My Story in 59 Words

Art By Maranda Russell

My Story in 59 Words
Written By: Maranda Russell

I am a product of the heartland,
and many years of dedication.

I am a survivor of abuse,
and the proud parent of creation.

I am separate from my family,
but still trust their education.

I hear earth’s voices unite in song,
and join their recitation.

No doubt my life will face its trials,
yet I strive for graduation.

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Could Chronic Fatigue Syndrome Be Caused by Toxic Mold?

Hello everyone! So today I’m sharing a book review vlog video I made yesterday. For anyone who has Chronic Fatigue Syndrome, Fibromyalgia, or similar chronic illness, or who has a special interest in those subjects, this book might be something you would want to check out! If you have already read the book, let me know your thoughts!

Bad Night

Tonight was a bad night. The pain, isolation, and despair came crashing down so hard and fast that I crawled off the couch and collapsed onto the carpet, on my side, in a loose fetal position and just wept. I gripped the beige carpet fibers in my fingers and pulled as the tears pooled below my cheek. I pinched myself. I aimlessly pummeled the floor. The anger exploded in that way it always does, boomeranging right back into myself. I considered my options. All the ways it could end. The option of reaching out for help. The feeling that grasping for that help would only inconvenience others. After all, my husband has to work tomorrow, he needs his sleep. I can’t take the car, who would bring it back to him?

Eventually, I made my way outside. Hoping the cold would numb it all. I walked on the icy, wet grass and then took a seat on the deck stairs. Soon my feet were frozen numb, and my body curled inward, instinctively seeking to conserve its heat, even as I wished that I could bear it long enough to freeze. Dark thoughts of black toes breaking off soon made hypothermia a less attractive ending. If only it were like a Jack London novel, a slow nodding off into warm, cozy whiteness.

Eventually, I found myself back where I started, on the couch, hoping to find comfort on electronic waves, here in the place where lost things seem to gather in today’s society. I soon stumbled across someone else crying and hugging a giant stuffed giraffe and it soothed the edges just a little. Now, I can only hope tomorrow is brighter.

A Few Words About Applying for Government Disability Benefits

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(The below was written out of simple outrage from what I have seen happen to fellow human beings who are genuinely too sick and weak to work, but are expected to wait years for any help from the government programs they have paid into all their lives. I am fortunate to have other resources to survive on while unable to work, but not everyone is so lucky. Many homeless you see on the streets are actually disabled veterans and citizens who deserve so much better…)

Applying for government benefits, even those you have worked for and earned yourself, can be a ridiculously long, complicated, and humiliating process BECAUSE they design it to be so. They want to break you down, make you give up, make you give in. They expect the sickest and weakest among us to jump through hurdles on command, knowing it is almost an impossibility unless there are others propping us up.

Honestly, I think they hope that you will die on your own before they have to do a damn thing. I can picture Uncle Sam with fingers crossed, hoping you buckle under the stress and poverty, or even end up taking your own life from the hopelessness and despair of feeling useless, discounted, and vilified by a media that touts how “easy” it is to fool the system and labels those who are disabled as leeches or lazy.

Apparently discrimination laws don’t apply to the government either, since they clearly indulge in age discrimination, something every lawyer will blatantly tell you up front. Even publicly, you can find legal representatives in the field explaining why you are simply fucked if you dare get too sick before age 35, 40, or even 50. So if you are a young adult or middle aged person struggling with a chronic illness or severe pain condition, you had better tell it to get lost and come back in 10 or 20 years. Yeah, that works. After all, young people aren’t allowed to be sick or disabled.

You know, it is really funny, that many of the same people who are so public about being pro-life are also always trying to cut social safety net programs like disability or make them harder to access. If they could, I think sometimes that the government would perform adult abortions on those too weak or sick to continue to prop up their sick, twisted system. Getting rid of us all would be so much easier, wouldn’t it?

Moving Sale! Selling a House is a Pain in the…

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So…my husband and I are in the process of selling our home and looking for a smaller, less expensive place. We simply don’t need a big house with three bedrooms, two bathrooms, a full basement, and lots of other room just for the two of us. I have quickly learned that getting a house ready to sell is a nightmare in some ways though! Here are a few things we are dealing with:

*This past weekend we had a moving sale. Man, that was rough! Getting stuff ready for the sale, dealing with all the people the day of the sale (two of which got in a heated exchange over a tea cart they both wanted), having people trying to wander off and take stuff from parts of the house that were NOT for sale (one even took a couple pictures off the wall), having to get the leftovers ready for charity to pick up, and throwing out my back so that now, two days later, I can barely do anything.

*My idea of clean is obviously not a realtors idea of clean. I am not an extremely dirty person, in fact, I’m normally quite organized, but I am kind of bad about dusting, washing windows, and other stuff like that I simply don’t think of much. I also tend to have to pick what tasks are most important due to my health problems, so when I do clean, obvious messes, stains and frequently used areas get first priority.

*Having four cats makes it really rough to get a house in showing shape. They constantly make messes, and get cat hair in every square inch of the house.

*Apparently, when showing a house you have to “stage” everything. I’m supposed to take a normal, lived-in home and make it look like the showcase floor of a furniture store or something. Not enough furniture = bad. Too much furniture = bad.

*I never realized there were so many things wrong with our home until seen through the eyes of a realtor! Other people often comment that our house is really nice, but after listening to the realtor, I felt a little bit like I was living in a shanty or something.

*Trying to fix the timing so that we will have a new home to move into at the same time we find a buyer for our current home is stressful. Really hoping we don’t end up having to live in a motel or something in between!

New YouTube Video – “Plantar Fasciitis Sucks! My Experiences with Foot Pain”

Since I have openly talked about some of my health problems and how they affect my life, I have had a few people ask me how I developed the foot condition plantar fasciitis and why it limits the kind of jobs I can do. So, I decided to make a vlog video about the pain and problems related to plantar fasciitis and why the condition has greatly affected my personal and professional life. I didn’t make this video to whine or try to get sympathy, I just wanted to share my story in hopes that I can educate people about the condition and let anyone else going through similar problems know that they are not alone.

Video diary/blog (video 4) depression, chronic illness & chronic pain

I have been wanting to talk about the connection between dealing with chronic pain/illness and dealing with depression. I figured making a video diary about the subject would be a good way to approach the subject. Just please keep in mind that my advice for dealing with this issue is not a substitute for medical care. If you are experiencing severe depression, please see a healthcare professional. If you like the video or have something to say about this subject, please feel free to comment or like the post either here or on YouTube 🙂