I wish you could see
the spectre of depression
haunting my days…
dragging his knuckles
through the miry muck
and leaving a trail
of icy numbness behind.
(Poetry by Maranda Russell, marandarussell.com)
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illness
My Four Day Migraine – Ouch!
Well, my one-day migraine from Wednesday turned into a four-day migraine that I finally had to go to the emergency room to get rid of this morning. They pumped me full of a bunch of drugs that did take the worst of it away, although I must admit I’m scared it will come back once those wear off. They did give me a steroid shot to help stop rebound migraines, so hopefully that will work.
I’m exhausted and somewhat depressed about the whole situation. I went at least a couple years with barely any migraines and then this just pops up out of nowhere. I can’t help but think part of it might be all the stress about my upcoming SSDI hearing. I try not to consciously think about it, but that doesn’t work so well for obsessive minds like mine.
I’m sure you guys understand that this will be a short post since I’m not feeling too great, but here is a picture of an extremely ugly, grumpy stuffed lion for you to enjoy:
Another Fun Visit to the ER
I spent yesterday in the ER. Always lots of fun. I was rather freaked out because I literally couldn’t swallow at times and felt like I was going to choke to death or something. I also was having chest pains, trouble breathing, and feeling like I was going to pass out. Now I get to go back to the GI doctor because they think there are probably issues with damage to my esophagus.
Still not feeling much better today. They put me on some meds that are supposed to protect and hopefully help repair damage done to the esophagus, but no relief yet. I still struggle to swallow, keep coughing, and feel like there is something permanently stuck in my throat. Eating and drinking is no fun, even the smoothie I tried to drink earlier struggled to go down. My chest, especially around my breastbone feels like there is an elephant sitting on it. Man, this sucks.
Spiral of Anxiety and Fear
I am feeling so incredibly stressed about my upcoming SSDI hearing and everything related to it. It has become an obsessive thought pattern that I can’t get out of. This always happens when something I am super nervous or scared about is looming on the horizon. My mind is a circular track of “what ifs”, incessant thoughts about things I need to do, fears that I will make a mistake and blow my last chance for SSDI benefits, and fear that if I fail and am denied again, it will once again send me into a suicidal spiral of feeling worthless, disbelieved, and like I will forever be a burden to society and those I love.
Tomorrow I have to ask my psychologist to fill out a RFC (Residual Functional Capacity) form for the hearing. I think she will be open to it and want to help, but I am still anxious about asking and scared of rejection. I have to ask my primary care physician to fill out a similar form when I see her next week, and am even more nervous about that because I know she is often rushed and I don’t want to be an inconvenience or annoy anyone by making demands.
As you can see, I struggle greatly with asking anyone to do anything for me. I’m not sure if it is just my lousy self-esteem or what, but I always feel like anything I need is an imposition on someone else. Maybe the result of being raised by a narcissistic parent? Growing up, I often was made to feel like anything I needed (emotionally or physically) was selfish and inconvenient to those around me. To this day, I struggle with feeling like I am actually entitled to anything – even basic human respect.
I think my fear of being disbelieved about my disabilities also stems from the fact that when I first started getting really sick, even my own husband and family didn’t believe me. My husband came around first, when he saw how much I truly was suffering every day and how even the things I loved most were being ripped away from me. He has even apologized for his initial doubts. Some of my family (including in-laws) still make me feel invalidated, but I’ve come to the conclusion I can’t do much about that.
Feeling Low After Lawyer Visit
Today has been a rough day 😦 I had to get up early to go to an appointment with my lawyer to talk about my upcoming SSDI hearing in February. I woke up feeling exhausted, achy, and sick to begin with, my stomach and digestive system freaking out from the anxiety of the change in routine as they always do.
The meeting went ok, I suppose. The lawyer seems really nice and genuine, but the whole thing depressed me. For one thing, it isn’t easy to have everything that is wrong with you physically and mentally just laid out on the table for everyone to see. It isn’t fun facing the reality of my own limitations and self-perceived flaws. I know I can’t help having mental and physical issues, but it SUCKS to have to dwell on them and think about them more than I already do normally.
The lawyer wants me to try to get my doctors to fill out some forms to take to the hearing and that gives me high anxiety. I hate having to ask anyone to do anything, it is just the way I am. I have a deep fear of rejection. What if they say “no” when I ask them to fill out the forms? Then I will feel even lower than I already do. I know my doctors are caring people who try to help me and they will probably be more than willing to help, but my brain just can’t shut off the “what ifs”.
I came home from the lawyer visit, cried for a little bit, then crashed for a few hours in bed. I still feel like absolute crud, but am trying to get back into my normal routine. I am desperately in need of some self-love and comfort right now, but that isn’t easy for me to do.
Kanye West is Bipolar?
A couple days ago, I was watching Kanye West’s “interview” in the White House Oval Office with Donald Trump. I must admit I mostly wanted to watch it just to see what kind of crazy stuff Kanye would come up with. To be frank, he has always seemed a little like a loose cannon, even back in the days when he announced that George W. Bush didn’t care about black people, or when he interrupted Taylor Swift during her award speech to say that Beyonce should have won.
However, when I heard Kanye say during his recent interview that he had been diagnosed bipolar, suddenly, a lot of things clicked into place. I hadn’t really thought of it before, but Kanye does come across as highly manic in his speech sometimes, especially when he is all worked up about things and causes a scene. He definitely seems to have pressured speech (his words just flow out everywhere and in every direction), and I recognize flight of ideas as well (his train of thought is often hard to follow, he shares his thoughts in a way that definitely isn’t always linear or seemingly coherent). Kanye often appears paranoid during these times as well.
I heard that after the interview, Kanye was asked about the bipolar diagnosis and said something along the lines that he thought he was misdiagnosed or he had somehow been cured (contradictory thoughts together). Even this reminds me of manic episodes, after all, what is more predictable than someone with bipolar denying their disease or refusing treatment when in the throes of mania?
Anyhow, my main point is that as someone who has bipolar type 2 myself, I do have empathy for whatever Kanye is dealing with mentally, even if I don’t agree with some of his bizarre or outlandish statements.
Bronchitis (Again!) and Short Bits of Blackout Poetry
I’ve come down with another nasty case of bronchitis, so I’m taking it easy, hoping the antibiotics kick in soon, and putting together bits of loosely created blackout poetry (using some magazines and comics I’ve read lately). Here are a few of these creative little bits:
1)
Not a single one
became a hugely successful
project,
save the seals, coins,
and animal bones.
2)
The result
of a terrible illegality
controls
a large new stairway
down
to the mounds of holy dirt.
3)
To arms!
To the ramparts!
To let me nap in peace.
4)
The pin
is mightier
than the sword –
if gouged
into thine eye.
These bits of poetry are short, random, and sometimes a bit nonsensical, but I enjoy playing with language, and even the most ambiguous ones have a sort of language musicality to me.
Medication Nausea and Dry Sockets – Wisdom Teeth Removal Update
I was pretty lucky the first couple days after my wisdom teeth surgery, so I was hoping for smooth sailing all the way…but I am running into some issues now. For one thing, the combination of antibiotics, pain killers, and NSAIDS started causing a good amount of nausea the last couple days. I often feel like throwing up, although I have been able to refrain from actually vomiting so far. I have suffered from emetophobia (fear of throwing up) almost my entire life, so I fight tooth and nail against it, but sometimes it can’t be stopped.
I am also starting to highly suspect that the tooth they took out on the left side of my jaw might be developing dry socket. There isn’t a blood clot in sight on that side and all you can really see is a big empty space with what looks like a little bit of bone sticking through at the bottom. I am trying to follow all the directions for recovery, including using a special mouthwash and doing warm salt water rinses, but the salt water is definitely making the nausea worse.
So, to sum it all up….I’m feeling pretty miserable today. My jaw is still sore, my ears are now aching as well, and it almost feels like it is getting harder to eat rather than easier. I’m trying to not let it get me down, but I am a little bummed that complications seem to be arising. I know if I wait it out, even the dry socket should resolve itself within 7-10 days, but that sounds like a long time right now.
In Case I am MIA Soon
Hi everyone! I wanted to write a short post just to say that I might be MIA this weekend (and maybe longer, who knows?) because I am having wisdom teeth surgery tomorrow. The teeth are impacted and oddly placed, so unfortunately, it isn’t expected to be a simple tooth-pulling operation (which definitely shows in how much I have to pay for it lol). Thank goodness they put you out for it!
I’m sure I will be fine, but as those of you with chronic illness/pain know, nothing is ever easy when you have autoimmune issues and inflammatory conditions that crop up every time your body is put under any kind of stress. I am hoping it won’t lead to a major flareup of my fibromyalgia or CFS, but I am preparing for the worst just in case.
I hope you guys will keep me in your thoughts and prayers (if you do that kind of thing). I could definitely use some positive energy sent my way!
