ordered the tests and tell him I wasn’t able to make it through and see if he wants to make separate orders for the contrast part. So, I might have to go through it again soon.
Also, we ate at a local restaurant yesterday that served me some bloody chicken. I didn’t notice right away because the blood pooled beneath the chicken breast. Anyhow, last night I got really sick and had to sleep with a trashcan beside me. I took both Mylanta and Zofran and nothing helped the nausea. I suspect I might have gotten a little bit of food poisoning from the underdone chicken.
At least I’m not fighting down vomit anymore, but still feeling nauseated and sick. Understandably, all this has made my mood rather blah too. I just want to huddle under the covers and hide from reality right now.
The past few days have been rough. My back went out again, so my upper back and neck have been causing extreme pain again. I think the gluten free diet isn’t really helping much, as all the things I thought it was helping have suddenly flared up the last couple weeks. My GERD has been awful to the point I’ve had trouble swallowing again, the night sweats are back, and I seem to be having a widespread inflammation flare-up again.
I know I shouldn’t have put so much hope on the diet to solve all these issues, but I feel like I’m so desperate for something to make me better that I often put high expectations on each new treatment idea, hoping it will be “the one”. Of course, I probably need to accept that since I have Ehlers Danlos (a genetic connective tissue disorder), that nothing is probably going to be that cure-all I have been hoping to find.
How I wish that there was a cure to whatever is going on inside me. I often long for one of those scanners like they have on Star Trek that could easily pinpoint exactly what is going on and what the treatment should be without being invasive. I guess I was born too early for that. We might be headed that way technologically, but it is probably well off on the horizon.
Hello there! For a while I have been wanting to feature artwork by other artists, especially other outsider artists, here on my blog. First choice of artists would go to those who have autism, other disabilities (physical or mental), or are self-taught. I want to let the art speak for itself, as I normally do for my own art, so here is what I would need if you want to be featured and how to submit it:
- Up to 3 photos of your favorite or recent artworks you have created (good quality, high resolution photos preferred). Please include the name of each artwork, what medium was used to create it, and size if applicable.
- I don’t necessarily want to do whole interviews, as I want the art to be center stage, but if you wish to share if you are neurodivergent, self-taught, or suffer from one or more disabilities, feel free to notify me of that. You can also share a couple links where people can follow you or find more of your art.
- Email all this to Shojobeatgirl@live.com, with subject headline: Blog Art Feature.
I’m not sure how much response I will get to this offer, so it may take a while to be featured if I get a lot of entries. I hope to share a new artist every week or so.
Feel free to ask if you have any questions.
This hasn’t been a great week for me. I’ve been struggling with headaches, earaches, fatigue, and stomach issues physically, and then on top of that I’ve been rather depressed and lethargic. Last weekend we were supposed to go to a baby animals festival I always love, but I didn’t feel up to it either day. Tomorrow is my 16th wedding anniversary, but I don’t feel much like celebrating, even though I am very thankful for my wonderful husband.
We also found out that my husband’s health insurance through his work is going up $100 a month and that I might actually be dropped from the plan now that I have SSDI and can get Medicare. I’m not sure how that might affect my current healthcare and doctors. I really hate our healthcare system here in America.
I guess a couple of good things I can concentrate on are that I just hit over 2,000 Instagram followers, and am only 5 subscribers away from 1,000 followers here on WordPress! If you don’t follow me already, please help me reach that goal!!! I would be most grateful and it would make me smile.