I’m still struggling with bad neck pain. Yesterday it felt a little bit better, so I figured I would try to get out of the house for the first time in a while (other than ER visits). Unfortunately, once I got in the car, the vibrations from the car itself and the movement from driving kicked the pain back into high gear. I did at least make it to Wendy’s so my husband and I could get some dinner, but then it was straight back home because I was in too much pain to do anything else.
Honestly, after two weeks of these headaches and severe neck pain, I’m starting to worry this might be a long-term problem, just like my right shoulder blade and the arches of my feet. I’ve been incredibly depressed the last few days, partly because of the pain itself, partly because I can’t do much of anything, and lastly because I worry if my body continues to deteriorate at the rate it seems to be going, I may eventually become completely home-bound. I believe that all these chronic pain issues are mostly related to my Ehlers Danlos Syndrome, which sucks even more because there is no cure for connective tissue disorders 😦
Well, my one-day migraine from Wednesday turned into a four-day migraine that I finally had to go to the emergency room to get rid of this morning. They pumped me full of a bunch of drugs that did take the worst of it away, although I must admit I’m scared it will come back once those wear off. They did give me a steroid shot to help stop rebound migraines, so hopefully that will work.
I’m exhausted and somewhat depressed about the whole situation. I went at least a couple years with barely any migraines and then this just pops up out of nowhere. I can’t help but think part of it might be all the stress about my upcoming SSDI hearing. I try not to consciously think about it, but that doesn’t work so well for obsessive minds like mine.
I’m sure you guys understand that this will be a short post since I’m not feeling too great, but here is a picture of an extremely ugly, grumpy stuffed lion for you to enjoy:
I spent yesterday in the ER. Always lots of fun. I was rather freaked out because I literally couldn’t swallow at times and felt like I was going to choke to death or something. I also was having chest pains, trouble breathing, and feeling like I was going to pass out. Now I get to go back to the GI doctor because they think there are probably issues with damage to my esophagus.
Still not feeling much better today. They put me on some meds that are supposed to protect and hopefully help repair damage done to the esophagus, but no relief yet. I still struggle to swallow, keep coughing, and feel like there is something permanently stuck in my throat. Eating and drinking is no fun, even the smoothie I tried to drink earlier struggled to go down. My chest, especially around my breastbone feels like there is an elephant sitting on it. Man, this sucks.
On Facebook I shared a post about some tax changes that are being made to churches and non-profit institutions. The debate that started, made me think about my own experience working for a non-profit organization and I wanted to share a little bit of that here. For around 6 months or so, I worked for a non-profit religious hospital system. My job was to be one of the people in the emergency department who collected patient information (especially insurance information) and processed payments.
From the beginning, it was drilled into us that it was about the money. We were hounded to make sure we collected certain percentages of money from patients while they were still there in the building, whether they could afford it or not. We were encouraged to apply pressure to them to pay at least a percentage that day, regardless of their personal circumstances. Although patients could legally ask to be billed later, we were told to NEVER tell them that, and only offer that option if they brought it up first.
We were told bluntly that the hospital had to make sure to look like they were doing enough “public outreach” to keep their non-profit tax status, so when they did run public assistance programs we were told to advertise them when talking to patients. It became clear that they didn’t necessarily do programs for the poor because they CARED about them, it was so they could continue to get the tax breaks and other non-profit advantages. I heard so much negative talk there about Medicaid patients and the poor. I was also told flat out that the company was purposefully looking into opening more locations in areas where the people were more likely to pay, and closing locations where the populations were poorer.
One huge issue I had was that even when someone was brought to the ER and died, we were pressured to try to get money from their grieving relatives. More than once, those in charge actually chose not to tell family members that their loved one had passed away until AFTER we collected insurance information and copays/deductible payments. They would send us in, and we would know the family’s loved one was gone, but we were told to lie and pretend we knew nothing. This killed me to have to do. One time a lady begged me for information on her husband who was dead, and I couldn’t tell her anything. I also struggled to go up to a mother whose child has just tried to commit suicide and ask her for money. I felt like scum.
In the end, I couldn’t keep this job due to my own health issues, but I couldn’t have kept doing it with a clear conscience either.
Hello everyone! I’m sorry that I’ve been neglecting my blog lately. I hope to start remedying that now. Here is a short list of some of the things that have been going on in my life recently, as well as some of the projects I am looking forward to beginning:
For the last 8 months I have been working part-time in an emergency room. During that time I have met some fascinating people, but I have also been witness to a great deal of human suffering. I have always been a sensitive, rather empathic person who feels things deeply and in that way, I feel that this job has affected me greatly. I will be leaving the position soon to pursue other opportunities, but I am grateful for the experience.
Recently I have begun to take on more freelance writing gigs, particularly in the field of children’s writing. I have found that one of my true passions is taking the visions of other authors and helping them create great stories for kids. I especially enjoy editing picture books or other types of literature for young readers. Mostly I have been getting clients through online sites, but I am open to offers from other clients, so if you have a children’s book that you would like help editing, feel free to contact me!
My husband and I are hoping to start doing respite for kids and young adults with disabilities soon. Ever since we stopped fostering kids, I have missed having children around to play with and care for. I can’t wait to get a chance to have a full house again, even if it is just for short periods of time.
My YouTube vlog, Maranda’s Toys & Books, has been growing quickly! Ever since I decided to focus the channel mostly on my nerdy love of toys, books and collectibles, it seems to have found its niche and an audience that is a lot of fun to interact with! For that reason, I will probably be sharing my more serious or personal posts here on my blog from now on.
Lastly, this is kind of random…but I’m really rooting for Bernie Sanders! Feel the Bern! Even if he doesn’t end up winning the presidential nomination, I am thankful to see so many younger people step up and show they care deeply about the fate of our country. I think what I love most about Bernie is that he is such a humble, down-to-earth politician. It is truly refreshing to see.
Hi everyone! I wanted to take a moment to share my latest Asperger’s vlog video. This video reviews two books written by Rudy Simone entitled “Asperger’s on the Job” and “Aspergirls”. Either book is a great pick for anyone who has Asperger’s or who is close to someone that does. “Asperger’s on the Job” has been especially helpful to me lately since I recently started a new part-time job working at an emergency room in our local hospital. This is the first time I have really worked outside the home in five years, so it has been a huge transition for me and has caused a lot of stress, but I feel that it will be worth it in the end! I have always been fascinated by the medical field, especially emergency medicine, so I am eager to give it a try!
If you enjoyed this video, please comment on this post or on YouTube and let me know!