Tag: ehlers danlos

  • Life Update – Health, Exciting News!

    It’s been a minute since I just did a life update, so let’s take a minute to do so! I’ll break it up into categories for ease: Physical health – Thank God, the Topamax increase seems to have helped the migraines quite a bit. They aren’t gone entirely, but have been much better lately. Still […]

  • Eeyore is My Spirit Animal

    Well, things are still a bit rough. My back is still not doing great although it has been a slight bit better. I have been able to cut back a little bit on the pain killers, which I am thankful for. I hate having to take opioids too often. Unfortunately, I did trip over my […]

  • ER Visit, Trigger Point Injections

    Well, my back is no better after 5 days, so I ended up visiting the ER last night. They gave me a steroid shot and 2 trigger point injections. It was the first time I’ve had trigger point injections and they hurt like hell! Luckily, the pain is brief, but I couldn’t help yelling out […]

  • Chronic Pain Kills Dreams

    My migraine, neck, and back issues have been flaring up on and off ever since my bad MRI experience almost two weeks ago. I feel like I’m not getting anything done and am struggling to get the bare minimum of my daily routine done. All this has me feeling depressed and has killed my enthusiasm […]

  • I Got a Blog Donation and Other Good News!

    First off, I want to thank the person who made a supportive donation to my blog through Paypal today! I believe this is the second donation I’ve received that way and I really appreciate the support! If you are interested in ways to support me, please check out the Support My Blog page on this […]

  • Last Night was a Disaster

    That headline is not an exaggeration. First off, my MRIs went bad. I had MRIs for my brain and neck scheduled last night, both with and without contrast. I didn’t even get to the contrast part because the first part gave me a migraine, triggered severe neck pain, and gave me a major panic attack. […]

  • Another Inflammatory Flare Up and False Hope

    The past few days have been rough. My back went out again, so my upper back and neck have been causing extreme pain again. I think the gluten free diet isn’t really helping much, as all the things I thought it was helping have suddenly flared up the last couple weeks. My GERD has been […]

  • Photo Art from the Children’s Hospital

    Yesterday I went to the local children’s hospital to see their genetic specialist for Ehlers Danlos testing. While there, I got bored and took a couple photos of a set of sculptures I liked: My favorite is the feet one. I love odd angles and close ups of objects, because it shows details most people […]

  • After the Battle is Over…

    I’m feeling a bit like this weird-looking guy I sketched the other day. Dazed, confused, and like I’ve been through the wringer. I am so very happy I won my SSDI case, but I’m almost a little in shock and kind of feeling like “what do I do now”? After fighting for something for so […]

  • I Won My SSDI Case!!!

    Here is what I wrote on my Facebook page today, I think it pretty much sums it all up: Six long years, and I finally won my SSDI case! Fully favorable! Feel like crying and screaming. Been sick and in pain so long, sometimes I wanted to give up hope and die, but glad I […]