Feeling Low After Lawyer Visit

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Today has been a rough day 😦 I had to get up early to go to an appointment with my lawyer to talk about my upcoming SSDI hearing in February. I woke up feeling exhausted, achy, and sick to begin with, my stomach and digestive system freaking out from the anxiety of the change in routine as they always do.

The meeting went ok, I suppose. The lawyer seems really nice and genuine, but the whole thing depressed me. For one thing, it isn’t easy to have everything that is wrong with you physically and mentally just laid out on the table for everyone to see. It isn’t fun facing the reality of my own limitations and self-perceived flaws. I know I can’t help having mental and physical issues, but it SUCKS to have to dwell on them and think about them more than I already do normally.

The lawyer wants me to try to get my doctors to fill out some forms to take to the hearing and that gives me high anxiety. I hate having to ask anyone to do anything, it is just the way I am. I have a deep fear of rejection. What if they say “no” when I ask them to fill out the forms? Then I will feel even lower than I already do. I know my doctors are caring people who try to help me and they will probably be more than willing to help, but my brain just can’t shut off the “what ifs”.

I came home from the lawyer visit, cried for a little bit, then crashed for a few hours in bed. I still feel like absolute crud, but am trying to get back into my normal routine. I am desperately in need of some self-love and comfort right now, but that isn’t easy for me to do.

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YA Book Review: “Without Tess” by Marcella Pixley

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“Without Tess”, written by Marcella Pixley, is one of the best YA novels I have read in a while. I rarely give books five stars when rating them, but this one I did. The story revolves around the main character (Lizzie), and her dead sister (Tess). Lizzie is the younger sister by a couple years and was only 10 when her older sister tragically passed away.

The real star of the novel is Tess. As you read through the book and relive vibrant memories Lizzie shared with Tess, you come to both love and sometimes dislike Tess. Tess was a true believer in magic. She was creative and passionate. She was both loving and loyal, but at times cruel and violent. She was mentally ill, and at times downright psychotic. This novel is a lifelike retelling of what it is like to grow up with an extremely mentally ill sibling. It addresses the love, the hate, the sadness, the pain, the rage, the guilt, and all the other emotions that come along with such a disturbing family dynamic.

I had a deeply personal connection with this book, both as someone who grew up with a mentally ill sibling, and someone who eventually lost that sibling, mostly due to that mental illness. At one point the book even made me tear up, which is extremely rare for any book to do. Definitely recommended!

Dream Analysis: Fear of Death

 

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My Spyder

Last night I had an interesting dream. In the dream, there was a big snake loose in our house and I was trying to stay as far away from it as I could because I feared getting bit. Every time I would see it somewhere, I would run to another room. Then, the dream took an unexpected turn when the snake attacked my cat, Spyder. Spyder has been my baby since the day he came home to us and has been with us almost 12 years.

When I realized the snake was attacking Spyder in the dream, I was suddenly like “HELL NO!!!” and I ran into the room with a small sword (that suddenly appeared out of nowhere) and I cut that snake’s head clean off! I was suddenly as brave as an Amazon warrior, or like a mother bear defending her cubs.

When I woke up today, I was trying to decode this dream a bit, and I think what I was actually dreaming about was the fear of death. Just last night I was talking to someone about the short spans our pets live and about how my last two cats died around the same age Spyder is now. I think the snake symbolized death coming to take a loved one from me, and while I clearly have a self-preservation instinct and a healthy fear of my own death, that fear pales in comparison to the terror I feel at losing a loved one.

I Have Autism, and I Yearn to Feel I Belong

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This may be a post that is hard for neurotypicals to relate to – I’m honestly not sure. But, as someone who has high-functioning autism (Aspergers), I find that I have always had a deep internal yearning for something that I don’t know how to get or how to keep – and that is a true sense of belonging. I have had fleeting moments of feeling like I belong in a group. Lunches with friends at school, days at work where I laughed along with the others and felt like part of the gang, or even last year, when I was hospitalized and briefly came to feel at home among the other patients.

But none of these lasted. The very next day, or even the next hour, I could easily be feeling like an outsider again, like someone with their nose pressed to the window, watching the motion and activity inside with longing. Even among friends, it was often clear that I was “the weird one”, the one that was sometimes liked, but never completely understood. I often felt like I was an alien being in a foreign world, and sometimes I still feel that way.

Now, since I don’t have to attend work or school outside of my home, I am not forced into regular contact with others and the chances of feeling a part of a group are even less likely to occur. I can go out and seek groups, and sometimes do, but I never really end up feeling a part of them. I am not a cog in the gears of a greater machine, I am a spare part left on the table.

The best way I know to describe the yearning inside is to share the first few lines from the theme song to the old tv show, Cheers:

Sometimes you want to go
Where everybody knows your name
And they’re always glad you came
You want to be where you can see
The troubles are all the same
You want to be where where everybody knows your name

That is what I want, but realistically, I could hang out at a bar EVERY SINGLE DAY and I’d be lucky if anyone learned my name…and I can’t help but feel that is my own fault. I’ve seen others who can walk into a place and in a few minutes, they are no longer a stranger to anyone. It is almost like a magical ability, and is clearly one I’ll never have.

Journal Writings from a Severe Depressive Episode

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Once in a while I share intimate writings from my journal, from times when I was severely depressed. I don’t do this to get sympathy, but because I hope to educate people who haven’t experienced depression themselves to get even a glimpse of the mental torture you undergo when extremely depressed. I hope sharing might help reduce the stigma and the judgmental attitudes that persist in the face of major depression. So, here goes:

“Why is it that I am screaming on the inside, and yet my voice is mute? Not a peep must pass these lips. I am invisible, even as I am seen.”

“I had to get out. I had to leave. Repeating “I’m ok”, over and over to myself, wasn’t working. I couldn’t breathe, or maybe I didn’t want to any longer. My entire body shook, even as I threw on clothes and grabbed the car keys. I’m still shaking now.”

“I’ve lost it. My composure, my hope, my perception of living. I no longer know if I even exist. No one else seems to see me either.”

“As I walk down the road, tears streaming down my face, a ribbon dangles from my journal, suspended not by wind but by movement. I should tuck it in, but I want to look unkempt. Let the outside, even my props, match the inner disarray.”

“The question asks itself, am I sad or just spoiled? Do I put this on? Is it a show? Do I want to appear unhinged? Is this for attention, and if so, why do I fail so miserably even at that, as it is made clear that nobody sees me?”

*You might notice a pattern in many of these writings, a feeling of invisibility, of not being seen, and not feeling like I matter. As the last quote shows, I even wonder if I am crying out for the attention that I don’t know how to get. Perhaps this aspect is tied to the social limitations of being autistic and suffering from severe social anxiety disorder? I wondered if others who are not autistic or socially anxious feel these same things when depressed, or if it is just me?

By the way, BetterHelp has some great resources on depression as well, so check them out!

 

Poetic Art #3 – We All Fall Down

I’m not feeling too well right now due to one of my wisdom teeth hurting pretty bad, but I wanted to share another of my recent art/poetry drawings. Lately I’ve had an uptick of sales on my art and I truly appreciate it! Thank you so much to all those who support me that way!

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“I once had a name,
had a home, had a life.
But the winds swept thru
like they always do,
and I lost it all
at that trumpet call.
And their voices sound,
spinning round and round,
till we all fall down.”

You can find this drawing and other artworks of mine for sale at my Ebay store!

When Non-Profits Only Care About the Money

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On Facebook I shared a post about some tax changes that are being made to churches and non-profit institutions. The debate that started, made me think about my own experience working for a non-profit organization and I wanted to share a little bit of that here. For around 6 months or so, I worked for a non-profit religious hospital system. My job was to be one of the people in the emergency department who collected patient information (especially insurance information) and processed payments.

From the beginning, it was drilled into us that it was about the money. We were hounded to make sure we collected certain percentages of money from patients while they were still there in the building, whether they could afford it or not. We were encouraged to apply pressure to them to pay at least a percentage that day, regardless of their personal circumstances. Although patients could legally ask to be billed later, we were told to NEVER tell them that, and only offer that option if they brought it up first.

We were told bluntly that the hospital had to make sure to look like they were doing enough “public outreach” to keep their non-profit tax status, so when they did run public assistance programs we were told to advertise them when talking to patients. It became clear that they didn’t necessarily do programs for the poor because they CARED about them, it was so they could continue to get the tax breaks and other non-profit advantages. I heard so much negative talk there about Medicaid patients and the poor. I was also told flat out that the company was purposefully looking into opening more locations in areas where the people were more likely to pay, and closing locations where the populations were poorer.

One huge issue I had was that even when someone was brought to the ER and died, we were pressured to try to get money from their grieving relatives. More than once, those in charge actually chose not to tell family members that their loved one had passed away until AFTER we collected insurance information and copays/deductible payments. They would send us in, and we would know the family’s loved one was gone, but we were told to lie and pretend we knew nothing. This killed me to have to do. One time a lady begged me for information on her husband who was dead, and I couldn’t tell her anything. I also struggled to go up to a mother whose child has just tried to commit suicide and ask her for money. I felt like scum.

In the end, I couldn’t keep this job due to my own health issues, but I couldn’t have kept doing it with a clear conscience either.

Weekend Life Update: Depression, Meditation, Politics

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I am currently experiencing a real downturn mood-wise, but I’m going to try to write a life update post anyhow. I tried to write a blog post yesterday, but was simply to depressed to complete it. Today I’m just going to sum up a few things that went on this last week, so hopefully, I will get something done today.

  • This past Wednesday, my husband and I tried out a new meditation group (new to us anyhow). I haven’t meditated in months at least, and it felt good to “get back in the saddle” so to say. Even though I don’t find that meditation is all that great at relieving my anxiety and depression symptoms overall, it does at least give me some perspective and allow me to step back a bit when I am feeling my worst and realize that it will pass if I just wait it out. That awareness is definitely beneficial to keeping myself on this earth when part of me wants to check out.
  • My blog post about not being a social media doormat really became popular! I guess many others struggle with all the bullies and haters that tend to hang out on popular social media platforms. Glad to see I’m not alone in this experience.
  • Today I am taking my bike and aerobics trampoline to sell them to a used sports equipment store. I have had to face the fact that I am not physically healthy enough to use them anymore and they are just taking up space. Hopefully someone else will get some use out of them. It is a bit depressing though to just give up.
  • I am so disgusted by American politics right now. I am disgusted with Trump. I am disgusted with his blindly loyal followers. I am disgusted by those on the left that display blatant hypocrisy and pretend to be “the opposition”, but are just as sold out to big money and corporation interests. I am disgusted by all the pointless warfare my country perpetuates. I am disgusted by the news media that twists everything and often outright lies.  I am disgusted by the lack of empathy many people have towards anyone who is different from them. I am disgusted by the fearmongering and scapegoating. I am disgusted that in the richest country on earth, Flint, MI still doesn’t have clean water, and much of Puerto Rico still doesn’t have power. I am disgusted that 40 million Americans don’t have health care and that 40% of the country can’t afford basic necessities like food and shelter. I am disgusted that conditions have deteriorated to the point that suicide rates have risen 30% since 1999. I am simply disgusted and feel powerless to help.

Dysfunctional Family: My Mom Married My High School Friend

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Ok, so in the past I already wrote a more serious post about the trauma I experienced when my mom ended up marrying the first guy I ever brought home (read it here). He was a friend of mine, two years older, going to the same high school. They got married on his 18th birthday, so there I was, 15-16, going to school WITH my new “step-dad”.

Yesterday, while my husband and I were out driving, I talked about how isolated I feel in dealing with the after-effects of this whole ordeal. I can find plenty of people who have experienced other things I have gone through or live with (autism, bipolar, chronic pain/illness, loss of a sibling to suicide, loss of a parent at a young age, physical and emotional abuse, etc.), but I have never ONCE found someone who understands the public humiliation and the just outright fucked-up-ness of their parent MARRYING a friend that they go to high school with (and even considered dating at one time)!

Maybe I would have to visit the Jerry Springer show to find something similar. I feel like no one understands how this whole event derailed my life severely at the time. I went from being a straight A, college bound honor student, to skipping school more than I went, and not caring about much of anything. It was a horrible time in my life. To make matters worse, when my mom’s messed up marriage finally blew up, it was shortly after I got married (at the age of 20), and since she had no resources of her own, I felt like I had to take her in, which was not an easy decision for a newlywed to make, especially given the messed up history between my mom and me.

I’m not sharing all this to look for pity, but more in the hopes that maybe someone, somewhere, has gone through something similar and could make me feel less alone. I think this whole ordeal made me feel like a real freak at the time it happened, and never finding anyone who could relate only reinforced that feeling.

*By the way, if you are looking for online therapy options, BetterHelp is a great place to start!