Monday appointment
3pm
$41 for the medicine of death
$90 to turn you to ash
cancer is no
respecter
of species
Spyder,
what would you say
if you knew
what was coming?
The question haunts me
and you aren’t even
dead yet
emotional
Poetry – Stuck
Stuck
not sure where to go
so many roads
limited time
stalled
pick foot up
put back down
repeat.
Am I moving forward
or standing still?
The shadows move
but my footprints
stay right here.
Ghost Hunting and Ear Infections
Man, I’m pretty bummed today. I was supposed to go ghost hunting at a local cemetery with a paranormal investigation group, but yesterday my earache turned into a raging ear infection and between the ear pain and the nausea from the antibiotics, I had to choose to stay home and rest. I guess there will likely be other opportunities, but still wish I could have gone.
Among other news, my first SSDI payment got messed up and didn’t come. Took me two days and multiple phone calls to multiple agencies to get it solved and will hopefully get my payment within the next couple weeks. I had a huge meltdown over the whole situation Thursday, which probably didn’t help my immune system and may have contributed to my current infection. I can’t help but notice that my already weak immune system takes a nosedive when I’m stressed or upset.
Even thinking about it now makes me mad lol. The worst part was that the automated phone answering systems would NOT let me talk to a live person for the longest time! Ugh. It was like a labyrinth to find my way through to talk to a living, breathing human. I realize this post is pretty negative and maybe a bit whiny lol, but that’s where I’m at today. Hope you are all feeling better than I am at the moment!
Poetry (Haiku) – Grow Up
Grow up, they all say
But when I try to plant roots
they poison the soil
(Written for a #haikudaily tag on Twitter, theme was “grow”)
Poetry: Unspeakable Childhood
‘Twas horrible to think
that she suffered
an unspeakable childhood.
Every day they reopened
the contentions –
old ones
that she could not
tear away.
Mischief and dread
became more likely
than right and wrong –
causing heads to hit
hard against circumstances
almost as good
as she once was.
(Blackout poetry created from a page of “Great Expectations” by Charles Dickens)
Poetry: Second First Love
I hated you
the first time we met.
You had replaced my old love
before I had the chance
to even say goodbye.
You dared to appear
right as he vanished –
and for that
you had to take the blame.
Afraid of Living
I am not afraid to die –
but I am not yet
unafraid of living.
I’m not sure I have ever written truer words than the 3-line poem above. This little gem came to me while taking a bath last night, so I repeated it to myself like a mantra until I got out of the tub and could write it down.
It is true that I am not afraid of death. I am a bit afraid of the actual feeling of dying, mostly because of the instinctual anxiety I fear it would bring. However, I am not afraid of being dead. In fact, I rather look forward to it. If there is something after death, it will be awesome to explore and find out what else is out there. If there is nothing after death, it will just be like the times I have passed out or been put out for surgery…simply a loss of consciousness which often sounds like a relief in itself. No more worrying. No more pain. No more anxiety or depression.
However, living is scary. Knowing I may have years and years of dealing with anxiety and depression ahead of me. Knowing that I will likely suffer from chronic pain and chronic illness until I die. Knowing that my degenerative conditions will likely worsen with time. Fearing that my husband may get sick or die and I will be alone. Fearing financial ruin. Fearing homelessness. Fearing potentially abusive situations. Fearing the entire planet going to shit (a justifiable fear from my point of view). Fearing that I may end up committing suicide if life becomes unbearable (not the ending I would desire for my life).
Poetry: Narcissistic Games
She could never let me sleep.
That would put us
on equal footing
and allow me
to be fully awake
and aware.
Instead,
she would sneak into my room,
shake me awake
and cry loud, calculated tears
while I practiced
hiding my true feelings
and tried my hardest
to become a limp, gray rock
held barely out of reach.
SSDI Hearing Update
Sorry I didn’t update you all yesterday after the hearing, but I was just too exhausted mentally, emotionally, and physically after the stress of the day. Overall, I think the hearing went ok. It didn’t start out very well since my husband and I had trouble locating the right building and ended up walking through the thick, slushy snow so far that I had an asthma attack, started crying, and was totally soaked from the knees down by the time we actually found the right building. The roads were bad too from the snowstorm and parking was almost impossible since none of the parking lots had been cleared yet.
Once we got into the building, I had a few minutes to recover from the asthma attack and calm down at least. I also had about 15 minutes to meet with my lawyer before the hearing to go over everything again. During the hearing itself, I was quite nervous. I was doing a lot of rocking back and forth (“stimming” in autistic terms).
I think I only had the nerve to look at the judge two or three times the entire hour I was in there. I mostly stared at the microphone and tried to block out everyone else there while answering questions. That seemed to help my social anxiety. I think I did a decent job answering the judges questions…and she asked a lot. I never lost control of myself, although in my closing remarks I did tear up a bit and got a little emotional talking about how hard it had become for me to keep a job due to my physical and mental disabilities.
Unfortunately, the judge did not tell me her decision yesterday. I will have to wait to receive the official verdict letter. On the positive side, my attorney did say afterwards that he thought it went great and even on the off chance that the judge gave a negative verdict, he thought I had a strong enough case that he would appeal that. I hope it doesn’t come to that though, God only knows how much longer that would make the whole thing drag out…and quite honestly, we need the money as soon as possible, especially since I just got a $1,500 ER bill (our deductible sucks).
