I Don’t Like to Read Anymore :(

When-Does-A-Book-Become-Public-Domain.jpg

Lately I’ve hit the worst and longest lasting reading slump I can remember. For at least a couple months now I have struggled with picking up a book (any book) and reading it. I’ve tried a multitude of genres and subject matter, so I don’t think that is the issue. I’ve tried books of different lengths and even graphic novels and books with lots of pictures and still find myself throwing most of them to the side relatively quickly and just losing interest. I’m starting to worry this may be my new normal.

But WHO AM I if I no longer like to read? Reading and being a devoted reader has been such a huge part of my identity for so long that I feel lost without the passion for books I’ve always had. If you aren’t a reader, I know you will probably think this is a stupid post, but if you are like me and love to live in other worlds through print, you probably get my sense of despair and existential angst over this matter.

Advertisements

Angry at the Grass

green-grass-1493898873qXe public domain photo

The grass waves at me
but I don’t feel like
greeting it back.
Must be so simple
to just sway in the wind,
no worries
no cares,
everything you have
the sun painted on your back.
It almost makes me glad
you’ll soon be mown down.

~ Maranda Russell

How Accurate are Blood and Skin Allergy Tests?

needle-1291172_960_720.jpg

Well, I’ve officially started allergy shots. Not long ago they conducted a skin allergy test on me to see if that might be contributing to my chronic ear/sinus/respiratory infections. They had already once run an allergy blood test on me (which showed I was only allergic to dogs), but they said the skin allergy test was more accurate and wanted to see what it read. So, I took a week off from all allergy medicines (which was awful in itself in many ways…and who knew that going off Zyrtec could cause withdrawal symptoms???), and then went for the allergy test.

They ended up poking me almost 100 times, checking various strengths of 27 different common allergens. By the time the lady had gotten to the third round of testing (around the 60th shot), I was really struggling to make it through. Fibromyalgia makes your pain response to anything worse anyhow, and getting stuck that many times can begin to feel like some kind of medieval torture device. By the end, my arms looked like cheese graters, with rows of holes all over them.

I waited a few minutes for the nurse to tally the results and found out I was allergic to 22 of the 27 things they tested for, which means 3 vials worth of shots that I’ll have to take for the next 3-5 years. While the ENT doctor does not think this alone is at the root of my chronic infections, she definitely thinks it could help.

The thing that frustrates me greatly is that I was tested for all this stuff by blood test a few years ago and it only showed ONE allergy! How in the world could the blood test be that inaccurate that it didn’t show one other allergen, when I am allergic to at least 21 other common allergens to the point that I need long-term treatment? I know for a fact many of the things I tested greatly allergic to in the skin test WERE also things they tested for in the blood test. In fact, for the skin test, I tested LESS allergic to dogs than many of the other allergens that didn’t show up at all in the blood test! How could the first test have been so inaccurate, and do physicians know exactly how inaccurate the test can be? If so, it sure would have been nice if someone would have told me back then. Maybe it could have helped prevent a few years’ worth of pain and suffering!

I’m curious, has anyone else had both tests and had such widely varying results? If so, did anyone ever explain to you why? I would sure like to know for myself.

Moving Sale! Selling a House is a Pain in the…

were-moving.jpg

So…my husband and I are in the process of selling our home and looking for a smaller, less expensive place. We simply don’t need a big house with three bedrooms, two bathrooms, a full basement, and lots of other room just for the two of us. I have quickly learned that getting a house ready to sell is a nightmare in some ways though! Here are a few things we are dealing with:

*This past weekend we had a moving sale. Man, that was rough! Getting stuff ready for the sale, dealing with all the people the day of the sale (two of which got in a heated exchange over a tea cart they both wanted), having people trying to wander off and take stuff from parts of the house that were NOT for sale (one even took a couple pictures off the wall), having to get the leftovers ready for charity to pick up, and throwing out my back so that now, two days later, I can barely do anything.

*My idea of clean is obviously not a realtors idea of clean. I am not an extremely dirty person, in fact, I’m normally quite organized, but I am kind of bad about dusting, washing windows, and other stuff like that I simply don’t think of much. I also tend to have to pick what tasks are most important due to my health problems, so when I do clean, obvious messes, stains and frequently used areas get first priority.

*Having four cats makes it really rough to get a house in showing shape. They constantly make messes, and get cat hair in every square inch of the house.

*Apparently, when showing a house you have to “stage” everything. I’m supposed to take a normal, lived-in home and make it look like the showcase floor of a furniture store or something. Not enough furniture = bad. Too much furniture = bad.

*I never realized there were so many things wrong with our home until seen through the eyes of a realtor! Other people often comment that our house is really nice, but after listening to the realtor, I felt a little bit like I was living in a shanty or something.

*Trying to fix the timing so that we will have a new home to move into at the same time we find a buyer for our current home is stressful. Really hoping we don’t end up having to live in a motel or something in between!

Too many mountains to climb?

mountains
Have you ever felt like the odds are always against you? Like you overcome one hurdle, just to have several more obstacles thrown in your path? That is how I’m feeling tonight. I know that we all have our mountains to climb and that life is full of ups and downs for everyone. But, what do you do when that mountain before you multiplies and becomes an entire range before your very eyes? Do you give up? Walk away? Or do you press on and start climbing anyway?

I guess you could say that right now I am at the base of a growing mountain range, trying to figure out if it is worth the effort to keep going or if I should just say “to heck with it all”, go home and become a hermit. I was pretty resilient back when there were just a few issues to overcome in my life (sensory issues, social problems, obsessive interests and the other stuff we high-functioning autistics deal with on a daily basis). I’ve always been stubborn and determined to show that I could do anything I set my mind to. Naysayers didn’t hold me back, they just made me determined to prove them wrong. However, it seems that the older I get, the more there is to overcome and frankly, it makes me tired and want to give up sometimes. My Asperger’s traits that I have had since birth are compounded by anxiety and depression (brought on partly from genetics and partly from a lifetime of feeling rejected and “weird” by people who either didn’t understand or didn’t care to understand my differences).

I also deal with a lot of confusion about my place in the world. I know I am intelligent and talented in some areas, but I am often at a loss as to how to turn those qualities into practical, useful occupations. If I really did what I wanted to, I would sit and read all day, write down my random thoughts and feelings, doodle, put puzzles together, color pictures, dance and play with kids. I’ve had people suggest teaching and even tried it in the past, however, I don’t really want to be the adult watching the kids or telling them what to do. Instead, I want to play with them as equals, which is really kind of downright strange at my age, but apparently a somewhat common trait among Aspies (many of us hate being in charge of anyone else, we just want to be independent to do our own thing).

Of course, to top it all off, there are medical issues. I don’t want to go into it all because I would probably bore you and sound like I’m whining, but between my autoimmune problems, chronic infections and chronic inflammatory conditions, sometimes life is pretty painful. Add that to my physical hypersensitivity and you have a recipe for disaster. It’s no wonder that sometimes it is a struggle to even get out of bed.

I know that people always say that God won’t give you more than you can handle and in theory that sounds great…but sometimes I feel like I am just being buried alive by the weight of this world and my own internal struggles. I know that I will keep forcing myself to go on and keep trying to climb that next mountain, even if I fall a million times, because that is the kind of stubborn person I am. But, honestly, the enthusiasm isn’t always there and life sometimes feels like drudgery. I just hope that someday I can look back and see that I actually got somewhere, because some days it feels like I’m losing ground instead of gaining it.