I am currently a high-strung mess. As my SSDI hearing looms nearer and nearer, I find myself obsessing way too much over it and almost panicking about the fact that I feel powerless over what will happen in the end. I am trying to do absolutely everything I can think of to prepare for it and make sure we have good medical documentation especially, but that in itself is stressing me out because it means having to be assertive and ask for things from my physicians which I despise having to do. I HATE having to ask ANYONE for ANYTHING. It is just the way I am, but sometimes you have to do the things you hate…
I do not do well when I feel like I am not in control of a situation. My anxiety can’t handle the uncertainty and the endless waiting. I would almost rather deal with the worst case scenario immediately rather than be in limbo for months waiting for someone else to decide my fate. On top of that, I feel like I am annoying those around me (lawyer office employees, doctors, my poor husband) because of my intense anxiety state. I talked to a paralegal today and she told me to take a deep breath and relax lol. If only I could! I can do the deep breath, but the relaxing part just ain’t kicking in.
The heightened stress is taking a physical toll too, as it always does. My upper back/shoulder/neck area is flaring again to the point that I am regularly rolling on Lidocaine and had to take some Tramadol. The pain is so bad I can’t do any household tasks, which makes me feel bad too. Even typing this is painful and requires frequent breaks.
Now I feel like my whining is probably annoying all of you too lol. Sorry if that is the case, but I just needed to vent!
Lovers Movie Night
By: Maranda Russell
He leans over to grab a magazine.
“People like you are so annoying,”
she sniffs disdainfully.
“People like me?”
he asks as he reclines back
and settles in to read.
Soon, he feels a tiny foot
wiggle over to nudge his shin.
“Why pay to see the movie then?”
with a deeply pained sigh.
“I hate you.”
I’ve always been fascinated by secret societies and any organizations that tend to have “secret teachings”. The Freemasons specifically have always been an object of curiosity for me. I have always been tempted to join the Freemasons and work my way up the 33 degrees of their Scottish Rite path, because I would love to know what they actually teach for myself. However, because I am a woman and have a vagina instead of a penis, that isn’t allowed.
I knew that Freemasons have a history of excluding women, but wasn’t sure where they stood today, so I reached out to our local Freemason branch to see if they have any programs for women and received this in reply:
“We do not allow women to join our fraternity. We have always been a fraternity which, by definition, is for men only.
There are so-called “co-masonic” groups which you could research on the web. But we are not in any way related to those groups nor do we recognize them as Freemasons.”
How can a religious group with so much influence and power in our world entirely exclude women? This isn’t just some little college fraternity – look into the history of the Freemasons and see their influence and scope! This organization was enormously influential in the formation of our country and many of their symbols reside on our money and other government institutions to this day! They claim to possess important esoteric knowledge, and yet refuse to share any of that with half of the human species?
I hope this doesn’t seem petty or stupid to you guys, but it seriously annoys me. I know other religions are sexist. In the Catholic church, a woman still can’t be a priest (although they should rethink that, perhaps women priests wouldn’t molest all the altar boys), but at least they allow women to be Catholics in the first place!
I found out recently that my Social Security Disability (SSDI) hearing has been set for February 2019. When I found this out, I contacted my attorney’s office to ask for a copy of my medical records since I honestly don’t even know what all is in them other than what my doctors have told me and what little is available on the online portals. I was rather shocked when they told me that they could give me the physical health records, but it is a HIPAA violation to allow me to see my complete mental health records.
To be honest, this bothered me. I’m not allowed to see some of my own mental health records? This doesn’t seem right to me. Maybe I could understand if I were violent or a real danger to others and they feared me getting pissed at what the doctors wrote and trying to harm them or something, but the closest I’ve ever come to violence is just having a meltdown and yelling at someone because I was overwhelmed (normally this has only happened at work places when I was put under a lot of pressure). Even yelling is pretty rare for me though. I am much more likely to just burst into tears, lock myself in the bathroom, or try to get away from the situation by finding another “safe” area where I can be alone.
Am I alone in being frustrated by the seemingly patronizing system hiding my own truth from me? Who else deserves to know my doctors’ real, honest perception of me more than myself? I’m not a child. I can handle knowing what my doctors really think of me and maybe knowing those things would help me in my own personal growth.
By: Maranda Russell
Why do I feel like
my poetry sucks?
I try to write,
only to find myself
poured out like milk
and starting to
By: Maranda Russell
and clenched fists
accompany defiant eyes.
I have high expectations
but I avoid them all.
Sick in the stomach,
sick in the head,
sick of this life.
I would cry,
but I never
penciled it in today.
I want to begin this post by sharing a horrible dream I had last night. I was sitting in row G of a live outdoor show (my dreams are pretty specific sometimes), when someone behind me threw up all over my head. It was disgusting! I still remember the smell and feel of the vomit as it trickled down my face and hair. Ick! By the way, how do you “smell” things in a dream? I don’t know, but I sure did!
Ok, now that I got that off my chest, on to the main topic of this post. I am frustrated with doctors. Why? Because time and time again, I have had to fight to get testing that I feel is important, because many doctors tend to think I am just being a hypochondriac or overly anxious when I tell them I suspect a particular diagnosis.
However, time and time again, I have been proven RIGHT when I finally got the testing. C Diff, MRSA, medication allergies, asthma, CFS, fibromyalgia, costochondritis, pancreatitis, Aspergers, bipolar…all of these are conditions I highly suspected long before I actually got diagnosed, and yet, I had to fight to even get them checked out because doctors thought I was just being paranoid.
The most recent testing I am fighting for is Ehlers Danlos (EDS). I meet the major and most of the minor criteria for the condition, but have been fighting to even get a referral for testing. EDS is often comorbid with high-functioning autism, so that is what first made me interested in the condition. I am positive I score at least 6 or 7 out of 9 on the Beighton Score (higher on the Brighton Score).
I guess I can sum up this post in one sentence: Why is it so damn hard to get a simple test done???
Yesterday was a weird day. I started feeling hypomanic (probably because of my psychiatrist upping my antidepressant again). Even though I was already feeling restless and off, I decided to go ahead and go with my husband to our weekly meditation group. Turns out that wasn’t the best idea. Have you ever tried meditating or even just sitting still in the dark for 30 minutes while hypomanic? STRESSFUL.
I didn’t outwardly spaz out or draw attention to myself, but I sure felt like it. My head was buzzing with what felt like a million thoughts and feelings, and my body wanted to get up and run around the room. I wanted to scream, but of course I didn’t want to make a scene and freak everyone out, so I screamed on the inside. By the time it was over, I felt like a nervous wreck.
As we were leaving, I told my husband what was going on and how much I had struggled, but I’m pretty sure he didn’t really get it, because a few minutes later he sort of sent me over the edge a bit. We stopped at the Chick-fil-A drive-thru to get some ice cream, and I became pretty agitated because there were two lanes and the one we joined took FOREVER. People who joined the other line after we got there had gotten their food and driven off BEFORE we ever got to order! Normally this kind of thing wouldn’t bother me so much, but in the state of mind I was in, it was infuriating.
My husband tried to distract me and cheer me up by being playful and sort of tickling/poking me. Normally this would make me laugh, but with all my senses already on overdrive and feeling angry, I screamed at him to stop and smacked his hand away. It was a huge overreaction and I felt bad afterwards, but I simply couldn’t help it. The rest of the drive home I could tell he was not sure how to act and that made me feel even worse.
Today I’m feeling more normal again, but we’ll see how it goes once I take my medication…
I’ve been feeling like shit for a few days now (honestly, it has been longer than that, but the last few days were especially bad). So, my creative side has definitely been expressing that. I decided to make a couple ACEO sticker collages, and as you can see below, my mood comes across loud and clear with my black graffiti scrawls on the colorful backgrounds. I wouldn’t exactly call it “good art”, but it is expressive.