Neurologist Visit Update

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Yesterday I saw my new neurologist for the first time to try to figure out why I am suddenly having so many migraines. I must say the visit didn’t start out well. For one thing, they only see new patients first thing in the morning, and I am NOT a morning person. However, I did make it there on time at 9am in the morning, but then I ended up waiting to see the doctor until after 11am!!! Needless to say, I was not a happy camper.

The doctor seemed rather grumpy when he finally came in too. Maybe he was having a bad morning (I would think so with being that behind schedule for a specialist), but after waiting two hours, dealing with a grumpy doctor was not ideal. I will say that even though he was a bit grumpy, he was thorough at least. He asked tons of questions and investigated all the leads I could provide, even bothering to request additional medical records and taking a second look at my imaging tests that have already been done.

By the end of the visit, he had decided to send me for an EEG to check for possible mini strokes or seizures, and another head/neck MRI to see if my cervical issues have worsened in the past two years or if anything else has changed. He also wants me to be tested for Meniere’s disease, an inner ear disorder that may be contributing to my vertigo, ear pain/pressure, and tinnitus.

He noted that my neck was constantly spasming, so he switched me to another muscle relaxer and also put me on Topamax to try to help prevent the migraines (we are hoping it might help my fibro pain some too). I guess we’ll see how it goes from there.

Star Trek Exhibit Highlights at Indianapolis Children’s Museum

Over the weekend my husband and I visited Indianapolis to see the Star Trek exhibit at the Indianapolis Children’s Museum. My husband was in heaven lol. I was there. I did find a few fun things to concentrate on though.

I annoyed my husband by sitting in the captain’s chair like this:

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My personal favorite in the exhibit was this painting of Data’s cat from The Next Generation, I would hang this in my house:

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My husband got assimilated and beamed up (along with a little friend):

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I did get to ride the museum’s carousel (one of my favorite things to do at any museum, zoo, or park). Unfortunately, I threw my hip out climbing onto it. I think from now on I may need to sit on the little benches on the carousel like all the other old, broken down bodies:

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I also got a photo op at Candyland:

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Now I am back home, exhausted, sore, and will probably need a few days to recuperate.

Dental Cleaning from Hell

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That headline isn’t exaggerating. I had a horrible dental cleaning experience yesterday. Now to be fair, my teeth are extremely sensitive, just like everything else on my body (thanks autism), so cleanings are never fun for me anyhow. There are always at least a few painful nerves hit during the process.

However, yesterday the lady who regularly cleans my teeth was on maternity leave so I had a new lady who was incredibly slow, annoying, and seemed to manage to hit about every nerve on every tooth, at least on the front ones. I can’t recall the number of times I flinched from the pain. At least a couple times I teared up. I was starting to wish I was having a filling instead, because at least then I would be numbed up some.

I feel bad calling the lady annoying, but to be frankly honest, she was. She was one of those people who just talks and talks and talks, which drives me crazy. It was especially hard not to be annoyed when I was already having a bad experience. A few minutes into the cleaning I was tempted to get up and say “I’m sorry, but I just can’t do this today”, and reschedule for when my normal person gets back. I managed to tough it out though. Glad it is over and my regular cleaner should be back before my next cleaning!

Poetry – When I Was Hit By a Truck

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Not many 10-year-olds
could be hit
by a speeding
delivery truck
while crossing the street
and live
to tell the tale…
but I always was
a weird statistic.

The truck ran
me over
with the ease
of a speed bump.
I even had the
tire tracks
and imbedded gravel
across my stomach
to prove it.

When I woke up
in the ER
I screamed out the names
of all the people
I was going to sue…
until my mother
bought my silence by
bribing me
with the promise
of a brand new
Barbie doll.

(Poetry by Maranda Russell, marandarussell.com)

Fears of Becoming Home-Bound

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I’m still struggling with bad neck pain. Yesterday it felt a little bit better, so I figured I would try to get out of the house for the first time in a while (other than ER visits). Unfortunately, once I got in the car, the vibrations from the car itself and the movement from driving kicked the pain back into high gear. I did at least make it to Wendy’s so my husband and I could get some dinner, but then it was straight back home because I was in too much pain to do anything else.

Honestly, after two weeks of these headaches and severe neck pain, I’m starting to worry this might be a long-term problem, just like my right shoulder blade and the arches of my feet. I’ve been incredibly depressed the last few days, partly because of the pain itself, partly because I can’t do much of anything, and lastly because I worry if my body continues to deteriorate at the rate it seems to be going, I may eventually become completely home-bound. I believe that all these chronic pain issues are mostly related to my Ehlers Danlos Syndrome, which sucks even more because there is no cure for connective tissue disorders 😦

Even My Dream Self is Depressed

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I’m still struggling quite a bit. Feeling lethargic, numb, and exhausted all the time. Still not wanting to get out of bed, even though I’m not finding much refuge in sleep either, since my dreams the last couple nights have been overrun by nightmares. Quite an assortment of bad dreams too: A dream about my husband not loving me anymore, a dream about giant ants, a dream about trying to get kicked out of high school. Even in my dreams I’m miserable. During the high school dream the reason I wanted to get kicked out was because I was so depressed I just couldn’t function and wanted to go home and crash.

I’m hoping this depressive episode passes soon. I’m not sure if it is maybe exacerbated by seasonal affective disorder since I haven’t seen the sun in a while, or if this is just a shitty coincidence, but I wish I felt better.

Christmas and Family Forgiveness

Yesterday my husband and I traveled over to Indiana to meet my mom and her husband for Christmas dinner. We all decided to meet at a truckstop that is about halfway between us, so that neither of us would have to cook, clean up, or drive too far:

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I genuinely had a good time and am glad I’ve been able to spend more time with them recently. Those of you who have followed my blog for a while, may remember that there has been a lot of water under the bridge between my mother and myself over things that happened when I was growing up. She made some huge mistakes, and as is often the case, my sister and I had to pay for many of those choices just as much as she did…maybe more in some cases.

She genuinely seems to be regretful and is trying to make things better between us, so although I am always going to be cautious and protective of myself, it feels good to be able to embrace forgiveness for my own peace of mind and well-being. Forgiveness doesn’t mean that what we went through was ok, or that the damage wasn’t done, but it does mean that it doesn’t have control of my life, my mind, or my heart anymore. I can move on.

I am somewhat a believer in the saying “When we know better, we do better”. Some of us take a long, long time to “know better”, but healing and wisdom are ours once we finally do face the truth.

 

Alien Abduction Experience?

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You all seemed to enjoy my post the other day about past life dreams, so I thought I would share another weird experience I had years ago. This is the closest thing to an alien abduction experience I have ever had. This is only one of two experiences I have had where I honestly wonder if I was awake or asleep (I’ll tell you about the other otherworldy experience another time). It certainly felt like I was awake for the following experience, but it was so odd I can’t help but wonder.

Here is what I remember of that night:

Being woken up by a bright light and sitting up in bed. I have memories of looking at the window blinds in our room to try to figure out where the light was coming from. The next thing I remember, a few small alien beings entered the room and stood around the foot of my bed. I don’t remember them walking in or anything like that, it seemed like they were just suddenly there. The beings resembled the small grey aliens that have become popularized by pop culture/paranormal communities, maybe around 4 foot tall or so. I remember how smooth and shiny their skin seemed. They seemed to be silhouetted with bit of light too, but nothing like the bright light that woke me.

Naturally, I was terrified by these events and I remember trying desperately to wake my husband up, who was sleeping peacefully next to me. No matter what I did, I couldn’t get him to wake up, which panicked me even more. Suddenly, I found myself laying down again, almost against my will it seemed. I felt myself floating upwards in this horizontal position and then I don’t really remember much else until I was returned. I do not remember going through the ceiling, or being aboard a spaceship, or tests, or anything like that, but I do feel like a lot happened during this blank time in my memory. I do remember kind of floating back down into bed later, the same way I had started to float up. I remember being really sleepy and kind of out of it, almost like I had been drugged or sedated. Due to this, I fell asleep quickly.

If this was a dream and I was asleep the entire time, I find it odd that I don’t remember any of the middle part, even though I remember the beginning and end so vividly and emotionally. Normally, I remember a dream fairly in its entirety, and the more I think about the dream, the more details I remember, but no matter how much I have relived this experience, I really do not remember what happened after floating upwards until I came back down.

I have no idea what really happened that night, but I’ll never forget it. We do live near Wright Patterson Air Force Base, which I later found out is rumored to be highly connected to the Roswell incident, Area 51, and other secret space programs, but who knows? I have heard that UFO activity is common in the area around the base, but that could be due to various military-related programs.