Anger, Mania, and Standing Up for Myself

chains-433541_960_720

Last night I had a definite episode of mania. Wanting to stay up all night again, feeling like doing a million things at once, wanting to jump out of my skin, tempted to spend way more money than I should, barely able to sleep. If you read my rant yesterday, then you know that I was already dealing with a lot of anger, so I can’t help but wonder if anger can bring on a manic episode? I honestly don’t know whether that is possible or not, I should probably ask my psychiatrist, but it does seem interesting that after being upset and angry I became so manic.

Something else happened last night that made me even angrier than I had been when I wrote the rant post yesterday. Someone else in that Facebook group commented on the post I had written that only 1 or 2 of my mental or physical conditions could be disabling. They said that the Asperger’s and Bipolar might be disabling, but the PTSD, Social Anxiety Disorder, Fibromyalgia, CFS, Plantar Fasciitis, IBS, chronic infections, Degenerative Disc Disease, and bulging discs are NOT disabling. That really set me off.

At first I just told the girl that she should research the conditions and learn more about them if she thought that. However, she went on to say that I was the one who was ignorant and that I would probably “argue with a brick wall”. That really made me mad. I even asked her why she was being such a bitch because I hadn’t done anything to her. For me, saying something like that is EXTREMELY CONFRONTATIVE, but I also felt so proud of myself for standing up for myself for once in my life. Standing up for myself has always been a real challenge for me, so much so, that many people have told me over the course of my life that I needed to stop being a doormat and quit letting people walk all over me.

In person, I would still likely have a really hard time standing up for myself, mostly because when things become confrontative or stressful, I tend to struggle with selective mutism, which is a common thing for people with autism to deal with. Throughout my life, whenever I was bullied or abused, I almost always found myself temporarily struck dumb, unable to formulate a response or rebuttal. It generally only happens when I feel threatened in some way, but it is very frustrating. I figure standing up for myself online is at least a start though!

Advertisements

Social Security Disability Rant

leo-350690_960_720

Ok, so I had another subject planned for today’s post, but I need to rant a bit, so I’ll save that topic for later. I hope you won’t mind listening to my frustration today.

So, I’m part of a group on Facebook for people with certain mental issues, and I have noticed many of the people in the group getting social security disability solely for those mental issues, which I happen to share. I am not upset that they got disability for their problems, but I can’t help but compare it to my own situation and feel angry at how I have been treated by the system.

I’ve been fighting for several years to try and get disability benefits, my worst conditions that affect my ability to work are: Bipolar Depression, Asperger’s, PTSD, social anxiety disorder, fibromyalgia, chronic fatigue syndrome, IBS, degenerative disc disease and bulging discs, chronic bronchitis/ear infections, and severe plantar fasciitis. ALL THAT and yet I am still fighting! It pisses me off because I know people who got it much quicker for SO MUCH LESS or just ONE of my conditions. And none of these conditions are light, even the last rejection letter from social security said the conditions are indeed severe…and yet I got turned down AGAIN? I have a plethora of medical evidence and have tried to follow medical advice to the letter. What more can I do???

I DO have an attorney (my 2nd actually), and I am now waiting for a court date, the 2nd time I will have to go to a hearing for this. The last judge I got had a record for barely approving anyone, which seems unfair in itself. How can it be a fair system when some judges approve a majority of people and other judges approve hardly anyone? Were it not for my husband, I would likely be homeless by now.

To make matters worse, one person in the Facebook group insinuated that plantar fasciitis and chronic ear infections/bronchitis aren’t severe enough to affect your ability to work long term. Well, I’ve had the plantar fasciitis for 15 YEARS. I’ve seen specialists, done meds, physical therapy, long-term steroid therapy, custom orthotics, cortisone shots, nothing helped. Doesn’t seem like it will magically get better at this point. It is so severe I have a noticeable limp and have almost passed out from the pain at times when I was forced to be on my feet for long periods of time.

As for the recurring infections, I’ve had chronic ear infections and bronchitis for many years, often getting up to six within a six month period. I’m now on my 3rd course of antibiotics this year (2018) for the chronic ear infections and bronchitis. Again, I’ve seen specialists, tried a host of medications and other treatments (both medical and alternative) and nothing has worked so far. The amount of antibiotics I have had to take has led to issues with antibiotics not working as well anymore, worsening IBS symptoms, and even episodes of MRSA, C Diff, and colitis which I had to be hospitalized for. These are not minor, fleeting problems.

To make matters worse, I have TRIED to work while fighting for disability. The last job I had (working only two days a week) I was let go from for missing work too much due to medical issues, most of which I was in the hospital or ER for, so they know I wasn’t just “faking”. I also tried being a greeter at Walmart, since it is about one of the only places that actually hires really disabled people and I couldn’t even do that due to my social anxiety, depression, and other health issues. I am not even fighting for welfare here, only the benefits I worked for over the years!

Psychiatrist Visit Anxiety

Today I see my psychiatrist again. These appointments make me nervous because there is always worry that my meds might get changed and I might have a bad reaction to another one, like I did the Cymbalta. I also often wonder what to share with him. I want to be as honest and open as possible, so I get the best treatment, but I also sometimes have a tendency to overshare or over-explain things that might not be pertinent.

I figure the things that I should share with him most this visit are my “episodes” of rage and paranoia the past couple months, even though they only lasted a few days to a week each. I have actually had a couple “episodes” of feeling almost hopeful and optimistic recently, so that is good I think. It was really odd that during one of these times of having at least a few days in a row of feeling pretty good, I had one of the worst days I have had in a while, where I was so horribly depressed and so full of despair that I sat on the couch holding a bottle of pills and wishing I could take them all and maybe not have to wake up again, but of course, I know that wouldn’t be the right thing to do. Especially to my husband. Oddly enough, the very next day I was back to feeling fairly decent overall.

I also always wonder how much to address my physical problems with the psychiatrist. After all, he isn’t a doctor who treats those conditions, but those conditions greatly affect my depression and anxiety levels. When the physical pain is extremely bad for a few days in a row, that tends to bring on a kind of despair that is hard to cope with. It blackens my view of my entire future and makes me honestly feel sometimes that life isn’t worth living if you have to be in this kind of pain. I probably should take my Tramadol (opioid pain killers) more during those times, but I am afraid of becoming dependent on it if I take it too often.

Well, thank you for listening to me overthink things as I always do lol.

Back Pain Troubles

Not feeling very good today. A lot of it has to do with physical stuff. My back has been really messed up for a few days now. I’m not sure if it is the degenerative disc disease or the slipped disc causing the awful pain in my neck and back, but it is starting to take a toll on my mental health too. I find that even when you are doing fairly well mentally, that if you are in chronic pain, it is almost impossible to keep your mood high.

I did hear back from our health insurance that they approved my epidural shots for my slipped disc, but I have to pay hundreds up front for the deductible, so I’m not sure when I’ll be able to afford that. I’m also quite nervous about getting the shots anyhow. Having a needle stuck into my spine is scary.

Bulging Discs, Traction, and Pain Management

dsc04297

Well, I found out yesterday that as well as having degenerative disc disease throughout my cervical and thoracic spine, I also have a bulging disc that is pressing on the nerves surrounding it and likely causing most of the excruciating upper back pain I have been experiencing for several years now. The doctor wants me to do traction therapy and then see pain management for injections and other pain modalities that might help. I’m pretty bummed about it.

On one hand, I am thankful they aren’t pushing for surgery yet, but on the other hand I know the doctor isn’t ruling it out and that kind of scares me. I know for some people traction works wonders, but for others it doesn’t. I hope it helps me. Anything that keeps me from having to be eventually sliced open is a good thing in my opinion. I figured I would share this information with an old drawing I did years ago entitled “Crick in the Neck” (pictured above). I figured it fit the subject matter well, and it was always one of my favorite drawings I’ve done. If the treatments do help the pain, it would be really good for my art and my writing, as both are hard to do when my back is acting up (since the pain shoots down into my arms as well).