Tag: fibromyalgia

  • Star Trek Exhibit Highlights at Indianapolis Children’s Museum

    Over the weekend my husband and I visited Indianapolis to see the Star Trek exhibit at the Indianapolis Children’s Museum. My husband was in heaven lol. I was there. I did find a few fun things to concentrate on though. I annoyed my husband by sitting in the captain’s chair like this: My personal favorite […]

  • Fluoride Fears

    Sometimes I worry about fluoride…specifically ingesting too much of it. Too much fluoride can cause a condition called skeletal fluorosis, which is often mistaken for arthritis or fibromyalgia. Most people know our toothpastes and other dental products often contain fluoride, but many don’t realize all the other sources of fluoride we ingest every day. There […]

  • Afraid of Living

    I am not afraid to die – but I am not yet unafraid of living. I’m not sure I have ever written truer words than the 3-line poem above. This little gem came to me while taking a bath last night, so I repeated it to myself like a mantra until I got out of […]

  • Bad Flare Up After Car Broke Down

    Feeling like shit today. Woke up after sleeping 10-11 hours, ate breakfast, and then went to take a nap for another couple of hours. So, why am I so exhausted and feeling like I got run over by a steamroller? Well, yesterday my husband was driving home from work when a tire fell off his […]

  • Isolation and Loss from Chronic Illness

    I’ve been feeling rather sad and isolated the last few days. I think a lot of it comes from the stress of dealing with chronic illness and chronic pain. Anyone who has chronic illness is probably familiar with spoon theory, an illustrative way to describe why you have to choose carefully how to use your […]

  • SSDI Hearing Update

    Sorry I didn’t update you all yesterday after the hearing, but I was just too exhausted mentally, emotionally, and physically after the stress of the day. Overall, I think the hearing went ok. It didn’t start out very well since my husband and I had trouble locating the right building and ended up walking through […]

  • Worries about My SSDI Hearing Tomorrow

    Tomorrow morning is my SSDI hearing. I’m super anxious about it. I feel a little nauseated just thinking about it. I’m afraid I’ll do or say the wrong thing. I’m afraid I’ll burst into tears and feel embarrassed. I’m afraid I’ll somehow misrepresent my reality. I’m afraid the judge will say no and ruin my […]

  • Poetry: Paper Doll

    I’m a paper doll with third degree burns. Dress me up, make me pretty, and please, simply ignore all the raw, peeling flesh falling onto the floor. (Poetry by Maranda Russell, marandarussell.com)  

  • Fears of Becoming Home-Bound

    I’m still struggling with bad neck pain. Yesterday it felt a little bit better, so I figured I would try to get out of the house for the first time in a while (other than ER visits). Unfortunately, once I got in the car, the vibrations from the car itself and the movement from driving […]

  • Migraines Caused by Neck Issues?

    I’m still struggling with migraines, but am starting to think that they might actually be cervicogenic headaches (caused by issues in the neck). The last few days, the left side of my neck has been visibly swollen and extremely tight, causing a great deal of pain. I can’t help but notice that the worse the […]