Plantar Fasciitis Flare Up

048591d3edf3e1abac1f838cd899bd8f--plantar-fasciitis-exercises-plantar-fasciitis-treatment.jpg

The last few days I have had a bad plantar fasciitis flare up, the worst in quite a while. I have dealt with this awful condition since I was 19 years old, so for 16 years I have dealt with chronic foot pain. I wanted to take a moment today to explain what it is really like to live with this condition, especially on bad days. Here are a few descriptions of what I go through:

  • During a flare up, it feels like every step I take, I am walking with a huge, jagged stone piercing my arch, near the heel. After a few steps like that, it starts to feel horribly bruised and I start limping badly. Sometimes it feels almost like something in the arch of my foot “drops” and the pain starts then. It is a seriously weird feeling.
  • During flare ups, I find it hard to stand long enough to do even the simplest tasks. I have to sit on the kitchen counter while waiting for my pop-tart to toast. I have to sit on the floor or my bed while brushing and flossing my teeth. Showers are out, baths are in. Massages can help sometimes, but other times even that is agonizing.
  • When the flare up is really bad, even staying off my feet doesn’t help. The burning, aching, throbbing pain is constant. I do ice it and that helps a bit to numb it, but nothing else does a thing. Often I wind up in tears because the pain is simply unbearable. I hate to have to turn to narcotic pain relievers, but sometimes do. When the pain is constant and unyielding, I find myself fighting thoughts of suicide just to make it end.
  • Unfortunately, nothing really helps but staying off my feet and giving it time. I do take NSAIDS and muscle relaxers, but they take a few days to work (if they even do work). I’ve tried cortisone shots, but they didn’t help at all. I’m not willing to chance the risky surgery that can leave you crippled for life, especially when nothing else modern medicine has had to offer has helped.
  • Even when I’m NOT having a flare up, I have to be careful, because being on my feet more than a half an hour to an hour at a time can cause a flare up to occur. Even a day of regular grocery shopping can cause a flare up because of being on my feet too much. It truly is an intensely disabling condition for some people like me.
Advertisements

Bipolar and Medicine Problems

medical-pills

It seems that there is this stereotype about Bipolar patients not wanting to take their medicine or stopping medicine without consulting a doctor. However, like most stereotypes, perhaps there is some truth to it. I personally have Bipolar type 2 and often find myself wondering, “Do I really need these medications?” or “Are these medications actually helping or hurting me?”. Why do I wonder this? Mostly due to negative side effects. I can’t help but wonder sometimes if the cure isn’t worse than the disease at times. Weight gain, acne, digestive problems, being pushed further into depression or hypomania, anxiety, jitters, uncontrollable muscle spasms, irritability, crying spells, etc. Sometimes I really do wonder if I wasn’t better off before.

And about consulting a doctor before stopping meds, in my case at least, my psychiatrist is only able to see patients once every few months due to the shortage of psychiatrists in the area. He is EXTREMELY busy. It is unlikely I will hear from him in the interim, even if I have a question. Of course I can speak to his office staff, but that isn’t the same as actually speaking to a doctor. And even if I were to call and tell the office staff I wanted to stop taking the medicine, likely they would just request I wait until my next appointment, which may be months away. If the medicine is truly causing side effects I can’t stand or making me feel worse, why would I want to endure that for months before making a change?

I am not writing this post to encourage anyone to go off their meds or anything like that. I believe strongly in listening to medical advice, but I wanted to explain to those who are outside of the Bipolar loop why this can often become a legitimate issue. And no, right now I am not stopping my own meds, but I have been tempted many times, which makes me sympathetic to those who have.

About People Who Self-Diagnose as Autistic

2732-autism-4.jpg

Hello everyone! So today I’m going to talk about a subject that might tick off some people, especially those who tend to hang out on Tumblr a lot. I’ve noticed that it has almost become fashionable or a cause for pride for people to research mental health or psychological conditions (or in this case a neurological condition) and then decide for themselves that they suffer from said condition. This worries me for several reasons which I will discuss here.

#1 – What if you are wrong? Put simply, many psychological conditions share almost the exact same symptoms. Even among professionals, misdiagnosis is an enormous problem in many people getting the help they need. I have no issue with people saying that they suspect that they may have autism. I just wish people wouldn’t say they have it for sure unless they have been adequately evaluated and diagnosed. I do understand that in the US at least, it can be an issue getting diagnosed because health insurance is a crap-shoot, and many people don’t even have access to regular health care, let alone psychological healthcare, but if you don’t know for sure whether you have autism, bipolar, another mood disorder, borderline, sensory integration disorder, or one of the other many conditions often misdiagnosed as autism, please don’t make definite claims.

#2 – You can actually do damage to the Aspergers or autism community. You may not think of it that way, but if you DO NOT actually have autism and yet go around claiming you do, you are likely feeding into certain stereotypes about autism that are already a problem or you are inaccurately portraying what it is like to be autistic in this world. Some of us who live with autism every single day can tend to get a little annoyed about that. Although some in the community have no issue with self-diagnosis, we are ALL different and some of us don’t like the whole self-diagnosis phenomena.

#3 – People who self-diagnose sort of have a reputation for being attention seekers. I do not think this is the case all the time, like I said, I think some of it has to do with lack of adequate healthcare, but I do believe there are a few at least that are doing it for the attention and that is really irritating.

#4 – Unfortunately, some people already see high functioning autism as a BS diagnosis, and when they see people just randomly deciding they have it without any kind of actual medical oversight, it tends to feed that destructive belief. Yes, they are the assholes to feel that way in the first place, but we don’t want to feed the assholes any more than we want to feed the trolls.

As a final note, I want to reiterate that I do not condemn people thinking or suspecting they have autism, just claiming an actual diagnosis without one. If you do suspect you may be autistic, doctors that diagnose adults can be hard to find, but they CAN be found, so don’t give up. It took me quite a while to find one who would test adults, and I only found him by contacting a professor at a local college who specializes in autism research and asking him if he knew any doctors who diagnose adults, so that might be a way for you to seek out a diagnosis as well.

Also, there are self-assessments made by professionals that can be useful in deciding if you might have autism, but they are NOT meant to be diagnostic material in themselves. However, they can help a great deal in figuring out if you might be autistic and are often used by professional doctors to assist in diagnostic criteria, so using them can be helpful in narrowing down whether you display autistic symptoms or not.

So…6 Days in the Hospital: What I Learned

Hospital-Corridor-Public-Domain.jpg

Hello everyone! Well, yesterday I finally got to go home after spending 6 days in the hospital. Spending any time in the hospital isn’t the most pleasant way to spend time, so 6 days there certainly isn’t a party. However, some good did come out of the experience. For one thing, the original problem (horrible side affects and adverse reactions from prescription medicines) was solved….at least I hope so. I only say that I hope so because too often in the past I thought that a medication change was beneficial, only to develop an intolerance, allergy, or a Lollapalooza of side effects later.

Another good thing is that I really felt like I opened up and made some friends while hospitalized. After moping around the first day or two and even getting enraged because I couldn’t go home yet, I finally sucked it up and started coming out of my room to hang out with the other sickies. I met quite a few others, who, like me, were struggling with the results of pharmaceutical persuasion. Others were walking around slower than molasses, giving me the impression they were not currently inhabiting their physical form. Turns out I was wrong about at least one of those cases though. Who would have guessed that the guy who left me wondering if he was mildly or even moderately retarded was actually a highly educated and trained research engineer for the United States Air Force? Here I was thinking he was a few french fries short of a Happy Meal, when he is actually helping design and produce bombers.

Another positive? I found a doctor who seems almost a little TOO interested in Aspergians lol. As he declared himself (in similar words at least), “pretty much every great advancement in human history is due to autists”. I’m not sure about the actual historical accuracy of that statement, but can’t say there isn’t some kind of truth hiding in there. Apparently we neurologically diverse humanoids are pretty fascinating creatures to some out there.

A few other brief things I learned:

*Apparently you don’t insult Axl Rose. I don’t care though, the guy always seemed like an asshole (just ask his ex-bandmates).

*Having your own room can make all the difference when you are autistic and forced to live in a crazy sensory environment.

*It is foolish to pick up bugs when you don’t know what they are. The suckers might deliver a wallop of a sting!

*Sometimes the smallest act of kindness, like giving up something you want because someone else wants it even more, can make all the difference in the world to someone.

*Just saying that you like manga is enough for some people to love you!

*Nurses are often the true heroes of healthcare.

How Accurate are Blood and Skin Allergy Tests?

needle-1291172_960_720.jpg

Well, I’ve officially started allergy shots. Not long ago they conducted a skin allergy test on me to see if that might be contributing to my chronic ear/sinus/respiratory infections. They had already once run an allergy blood test on me (which showed I was only allergic to dogs), but they said the skin allergy test was more accurate and wanted to see what it read. So, I took a week off from all allergy medicines (which was awful in itself in many ways…and who knew that going off Zyrtec could cause withdrawal symptoms???), and then went for the allergy test.

They ended up poking me almost 100 times, checking various strengths of 27 different common allergens. By the time the lady had gotten to the third round of testing (around the 60th shot), I was really struggling to make it through. Fibromyalgia makes your pain response to anything worse anyhow, and getting stuck that many times can begin to feel like some kind of medieval torture device. By the end, my arms looked like cheese graters, with rows of holes all over them.

I waited a few minutes for the nurse to tally the results and found out I was allergic to 22 of the 27 things they tested for, which means 3 vials worth of shots that I’ll have to take for the next 3-5 years. While the ENT doctor does not think this alone is at the root of my chronic infections, she definitely thinks it could help.

The thing that frustrates me greatly is that I was tested for all this stuff by blood test a few years ago and it only showed ONE allergy! How in the world could the blood test be that inaccurate that it didn’t show one other allergen, when I am allergic to at least 21 other common allergens to the point that I need long-term treatment? I know for a fact many of the things I tested greatly allergic to in the skin test WERE also things they tested for in the blood test. In fact, for the skin test, I tested LESS allergic to dogs than many of the other allergens that didn’t show up at all in the blood test! How could the first test have been so inaccurate, and do physicians know exactly how inaccurate the test can be? If so, it sure would have been nice if someone would have told me back then. Maybe it could have helped prevent a few years’ worth of pain and suffering!

I’m curious, has anyone else had both tests and had such widely varying results? If so, did anyone ever explain to you why? I would sure like to know for myself.

How I wish there were sensory friendly hospitals!

hospital
Recently I was admitted into the hospital after two trips to the ER in the same day. At the first ER visit they decided I just had a virus, but when I got home I got much sicker, so sick that when my husband was ready to take me to the ER again, I couldn’t walk on my own and even collapsed in our foyer on the way out. At this second ER visit they noticed my pancreatic enzyme levels were through the roof, so they admitted me for pancreatitis. Once admitted, after more testing, they realized I had colitis and a nasty case of C Diff (an intestinal infection) as well. So unfortunately, I ended up staying there three days.

This was my first time being hospitalized since I was 10. Back then I was hospitalized for one night after being hit by a delivery truck while crossing the road. I sustained some internal bleeding and nerve damage from that accident, but was extremely fortunate to walk again as the doctors told me several times. I don’t remember much of that first sleepover in the hospital except that I hated the IV, got to eat lots of popsicles and had my mom room with me for the night because I screamed bloody murder every time she would try to leave.

This last hospital stay I definitely remember well though. And at times I thought I was going to lose my Aspie mind there. Hospitals truly are sensory hell for us autistics. The constant beeping noises may have been the worst thing, especially the machines attached to me that would beep loudly and relentlessly every so often (and it always seemed to take way too long for someone to come turn them off, even though I knew they were busy). I could hear other patients’ machines beeping too, as well as the noise of everyone watching tv and talking in the hallway. That kind of constant stimulation is not pleasant at all for those of us sensitive to it.

In addition to the noise, there was the unpleasantness of fluorescent lighting everywhere (which is a trigger for many autistics and can give us severe headaches or migraines and make us dizzy and nauseated if exposed for long). Next, you can add the physical discomfort of being hooked up to things. Now, I know that I had to be attached to an IV because I was extremely dehydrated and needed IV drugs, so even though that was extremely uncomfortable (and I really wish they hadn’t put the needle in the crook of my elbow) I dealt with it and didn’t complain. However, when they came in to hook me up to a heart monitor and told me themselves there was no real reason to do so, I was irritated. Eventually I just told them to remove it, that I was refusing to wear it. I was kind about it and they totally understood since none of them knew why I needed one at the time.

Another thing I hated about the hospital is the fact that no one lets you sleep. I was constantly woke up for more shots, blood tests, equipment going off, people being loud, etc. It is enough to drive you crazy! Sleeping in those hospital beds is also extremely uncomfortable if you are a side or stomach sleeper (as I am).

Of course, I do realize that some of these things can’t be avoided. Medicine is necessary and so are machines and tests at times – to help with cases like the one of http://sideeffectsofxarelto.org/current-xarelto-lawsuits/ for example. However, I do wish there were hospitals made especially for people with sensory issues. Maybe some that do a better job of limiting noise and avoided hooking you up to stuff you don’t need. Maybe other kinds of lighting in rooms for those with autism or sensory processing disorders. I know I’m probably dreaming here and that the funding is seriously lacking, but it sure would be nice. Being in the hospital is hard enough for us Aspies just because it is so out of routine and nothing is familiar there, adding all this extra sensory stress can’t be good and I doubt it is conducive to healing.