This past week has been a digestive nightmare. I went to the doctor last week about my recent migraine issues and we also discussed the worsening of my IBS. I used to have IBS-D (diarrhea), but lucky me switched over a few years to IBS-C (constipation). It is an ongoing issue that is made worse whenever I have to take a lot of painkillers and certain other medications (like many of the ones I take for migraines and the symptoms they bring on).
Before you ask, I do all the stuff you are supposed to do. High fiber, prunes, stool softeners, milk of magnesia, walking, gentle yoga, and I’ve tried other things like Miralax which I didn’t like and didn’t work well for me. So anyhow, the doctor put me on Linzess, which is a medicine made specifically for IBS-C.
The first day I took it, it worked well for what it was supposed to do, but it also gave me a high fever, horrible all-day nausea, extreme dizziness, stomach and bowel pain, and fighting off vomiting. At the doctor’s recommendation, I quit taking it. We are scheduling another appointment to discuss other options. So since then it was another 4 days of bad constipation and then I took an OTC laxative because I couldn’t take it anymore and when I took that it caused another day of nausea, dizziness, stomach pain, and wanting to vomit (none of which is normal for me with an OTC laxative). At least I didn’t have a fever this time.
Now I’m staring to worry maybe something more is wrong than just the IBS. I hope not, but I generally know how my body reacts to things, and it worries me when that changes.
I didn’t post the last couple days because I’ve been sick. At first I thought I was having an adverse reaction to hemp seed oil, which I decided to try for the first time Friday. I was hoping it would help my chronic pain issues, but within a few hours of taking it, I developed a horrible headache (almost migraine level) and then became really nauseated and felt like throwing up all night.
However, yesterday I made sure not to take the oil again and I still had a rough day with nausea and other stomach issues, so I’m not sure if an adverse reaction could last that long or if maybe I just had a stomach bug or something. I hope it wasn’t the hemp seed oil, because if that makes me sick, I would worry that medical marijuana might do the same, which I am still hoping to try if I can get my Ohio prescription card.
The really sucky thing about Ohio’s medical marijuana program is that they only approve certain doctors to prescribe it and it sounds like you have to go through certain organizations to get approved….organizations that do NOT take any kind of insurance and charge a couple hundred bucks just for your first visit. Almost seems like a scam in some ways. I’m doubting you can use insurance on the prescriptions themselves with a system like that, but I’m not sure. So honestly, I don’t know if I can afford medical marijuana 😦
As for my possible adverse reaction, I think it worries me even more because my mom always told me that she could never smoke weed because it gave her migraines and made her physically ill. I was hoping I didn’t inherit whatever it is that caused that reaction in her, but now I’m worried maybe I did. It would suck to spend all that money on a medical marijuana card and then find out it made me feel worse.
Ugh. Turns out we have to replace the entire water heater. Over $1,800 (which we can’t afford)! This seriously sucks. To make matters worse, the guy couldn’t put the new one in until today, so we had to go all day and night without any water at all (they had to shut it off entirely due to the enormous leak). The guy said he would be here around 11am to put in the new water heater and it is now 12:30 and no sign of him yet, although he says he’ll be here soon.
Due to all this I am grumpy and feeling yucky and just want to whine lol. I can’t even flush the toilet!!! I know this may seem crazy to non-autistic people, but the huge change in my daily routine has driven me freaking crazy and brought on a nasty IBS flare. God, I hope this is over soon.
This seems like a good time to remind everyone that I do have a PayPal donation button set up on my blog if anyone ever wants to send a few bucks to help out or support my blog. You can donate any amount and don’t even have to have a PayPal account of your own. You can find the button on the right side panel of my blog home page, or access it through the Support My Blog page. If you are able to help out, that is great, but if you aren’t, your kind thoughts and well wishes mean the world to me.
Today has been a rough day 😦 I had to get up early to go to an appointment with my lawyer to talk about my upcoming SSDI hearing in February. I woke up feeling exhausted, achy, and sick to begin with, my stomach and digestive system freaking out from the anxiety of the change in routine as they always do.
The meeting went ok, I suppose. The lawyer seems really nice and genuine, but the whole thing depressed me. For one thing, it isn’t easy to have everything that is wrong with you physically and mentally just laid out on the table for everyone to see. It isn’t fun facing the reality of my own limitations and self-perceived flaws. I know I can’t help having mental and physical issues, but it SUCKS to have to dwell on them and think about them more than I already do normally.
The lawyer wants me to try to get my doctors to fill out some forms to take to the hearing and that gives me high anxiety. I hate having to ask anyone to do anything, it is just the way I am. I have a deep fear of rejection. What if they say “no” when I ask them to fill out the forms? Then I will feel even lower than I already do. I know my doctors are caring people who try to help me and they will probably be more than willing to help, but my brain just can’t shut off the “what ifs”.
I came home from the lawyer visit, cried for a little bit, then crashed for a few hours in bed. I still feel like absolute crud, but am trying to get back into my normal routine. I am desperately in need of some self-love and comfort right now, but that isn’t easy for me to do.
A few of you seemed like you wanted an update about how my husband’s birthday party went yesterday (if you didn’t read my post yesterday, you can find it here). Most of the really bad nerves happened before the party and on the way there, which is pretty normal for me. I had an IBS attack about a half hour before leaving the house (nausea, diarrhea, cramps – the whole shebang). On the drive to the party, I noticed my right leg was shaking pretty bad (a sure sign of anxiety), which made driving even more uncomfortable.
However, once I arrived at the school, it didn’t go too bad. Checking in at the front office wasn’t nearly as scary as I had imagined, although the receptionist was kind of grumpy. They had me stay in the office until the party was ready, as they wanted to surprise my husband. When they were ready, I joined the kids in my husband’s class and his assistants on their way back to the classroom from music class. We all got to my husband’s classroom and sang Happy Birthday to him and had some cupcakes. There was a ton of other food there as well – a huge assortment of candy, an amazing cream cheese peanut butter cake, chocolate covered pretzels, chips and salsa, and more.
Meeting my husband’s assistants (and a few other school employees) went ok. They were nice and friendly, although I did feel pretty shy. I had to ask my husband a few times if they were kidding or not when they said certain things, because I genuinely have a hard time deciphering whether people I don’t know well are being sarcastic or for real when they talk. One of the highlights of the party was meeting one student’s therapy dog. Meeting people fills me with anxiety, but meeting animals is always pure joy! I also got a couple hugs from my husband’s students, which was sweet.
After the party I was definitely relieved to get back home, but proud that I went. I know it meant a lot to my husband, so it was worth it.
Hello everyone! I don’t want to bore you all with the continuing mini-drama of my wisdom tooth surgery aftermath, but I know many of you genuinely want to know how I’m doing, so I decided to do another update, this time I’ll just bullet-list what has been going on the past few days:
Wednesday I went to the dentist in the morning, where he did indeed diagnose me with dry socket. He cleaned out the area and then put a clove oil soaked material in there. It didn’t hurt much when he did that, but the incredibly strong taste of the cloves made me horribly nauseated the rest of the day and made everything taste disgusting. It was so strong, my husband could smell the cloves across the room when I had my mouth shut!
The clove stuff did eliminate most of the pain for a couple days, but this morning (Friday), that awful deep, throbbing ache has returned off and on. I do have more clove oil I bought, but the scent alone of it makes me so sick, I honestly don’t want to use it. Right now I am trying to get by taking the maximum amount of Ibuprofen and Tylenol, while occasionally using Ambesol to numb the area.
I do still have opioids left, and it is extremely tempting to use them, but I took them so much the first few days after the surgery that my bowels have become clogged pipes 😦 I hope that isn’t TMI, but it is a common side effect of opioids, and when you already have IBS like I do, I think you are even more prone to stuff like that. I have been taking stool softeners like crazy, eating mushy prunes, and even broke out a little Exlax, but nothing yet.
By the way, I forgot to mention that after I got home from the dentist on Wednesday, the blood clot on my other lower socket became dislodged and lost, so now I technically have TWO dry sockets. That was SO frustrating! If it was going to come out that day, why couldn’t it do so BEFORE I visited the dentist? Luckily, that side does seem to be a bit further along in healing, so it isn’t as painful overall as the other side, but it is still annoying.
I have also been running a fever off and on, which seems a bit concerning considering the amount of Ibuprofen and Tylenol I am taking. You would think that would knock out any fever. I can tell right away when I am running a fever because I will get these intense sweats, and become even more nauseated and dizzy than I am already. Most of the last few days I have had to spend flat on my back most of the time due to that dizziness and nausea.
Well, that pretty much covers the last few days. I hope this is over soon. I appreciate all the concern and comments you guys have been leaving. It means a lot to me when I am feeling so poorly, even if I don’t feel well enough to write long comments back.
What I thought was an IBS attack might actually be a bug or food poisoning or something else. This is the third day straight now I’ve been feeling sick to my stomach and having bowel issues, so it seems much longer than my typical IBS attacks in length. Due to that, I’ve had a rather lazy and boring weekend. I was intending to go to a mental health support group today but didn’t feel up to it and ended up actually sleeping through at least half of it since I didn’t get up until almost 2pm.
Sometimes when I talk about stuff like this it is almost embarrassing lol. I can’t help but imagine old men and women who talk about their daily bowel habits. I promise I’ll try to not make it a daily conversation, but it is part of living with chronic illness and it sucks if you have never experienced chronic digestive issues. Even if I do get an actual stomach bug or something like that, it seems that it takes much longer to get over it now that I have digestive issues anyhow.
One thing that sucked was that my husband went for a walk in the park without me because I was sick and he saw an owl! One of my favorite animals, and a rare one to sight in the daylight 😦 I guess at least he got a picture:
I obviously felt jealous since I dreamed last night that I found a mama owl and her babies in a tree. I guess I had to one-up him 🙂 Unfortunately, I pissed off the mama owl and she attacked me in the dream.