I Miss Having Kids Around

Today my husband and I went to go see one of his students dance in a special recital:

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Seeing all the cute little kids dressed up in their costumes and dancing made me really miss having kids around. I used to be almost constantly surrounded by kids between foster parenting, volunteering with the kids at our old church, and working in the school system as a teacher’s assistant/aide. My favorite age of kids to work with were always the younger ones, 3-4 years old to around 6 or 7, although I bonded well with kids of almost any age.

At this point, I don’t know if my physical/mental health will ever consistently improve to the point that I can do those things again, but I miss them. I am thankful for the experiences and memories though.

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Afraid of Living

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I am not afraid to die –
but I am not yet
unafraid of living.

I’m not sure I have ever written truer words than the 3-line poem above. This little gem came to me while taking a bath last night, so I repeated it to myself like a mantra until I got out of the tub and could write it down.

It is true that I am not afraid of death. I am a bit afraid of the actual feeling of dying, mostly because of the instinctual anxiety I fear it would bring. However, I am not afraid of being dead. In fact, I rather look forward to it. If there is something after death, it will be awesome to explore and find out what else is out there. If there is nothing after death, it will just be like the times I have passed out or been put out for surgery…simply a loss of consciousness which often sounds like a relief in itself. No more worrying. No more pain. No more anxiety or depression.

However, living is scary. Knowing I may have years and years of dealing with anxiety and depression ahead of me. Knowing that I will likely suffer from chronic pain and chronic illness until I die. Knowing that my degenerative conditions will likely worsen with time. Fearing that my husband may get sick or die and I will be alone. Fearing financial ruin. Fearing homelessness. Fearing potentially abusive situations. Fearing the entire planet going to shit (a justifiable fear from my point of view). Fearing that I may end up committing suicide if life becomes unbearable (not the ending I would desire for my life).

SSDI Hearing Update

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Sorry I didn’t update you all yesterday after the hearing, but I was just too exhausted mentally, emotionally, and physically after the stress of the day. Overall, I think the hearing went ok. It didn’t start out very well since my husband and I had trouble locating the right building and ended up walking through the thick, slushy snow so far that I had an asthma attack, started crying, and was totally soaked from the knees down by the time we actually found the right building. The roads were bad too from the snowstorm and parking was almost impossible since none of the parking lots had been cleared yet.

Once we got into the building, I had a few minutes to recover from the asthma attack and calm down at least. I also had about 15 minutes to meet with my lawyer before the hearing to go over everything again. During the hearing itself, I was quite nervous. I was doing a lot of rocking back and forth (“stimming” in autistic terms).

I think I only had the nerve to look at the judge two or three times the entire hour I was in there. I mostly stared at the microphone and tried to block out everyone else there while answering questions. That seemed to help my social anxiety. I think I did a decent job answering the judges questions…and she asked a lot. I never lost control of myself, although in my closing remarks I did tear up a bit and got a little emotional talking about how hard it had become for me to keep a job due to my physical and mental disabilities.

Unfortunately, the judge did not tell me her decision yesterday. I will have to wait to receive the official verdict letter. On the positive side, my attorney did say afterwards that he thought it went great and even on the off chance that the judge gave a negative verdict, he thought I had a strong enough case that he would appeal that. I hope it doesn’t come to that though, God only knows how much longer that would make the whole thing drag out…and quite honestly, we need the money as soon as possible, especially since I just got a $1,500 ER bill (our deductible sucks).

When Someone You Loved Embraces Ignorance

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I have to be careful how I word this post as there is a slight (but unlikely) chance the person I am talking about might read it. However, it has been weighing heavily on my mind so I wanted to talk about it.

There was a person in my personal life I was really close to for several years. I cared about them deeply and loved them like family. They were much younger than myself, so I tried to set a good example for them and be a sort of big sister to them. We spent much of our time together, partly out of necessity at the time and partly because I genuinely enjoyed their company.

Now they are all grown up and I am still in loose contact with them and seeing how they have turned out has kind of broken my heart. They have embraced some radical ideologies that are rude, ignorant, and sometimes bordering on mean or even cruel. I know I only had a real influence on them for a few years, but it still makes me feel like somehow I failed them that they have turned from such a thoughtful, sensitive, caring young person to a cold, bitter, angry, and sometimes hateful adult.

I still love them and know that goodness I knew inside of them must be there somewhere. I know they have had a rough life and many hurtful experiences, just as I had growing up. I wonder if I am being too hard on them. I know sometimes the other side goes way too far with political correctness, perhaps it is just a reactionary thing? Maybe they are just being young and foolish, like we all once were? I don’t know, but it still hurts my heart.