Poetry: Narcissistic Games

hahn-2645271_960_720

She could never let me sleep.
That would put us
on equal footing
and allow me
to be fully awake
and aware.

Instead,
she would sneak into my room,
shake me awake
and cry loud, calculated tears
while I practiced
hiding my true feelings
and tried my hardest
to become a limp, gray rock
held barely out of reach.

Advertisements

SSDI Hearing Update

court-room-3553455_960_720

Sorry I didn’t update you all yesterday after the hearing, but I was just too exhausted mentally, emotionally, and physically after the stress of the day. Overall, I think the hearing went ok. It didn’t start out very well since my husband and I had trouble locating the right building and ended up walking through the thick, slushy snow so far that I had an asthma attack, started crying, and was totally soaked from the knees down by the time we actually found the right building. The roads were bad too from the snowstorm and parking was almost impossible since none of the parking lots had been cleared yet.

Once we got into the building, I had a few minutes to recover from the asthma attack and calm down at least. I also had about 15 minutes to meet with my lawyer before the hearing to go over everything again. During the hearing itself, I was quite nervous. I was doing a lot of rocking back and forth (“stimming” in autistic terms).

I think I only had the nerve to look at the judge two or three times the entire hour I was in there. I mostly stared at the microphone and tried to block out everyone else there while answering questions. That seemed to help my social anxiety. I think I did a decent job answering the judges questions…and she asked a lot. I never lost control of myself, although in my closing remarks I did tear up a bit and got a little emotional talking about how hard it had become for me to keep a job due to my physical and mental disabilities.

Unfortunately, the judge did not tell me her decision yesterday. I will have to wait to receive the official verdict letter. On the positive side, my attorney did say afterwards that he thought it went great and even on the off chance that the judge gave a negative verdict, he thought I had a strong enough case that he would appeal that. I hope it doesn’t come to that though, God only knows how much longer that would make the whole thing drag out…and quite honestly, we need the money as soon as possible, especially since I just got a $1,500 ER bill (our deductible sucks).

When Someone You Loved Embraces Ignorance

signs-416444_960_720 (1)

I have to be careful how I word this post as there is a slight (but unlikely) chance the person I am talking about might read it. However, it has been weighing heavily on my mind so I wanted to talk about it.

There was a person in my personal life I was really close to for several years. I cared about them deeply and loved them like family. They were much younger than myself, so I tried to set a good example for them and be a sort of big sister to them. We spent much of our time together, partly out of necessity at the time and partly because I genuinely enjoyed their company.

Now they are all grown up and I am still in loose contact with them and seeing how they have turned out has kind of broken my heart. They have embraced some radical ideologies that are rude, ignorant, and sometimes bordering on mean or even cruel. I know I only had a real influence on them for a few years, but it still makes me feel like somehow I failed them that they have turned from such a thoughtful, sensitive, caring young person to a cold, bitter, angry, and sometimes hateful adult.

I still love them and know that goodness I knew inside of them must be there somewhere. I know they have had a rough life and many hurtful experiences, just as I had growing up. I wonder if I am being too hard on them. I know sometimes the other side goes way too far with political correctness, perhaps it is just a reactionary thing? Maybe they are just being young and foolish, like we all once were? I don’t know, but it still hurts my heart.

I Hate Disappointing People

man-2037255__340

You ever go to a doctor’s appointment and feel like you somehow disappointed them? That’s how I’m feeling today. I went to see my psychiatrist and while he didn’t say anything overly negative or mean, I just left with the feeling that somehow he was a little disappointed in me.

Perhaps I am projecting here, but I kind of feel like he isn’t quite as supportive as my other doctors about my going on SSDI. Not because he doesn’t think I have real problems and medical conditions, but because he seems to think I have a lot of potential and maybe he thinks if I get disability I’m just going to sit around and do nothing the rest of my life.

This may be partly my fault if he has that impression. After all, I don’t normally talk about all the stuff I do enjoy doing while there. I only see him every couple months for a short visit, so I tend to focus on what is going wrong, not what is going right. I don’t talk about all the art I make and sell or the books I write and sell. I don’t talk about my blogging. I don’t talk about all the people I correspond with on social media. I didn’t mention that I was recently made a board member on the International Board of Sensory Accessibility. I didn’t tell him about the art contest I submitted three artworks to this month. I don’t tell him about the online communities for chronic illness, chronic pain, autism, and other conditions that have given me a chance to support others and receive support myself.

I kind of wish I had mentioned some of those things now. Maybe next time.

Even My Dream Self is Depressed

walkers-486583_960_720

I’m still struggling quite a bit. Feeling lethargic, numb, and exhausted all the time. Still not wanting to get out of bed, even though I’m not finding much refuge in sleep either, since my dreams the last couple nights have been overrun by nightmares. Quite an assortment of bad dreams too: A dream about my husband not loving me anymore, a dream about giant ants, a dream about trying to get kicked out of high school. Even in my dreams I’m miserable. During the high school dream the reason I wanted to get kicked out was because I was so depressed I just couldn’t function and wanted to go home and crash.

I’m hoping this depressive episode passes soon. I’m not sure if it is maybe exacerbated by seasonal affective disorder since I haven’t seen the sun in a while, or if this is just a shitty coincidence, but I wish I felt better.

Depression Slump

blancoynegro-1217184_960_720

I’m going through a depression slump right now. I can tell because I am sleeping half the day away and not wanting to get out of bed even when I do finally wake up. I don’t feel like writing, creating art, talking to anyone, or simply functioning. I want to stay in bed and either sleep my life away or curl up under all my heavy blankets and leave reality behind.

I have some important appointments coming up soon (my Ehlers Danlos testing and my SSDI hearing top the list), but right now I don’t even care about those things. I don’t feel like doing them and the thought of dealing with them is overwhelming. I hope this slump passes soon.