The last week has been rather rough. Healthwise, I seem to be having some immune system issues. For some reason, I have gotten sores all over my gums and strangely, under my tongue. They aren’t like regular canker sores, they are more like little painful little red balls and swollen, ulcerated patches. I’m not sure exactly what they are, although while looking around online, I did find forums full of people with CFS and fibromyalgia who have experienced similar outbreaks, so I am guessing maybe it is related to that.
Unfortunately, the sores that are near the back of my jaw are causing an immense amount of ear pain, to the point that it feels like an ear infection. I was also running a low grade fever last night, which makes me think it is some kind of virus or infection causing the sores. I am taking some antivirals suggested by the doctor, but they don’t seem to be helping at all and are only serving to make me nauseated on top of everything else.
Today I was supposed to go to a birthday picnic for one of my husband’s coworkers, but I simply didn’t feel up to it. I feel bad for letting him down because I know he really wanted me to go so that I could get to know his friends better, but socializing is the absolute last thing I feel like doing right now.
All of this has me rather depressed and feeling lethargic. It feels like ever since I overdid it on our mini vacation to Kentucky, my health has taken a nosedive and is struggling to recover. That is what many people don’t understand about CFS, that once you trigger a relapse, it can take weeks to get back to “normal”…and our “normal” is far below average to start with! Chronic pain and chronic illness are no joke and make for a rough life sometimes.
Lately I have been really struggling with the temptation to go “no contact” with someone who has been abusive to me throughout my life in different ways. If you follow my blog closely, you can probably guess who I might be talking about. I did manage about a year ago to get some physical distance from this person, which helped a lot, but I still have such feelings of dread, sadness, anger, hurt, and despair whenever I hear from them (or more consistently lately, when I am ignored by them).
I know my therapist would probably do a happy dance if I decided to go “no contact” with this person. They won’t say so outright, but it is clear to me that they see that the relationship is not conducive to my healing. The last time I saw my therapist, she asked me what I was getting out of hanging onto the relationship…and I couldn’t really say. Other than hurt and frustration, I’m not sure I’m getting much at all.
However, I can’t help but feel that if I totally disengage with this person, it will cause me to feel guilty and fearful. Guilty because I was groomed from a young age to feel responsible for this person and to be their caretaker. Additionally, I feel guilt about what my other family members might think. The fear would mostly be due to the fear of confrontation, whether in person or through more passive-aggressive avenues. The thought of letting go also plays on my fear of being all alone and unloved.
I met an art snob yesterday. People like that really get to me. I understand that views of what is “good” or “bad” art are very subjective, and everyone has the right to their own opinion on the matter, regardless of whether others agree or not. However, when I meet someone who believes that their personal views on art are perfect and they refuse to even allow room for argument or debate, it makes me frustrated and honestly makes me want to never talk to them about art again.
I feel much the same way about music snobs. Like most people, I have definite preferences when it comes to music, and there are artists and bands I personally find much more talented and introspective than others, but I never understood the need many seem to have to “shame” others for their musical tastes. I have eclectic musical tastes myself, just a few days ago I was in a Marilyn Manson mood, and then the very next day I was popping in a Carpenters cd. But if I suddenly want to listen to 90’s boy bands, Katy Perry, or the Hannah Montana soundtrack, I’m going to do so without feeling guilty.
Last night I had a really bad panic attack. The situation that triggered it is a complicated one that has me feeling rather torn in half. As I have probably mentioned before, my husband is a special education teacher. He is extremely devoted to his work and his students and loves what he does. This past Monday, he found out that one of his prior students, a girl who is now 19, needs a place to stay. My husband would like for us to take her in. I am really conflicted about it.
My husband and I used to do foster care, so I’m not unfamiliar with taking in strangers and looking after them, but the reason we had to quit foster care was my deteriorating health. That worries me about taking in a new, adult person who has both emotional and developmental issues. It also worries me because we recently downsized into a much, much smaller house and the autistic side of me is deeply worried about having no privacy or time alone which is essential to my well-being. Plus, I don’t know where we will move all the stuff that is now in the extra room.
On the other hand, I do feel deeply for this girl who has been through A LOT. My heart aches for anyone who already struggles with physical or mental disabilities and then has to add the weight of being abandoned or alone. She is living my worst nightmare in many ways and I can’t help but feel compassion for her. However, having never met her myself, I also worry about whether we would be a good fit or not. Often, that is something you just can’t tell until you live together, and if we do take her in, there is a good chance we would need to keep her at least a couple years until she graduates school and is moved into some form of independent living housing.
I feel so conflicted and anxious.
I recently came across the following quote by philosopher Soren Kierkegaard, and it really struck me as deeply true, at least for me. No matter what I choose to do or choose not to do in life, there is always a part of me that wonders if I made the right choice and won’t shut up with the “what ifs”:
“Marry, and you will regret it; don’t marry, you will also regret it; marry or don’t marry, you will regret it either way. Laugh at the world’s foolishness, you will regret it; weep over it, you will regret that too; laugh at the world’s foolishness or weep over it, you will regret both. Believe a woman, you will regret it; believe her not, you will also regret it… Hang yourself, you will regret it; do not hang yourself, and you will regret that too; hang yourself or don’t hang yourself, you’ll regret it either way; whether you hang yourself or do not hang yourself, you will regret both. This, gentlemen, is the essence of all philosophy.”
Tonight was a bad night. The pain, isolation, and despair came crashing down so hard and fast that I crawled off the couch and collapsed onto the carpet, on my side, in a loose fetal position and just wept. I gripped the beige carpet fibers in my fingers and pulled as the tears pooled below my cheek. I pinched myself. I aimlessly pummeled the floor. The anger exploded in that way it always does, boomeranging right back into myself. I considered my options. All the ways it could end. The option of reaching out for help. The feeling that grasping for that help would only inconvenience others. After all, my husband has to work tomorrow, he needs his sleep. I can’t take the car, who would bring it back to him?
Eventually, I made my way outside. Hoping the cold would numb it all. I walked on the icy, wet grass and then took a seat on the deck stairs. Soon my feet were frozen numb, and my body curled inward, instinctively seeking to conserve its heat, even as I wished that I could bear it long enough to freeze. Dark thoughts of black toes breaking off soon made hypothermia a less attractive ending. If only it were like a Jack London novel, a slow nodding off into warm, cozy whiteness.
Eventually, I found myself back where I started, on the couch, hoping to find comfort on electronic waves, here in the place where lost things seem to gather in today’s society. I soon stumbled across someone else crying and hugging a giant stuffed giraffe and it soothed the edges just a little. Now, I can only hope tomorrow is brighter.
“Fighting Back from the Inside” drawing by Maranda Russell
Written by: Maranda Russell
I took fear by the hand
and shook him until I heard
the sound of his yellow bones
popping in and out of place.
I pushed him down the stairs,
his skull cracking
against the white, stone steps
on his way to the finale.
He hit the basement floor,
his form a worthless gray lump,
emitting the mocking voices
no muzzle can silence.
Still, I must close the door
at least one more time
and pretend not to hear.
So I do.