Today I’m feeling about as old as Bugs and Daffy look in this picture I colored a while ago. I’m only 35 years old, but it often feels like I am much older physically, thanks to the chronic fatigue syndrome and fibromyalgia. My husband currently has the flu and when he was telling me how bad his body aches and fatigue were, I couldn’t help but think that I’d never be able to tell the difference from my everyday body aches and fatigue. In fact, with my chronic ear and sinus infections, the only way I ever know for sure if I actually get a virus is if I am running a high fever. Otherwise, I figure it is just my normal daily crud I have to deal with.
Sometimes it is easy to forget what it was like to NOT feel sick all the time or hurt constantly. I can’t even imagine living without it all now. I’ve become so used to the routine that I’ve accepted it in a sense and admitted defeat in my own mind. That is likely not a good thing, considering that I feel I’ve lost all hope to ever feel healthy again. I’m not writing this today to try to illicit sympathy or just to whine, but it is what I’m thinking about and dealing with, so I felt it only honest to share. If you are a fellow sufferer, let me tell you that I am truly sorry you have to go through all this as well.
I finally have a car again! Since April of last year, my husband and I have only had one car between us. During the summer it wasn’t so bad because he doesn’t work, but when he returned to his position as a special education teacher this year, I started really getting feelings of being trapped at home and desperately wanting to get out, even if it was simply to run an errand or two or people watch (one of my favorite past-times).
We started looking for a car a few weeks ago, using some money I had earned from writing and some savings we had socked away. We only had around $2,000-$3,000 dollars, so we were definitely working on a budget. We finally found a good, reliable used car last week and bought it, but we weren’t able to drive it until yesterday since we had to wait to get the plates and make sure our insurance was covering it now.
So now I have a car again! I don’t plan to go out and do a lot (my health prevents that) but I can run down to the local post office, library, dollar stores, and McDonald’s myself now! Of course, we live out in the country, so there isn’t a ton of stuff to do within a few miles, but hey, something to do is better than nothing! Due to my health problems, I try not to drive more than 10-15 minutes away from home (I never know when the fatigue may worsen, IBS may flare up, or vertigo may strike), but at least I am feeling a bit more free and able to do things for myself!
It seems that there is this stereotype about Bipolar patients not wanting to take their medicine or stopping medicine without consulting a doctor. However, like most stereotypes, perhaps there is some truth to it. I personally have Bipolar type 2 and often find myself wondering, “Do I really need these medications?” or “Are these medications actually helping or hurting me?”. Why do I wonder this? Mostly due to negative side effects. I can’t help but wonder sometimes if the cure isn’t worse than the disease at times. Weight gain, acne, digestive problems, being pushed further into depression or hypomania, anxiety, jitters, uncontrollable muscle spasms, irritability, crying spells, etc. Sometimes I really do wonder if I wasn’t better off before.
And about consulting a doctor before stopping meds, in my case at least, my psychiatrist is only able to see patients once every few months due to the shortage of psychiatrists in the area. He is EXTREMELY busy. It is unlikely I will hear from him in the interim, even if I have a question. Of course I can speak to his office staff, but that isn’t the same as actually speaking to a doctor. And even if I were to call and tell the office staff I wanted to stop taking the medicine, likely they would just request I wait until my next appointment, which may be months away. If the medicine is truly causing side effects I can’t stand or making me feel worse, why would I want to endure that for months before making a change?
I am not writing this post to encourage anyone to go off their meds or anything like that. I believe strongly in listening to medical advice, but I wanted to explain to those who are outside of the Bipolar loop why this can often become a legitimate issue. And no, right now I am not stopping my own meds, but I have been tempted many times, which makes me sympathetic to those who have.
I think the title is pretty self-explanatory as to what the video below is about. Just wanted to share. It is a part of my life, a part of who I am.
Hello everyone! So today I’m sharing a book review vlog video I made yesterday. For anyone who has Chronic Fatigue Syndrome, Fibromyalgia, or similar chronic illness, or who has a special interest in those subjects, this book might be something you would want to check out! If you have already read the book, let me know your thoughts!
I found parts of this book truly fascinating. Who knew that you could even have a stroke that completely shut down one half of your brain but left the other half functioning normally? Think you are truly left brained or right brained? Find out for sure here!
I’ve been dreading this for years. I knew when I chose to have so many cats that I would someday likely have to make a decision about whether to artificially extend one of your lives or try to save you from enduring unnecessary pain. Even so, when the decision had to be made, it was no easier, even though I had said for years that I would rather have to put one of you down than to see you suffer needlessly. This is the first time I have had such power over the life or death of a loved one and I hope it will be the last, although I know it probably won’t.
To be honest, you have been kind of a pain in the butt for most of your life. As a kitten you were a holy terror who had amazing powers of destruction. As an adult, you were a grumpy, angry cat who would often give a warning bite when petted the wrong way (pretty much anywhere but around the head). You were fun to tease because your reaction would be over the top within seconds. All I had to do was walk within a couple feet of you and you would start growling in annoyance. You were definitely the alpha male in this house and constantly reminded us of that fact. You reminded everyone of a regal lion, both in dignity and in your attitude of entitlement.
As we sat in the veterinary emergency room, making a decision about your fate, one of the vet techs came in and told us what a sweetheart you were. We laughed and said “she really doesn’t know you well, does she?” The fact that anyone would think that, told us how very sick you were. To be seen as cooperative and mellow just wasn’t in your nature. As I looked into your sad, blank face with tears running down my own cheeks, I knew I had to let you go. If we fought to keep you alive, you would have been miserable. I know you would have hated the long hospitalization, frequent medical procedures and forced medication.
Even had we went ahead with the treatment, the vet was blunt about the fact that you had six months at most to live and even that was highly unlikely. He told us the cost of treatment in dollars and that was certainly something that would have been a struggle for us, but the true cost to us was the misery we knew we would have to put you through just to keep you with us a bit longer. In good conscience, I couldn’t do that to you, because regardless of how mean and grumpy you could be, I love you with all my heart.
I admire your straightforward, take-no-crap attitude and the fact that you were never afraid to be yourself and stare any enemy down. I admire your intelligence…Einstein was definitely a fitting name for you. I loved the precious moments when you would be uncharacteristically loving and sweet (mostly when you were sucking up or asking for something). I think of you every time I open the door and you aren’t there trying to sneak out. It is these things, these precious memories that I will carry with me now that you are gone. I love you and miss you. Goodbye, my sweet Steiner.