Bad Flare Up After Car Broke Down

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Feeling like shit today. Woke up after sleeping 10-11 hours, ate breakfast, and then went to take a nap for another couple of hours. So, why am I so exhausted and feeling like I got run over by a steamroller?

Well, yesterday my husband was driving home from work when a tire fell off his car. I had to go pick him up and once I got there, we had to wait for the tow truck to come get the broken down car. It was supposed to be about an hour before the tow truck arrived, instead it was almost three hours. Three hours of sitting in the cold (we did turn on the heat in my car occasionally, but didn’t want to run it the entire time we were waiting). Three hours of sitting in a position that is not good for my back, neck, and joints. Three hours of my joints stiffening due to the cold and being cramped in the car.

I knew today I would feel rough after all that and expected my CFS/ME and Ehlers Danlos to flare up. As usual, I was correct, but I wish I wasn’t. Those who don’t have chronic illness and chronic pain have no idea how easy it is for normal, annoying life events to set us back for days. I think it is something you have to experience to truly understand.

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Rough Week, But Some Good News

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This has undoubtedly been a rough week for me so far, but some good things have happened too. Here is a short run-down of the last few days:

Sunday and Monday, one of our pipes froze because of the freakishly cold weather so we had no water until that section thawed out. Luckily, it didn’t cause the pipes to burst or anything like that. My husband thinks he solved the issue by replacing the insulation around the pipe, but I guess we’ll find out the next time we all freeze.

Yesterday I had my appointment with the rheumatologist to get my Ehlers Danlos testing done. I’m officially a zebra! Right now my diagnosis is Hypermobile Ehlers Danlos, although I do plan to try to pursue genetic testing to make sure none of the other EDS genes are playing a part. The doctor also highly suspected I have POTS (postural orthostatic tachycardia syndrome), which would help explain my dizzy spells, vertigo, feeling faint, and maybe even a few episodes of passing out when I was younger. It sucks that there is no cure or really even further treatment other than what I’m already doing, but it is wonderful to have some answers that finally make sense!

Tuesday I made the mistake of posting in a Facebook chronic illness group about my surprise that a zoo we want to visit charges $25 for the use of a wheelchair for a couple hours. Soon I was accused of being entitled, expecting everyone else to pay for my disability, and even being too poor to go to the zoo if I couldn’t afford the extra charge. The attacks got to the point that it actually made me cry because it hurt my feelings so much. I wasn’t even saying that the zoo had no right to charge for use of their equipment, I was just questioning whether the price was a bit high for the time it would be used. Of course, then I heard that some zoos and theme parks charge way more, some even over $100 a day! I can’t help but feel personally that is taking advantage of the disabled. Maybe I’m wrong, but I still feel that way.

Last night all this stress took its toll on me. I had the worse migraine I have had in years. Luckily, I still had some migraine pills from the last time I filled the prescription which was several years ago. They were technically expired, but still did their job. Today I have that slight headachy, hung over feeling I always get after a severe migraine.

 

I Froze My Butt Off at a Christmas Theme Park!

I’m feeling rough tonight, maybe because last night I went to a little Christmas-themed park and got really cold, which often tends to aggravate my CFS, Fibromyalgia, and Ehlers Danlos joint issues. I had a great time though and wanted to share a few fun pics of the night.

Here is me getting cozy with the Gingerbread Man:

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Who doesn’t love a big fire pit when it’s cold out?

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Here is some crazy guy climbing the giant Christmas tree (I’m guessing he wasn’t supposed to be doing that):

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Is it just me, or are these trees a bit spooky?

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Pretty lights on the water:

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Thanksgiving Mini Vacation

I hope you all had a lovely Thanksgiving if you happen to celebrate it. I had a really good day. My husband and I went over to Indiana to have dinner with my mom and her husband. We decided to go over there a day early to break up the drive, and to go to Marion, Indiana to see their holiday Walkway of Lights. It was cold, but we still got out and walked around the park a little bit to enjoy the lights and gardens:

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I threw in a penny and made a wish on the fountain pictured above. I certainly hope it comes true!

I had a lot of fun and am glad I went, but now I am EXHAUSTED.

It Got Freaking Cold Overnight!

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I woke up this afternoon (I am a late sleeper lol), and as soon as I put my feet on the floor I noticed it was freezing! Fall hit overnight it seems! Or maybe even winter! So, I had to break out my Garfield fleece pajama bottoms, my thick black cat slipper socks, and my plush hot pink robe. Now I am super comfy, but still a little cold! Even as I type this, my numb fingers feel like ice.

I don’t know if it is the cold, or the fact that I am all snuggled up on the recliner, but now I feel incredibly lazy. So, I think today I’m just gonna sit here with my Halloween blanket, watch some Dr. Phil, maybe drink some hot tea, and probably eat some chocolate. Love you guys! Stay warm!