Hypomanic Therapy, Festivals, and My Little Pony Toys

Today was a busy (but good) day! I had therapy this morning, which went well. I am a bit hypomanic, so I think I talked for the entire hour straight with my therapist not getting much room to say anything. We discussed my difficulty dealing with criticism (which I may do a separate post on later this week) and we also talked about my long list of things I would do if I weren’t so anxious and scared to try. It was a long list! Maybe I will share that sometime too if anyone is interested.

After therapy, my husband and I went to the local Sweet Corn Festival in Fairborn, Ohio. We shared a delicious funnel cake, then bought some homemade soap, a jar of a concoction called “Black Bear Jam” (made with blackberries, blueberries, and black raspberries), and a little bit of handmade maple candy.

Lastly, we went to do a little shopping and I found these awesome 35th Anniversary My Little Pony Windy and Skydancer toys for sale at Target:

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They even came with 80’s style puffy stickers! I had been hoping they would re-release some unicorn and pegasus ponies, so that made my day!!!

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Back Doctor and Pain Management Clinic Rant – Why So Insensitive?

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This is going to be a bit of a rant. Yesterday I received a letter from the orthopedic doctor and pain management clinic I was seeing for my upper back/neck pain. That letter turned my mood sour quickly. It said that I had been non-compliant with physical therapy and the spinal injections they had ordered, so they were kicking me out of the practice.

Why did it tick me off? Because the way they expressed it is totally not what we had discussed in person. First of all, I was not “non-compliant” with physical therapy. I tried it for several weeks and it WORSENED the pain rather than helping. It also caused widespread fibromyalgia and chronic fatigue syndrome flares throughout my body. This wasn’t the first time I had tried physical therapy, so I had been worried from the start, but they had promised they would accommodate my conditions, which they didn’t actually seem to do.

When I called the physical therapy office to explain that it was worsening my back pain and my fibromyalgia/cfs symptoms, they seemed understanding at the time. I was also having issues driving myself to therapy because when my back pain flares up, I can barely turn my head because of the neck pain. I asked the physical therapy office if I should perhaps try again in the summer when my husband could drive me, but the lady said that if the sessions were causing me that many problems, trying it again in the summer didn’t make much sense.

As for the spinal shots, the main reason I was fearful about going through with them is because they would not offer any kind of sedation. You see, I had been told how important it is for spinal injections that you be absolutely still during the process or you could cause damage to the spine. As an autistic person with severe sensory issues and intense over-sensitivity to any kind of sensory input (including pain), this worried me. I also have severe anxiety and that can sometimes make me shake and tremble involuntarily.

I had researched the shots and noticed that many other places offer sedation. I even talked to a few other people who had undergone the shots and had been sedated. I was not trying to be a pain or a drama queen, I was simply being cautious. Affording the shots was also a major issue at the time (since they required full payment up front), which I had explained to them.

In the end, I’m not upset that they were unable to further help me, I had already kind of figured that out. However, I am upset at the accusatory tone of the letter they sent me and the obvious insensitivity and lack of understanding for people who suffer from chronic pain/chronic illness and people who happen to have autism or other sensory processing difficulties. By the way, I will be sending them a letter back stating much of what I just said here. Hopefully they will learn something.

 

Wisdom Teeth Surgery Anxiety

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Not long ago I had an infected wisdom tooth, so unfortunately, the surgery I have been putting off to get my wisdom teeth out is now more of a necessity. I am scared shitless, and I’m not even sure why.

I keep telling myself it is a minor surgery. Outpatient even. I’ll go, get them out, come home, and likely crash for a few days. Then hopefully it will all be behind me. The teeth are impacted, which makes the surgery more complex, but I will be put out for the operation, so I’m not sure why I am so panic-stricken at the idea of having to do this.

To make matters worse, the first appointment I could make to get it done isn’t until the end of August, so I have an entire month to keep freaking myself out. I keep trying to distract myself or think positive thoughts, but I feel such a sense of dread that I just can’t shake, and it is making me spiral into a depression as well.

I did the typical Aspie thing, and tried to make myself feel better by finding as much information as I could about the procedure to lessen the anxiety, but it hasn’t helped much. I could quote you stats of all the risk factors (and ways to prevent them), draw you a diagram of the procedure, or explain step by step what will be done, but it isn’t helping me to let it go.

Maybe this is my OCD coming out in full force (an inability to NOT fixate on something I wish I wasn’t thinking about at all), or maybe it is just the anxiety of the unknown, since I have never had surgery of any kind before or been put out for any kind of operation…but I wish my brain would just shut the hell up about it! I’m sure my poor husband would find that a relief too since he has to deal with his basket case wife for the next month 😦

Strangest Lucid Dream Ever

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I had the strangest lucid dream ever the other night. As many lucid dreams start, I was in the middle of a dream when I suddenly realized that I WAS dreaming, and at that point was able to take over and consciously guide the rest of the dream. At first I wasn’t sure what I wanted to do, but after thinking about all the cool stuff I had done in previous lucid dreams over the years (meeting Michael Jackson, swimming in outer space with whales, visiting a robot world, etc.), I decided to start off with just flying – probably my favorite dream activity!

I flew a bit above the earth for a while, enjoying the beauty of the nature, towns, and waterways that passed below me, and then decided to fly higher and see what I could find above me. For some reason, it was a struggle to get high enough, almost like I didn’t believe in myself enough to go higher, even though I knew it was a dream and I had all the power.

Finally I did get high enough to reach a higher plane of existence, which by the way was a very interesting place. If I remember right it was almost ancient Greek-like in structure, had more advanced beings that weren’t quite angels, but felt more advanced than humans. The most interesting part of this place was that I viewed a puppet show where my mother, one of her previous husbands, and others I had known in my life were the puppets being controlled by these other beings. It was super weird.

While on this higher plane, I was greatly tempted to delve beneath their sea, because I could remember past lucid dreams where I had been able to travel underwater without needing to breathe, but now I was suddenly afraid to try it again, even though I knew it was a dream and I knew nothing could truly hurt me. I knew I couldn’t drown, but I still struggled to overcome my own self doubt and my grasp of “reality”, similar to how I had struggled to believe I could fly higher earlier in the dream.

In the end, I knew that the only thing holding me back was my fear and need to believe in myself, but it was almost impossible to overcome those things. I know there is a real message of depth there, even for my waking life, but I’m still a little weirded out by the whole experience. Hopefully I don’t sound like a nutcase too lol.

Journal Writings from a Severe Depressive Episode

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Once in a while I share intimate writings from my journal, from times when I was severely depressed. I don’t do this to get sympathy, but because I hope to educate people who haven’t experienced depression themselves to get even a glimpse of the mental torture you undergo when extremely depressed. I hope sharing might help reduce the stigma and the judgmental attitudes that persist in the face of major depression. So, here goes:

“Why is it that I am screaming on the inside, and yet my voice is mute? Not a peep must pass these lips. I am invisible, even as I am seen.”

“I had to get out. I had to leave. Repeating “I’m ok”, over and over to myself, wasn’t working. I couldn’t breathe, or maybe I didn’t want to any longer. My entire body shook, even as I threw on clothes and grabbed the car keys. I’m still shaking now.”

“I’ve lost it. My composure, my hope, my perception of living. I no longer know if I even exist. No one else seems to see me either.”

“As I walk down the road, tears streaming down my face, a ribbon dangles from my journal, suspended not by wind but by movement. I should tuck it in, but I want to look unkempt. Let the outside, even my props, match the inner disarray.”

“The question asks itself, am I sad or just spoiled? Do I put this on? Is it a show? Do I want to appear unhinged? Is this for attention, and if so, why do I fail so miserably even at that, as it is made clear that nobody sees me?”

*You might notice a pattern in many of these writings, a feeling of invisibility, of not being seen, and not feeling like I matter. As the last quote shows, I even wonder if I am crying out for the attention that I don’t know how to get. Perhaps this aspect is tied to the social limitations of being autistic and suffering from severe social anxiety disorder? I wondered if others who are not autistic or socially anxious feel these same things when depressed, or if it is just me?

By the way, BetterHelp has some great resources on depression as well, so check them out!

 

The Real Problem with the World

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The problem isn’t me. Not really. The problem is the world. The gossips. The bullies. The abusers. The narcissists. The shallow. The cruel. The snobs. The judgmental. The callous. The ignorant. The rude. The contentious. The angry. The passive aggressive. The sadistic. The jealous. The violent.

Is it any wonder I fear humanity? Is it any wonder I fear humiliation, rejection, and being misunderstood?

My experiences have taught me that life is harsh, and that is what I’ve come to expect. Not long ago, my psychiatrist warned me about the danger of “expecting everyone to treat me the way my abusers did”, but how easy is that to accomplish when so many others HAVE turned out to treat me that way? I often feel like a wounded gazelle surrounded by lions. I look for empathy, but instead I find savagery.

5 Important Questions to Ask Yourself!

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Here are a few important questions to ask yourself about your purpose and meaning in life! For fun, I have provided my own answers to them as an example! If you do answer these, I would recommend taking the time to write them down, think about them carefully, and be as honest as you can!

  1. What is your life work? My Answer: Writing, sharing ideas and emotions, creating art, advocating for and comforting others with autism, mental illness, and chronic pain/illness.
  2. What is the meaning of your life? What gives you purpose? My Answer: Inspiring others (kids, fellow Aspies, those with disabilities, other outsiders). Loving family, friends, and animals (loyalty).
  3. What is your passion? My Answer: Writing, spirituality, philosophy, psychology, toys, books, animals, art, creativity.
  4. What does the world lose if I wasn’t here? My Answer: A child-like, loving heart and spirit. Loss of inspiration and creativity. The loss of a voice crying out for justice and harmony. Loss of a unique thinker.
  5. What would it take to begin fully living my dreams today? My Answer: Time, the willingness to fail or be ridiculed, the possibility of being proven wrong, unwavering belief in myself, trust in what is meant to be, hope.