I spent yesterday in the ER. Always lots of fun. I was rather freaked out because I literally couldn’t swallow at times and felt like I was going to choke to death or something. I also was having chest pains, trouble breathing, and feeling like I was going to pass out. Now I get to go back to the GI doctor because they think there are probably issues with damage to my esophagus.
Still not feeling much better today. They put me on some meds that are supposed to protect and hopefully help repair damage done to the esophagus, but no relief yet. I still struggle to swallow, keep coughing, and feel like there is something permanently stuck in my throat. Eating and drinking is no fun, even the smoothie I tried to drink earlier struggled to go down. My chest, especially around my breastbone feels like there is an elephant sitting on it. Man, this sucks.
I am feeling so incredibly stressed about my upcoming SSDI hearing and everything related to it. It has become an obsessive thought pattern that I can’t get out of. This always happens when something I am super nervous or scared about is looming on the horizon. My mind is a circular track of “what ifs”, incessant thoughts about things I need to do, fears that I will make a mistake and blow my last chance for SSDI benefits, and fear that if I fail and am denied again, it will once again send me into a suicidal spiral of feeling worthless, disbelieved, and like I will forever be a burden to society and those I love.
Tomorrow I have to ask my psychologist to fill out a RFC (Residual Functional Capacity) form for the hearing. I think she will be open to it and want to help, but I am still anxious about asking and scared of rejection. I have to ask my primary care physician to fill out a similar form when I see her next week, and am even more nervous about that because I know she is often rushed and I don’t want to be an inconvenience or annoy anyone by making demands.
As you can see, I struggle greatly with asking anyone to do anything for me. I’m not sure if it is just my lousy self-esteem or what, but I always feel like anything I need is an imposition on someone else. Maybe the result of being raised by a narcissistic parent? Growing up, I often was made to feel like anything I needed (emotionally or physically) was selfish and inconvenient to those around me. To this day, I struggle with feeling like I am actually entitled to anything – even basic human respect.
I think my fear of being disbelieved about my disabilities also stems from the fact that when I first started getting really sick, even my own husband and family didn’t believe me. My husband came around first, when he saw how much I truly was suffering every day and how even the things I loved most were being ripped away from me. He has even apologized for his initial doubts. Some of my family (including in-laws) still make me feel invalidated, but I’ve come to the conclusion I can’t do much about that.
Today has been a rough day 😦 I had to get up early to go to an appointment with my lawyer to talk about my upcoming SSDI hearing in February. I woke up feeling exhausted, achy, and sick to begin with, my stomach and digestive system freaking out from the anxiety of the change in routine as they always do.
The meeting went ok, I suppose. The lawyer seems really nice and genuine, but the whole thing depressed me. For one thing, it isn’t easy to have everything that is wrong with you physically and mentally just laid out on the table for everyone to see. It isn’t fun facing the reality of my own limitations and self-perceived flaws. I know I can’t help having mental and physical issues, but it SUCKS to have to dwell on them and think about them more than I already do normally.
The lawyer wants me to try to get my doctors to fill out some forms to take to the hearing and that gives me high anxiety. I hate having to ask anyone to do anything, it is just the way I am. I have a deep fear of rejection. What if they say “no” when I ask them to fill out the forms? Then I will feel even lower than I already do. I know my doctors are caring people who try to help me and they will probably be more than willing to help, but my brain just can’t shut off the “what ifs”.
I came home from the lawyer visit, cried for a little bit, then crashed for a few hours in bed. I still feel like absolute crud, but am trying to get back into my normal routine. I am desperately in need of some self-love and comfort right now, but that isn’t easy for me to do.
A couple days ago, I was watching Kanye West’s “interview” in the White House Oval Office with Donald Trump. I must admit I mostly wanted to watch it just to see what kind of crazy stuff Kanye would come up with. To be frank, he has always seemed a little like a loose cannon, even back in the days when he announced that George W. Bush didn’t care about black people, or when he interrupted Taylor Swift during her award speech to say that Beyonce should have won.
However, when I heard Kanye say during his recent interview that he had been diagnosed bipolar, suddenly, a lot of things clicked into place. I hadn’t really thought of it before, but Kanye does come across as highly manic in his speech sometimes, especially when he is all worked up about things and causes a scene. He definitely seems to have pressured speech (his words just flow out everywhere and in every direction), and I recognize flight of ideas as well (his train of thought is often hard to follow, he shares his thoughts in a way that definitely isn’t always linear or seemingly coherent). Kanye often appears paranoid during these times as well.
I heard that after the interview, Kanye was asked about the bipolar diagnosis and said something along the lines that he thought he was misdiagnosed or he had somehow been cured (contradictory thoughts together). Even this reminds me of manic episodes, after all, what is more predictable than someone with bipolar denying their disease or refusing treatment when in the throes of mania?
Anyhow, my main point is that as someone who has bipolar type 2 myself, I do have empathy for whatever Kanye is dealing with mentally, even if I don’t agree with some of his bizarre or outlandish statements.
I’ve come down with another nasty case of bronchitis, so I’m taking it easy, hoping the antibiotics kick in soon, and putting together bits of loosely created blackout poetry (using some magazines and comics I’ve read lately). Here are a few of these creative little bits:
Not a single one
became a hugely successful
save the seals, coins,
and animal bones.
of a terrible illegality
a large new stairway
to the mounds of holy dirt.
To the ramparts!
To let me nap in peace.
than the sword –
into thine eye.
These bits of poetry are short, random, and sometimes a bit nonsensical, but I enjoy playing with language, and even the most ambiguous ones have a sort of language musicality to me.
I was pretty lucky the first couple days after my wisdom teeth surgery, so I was hoping for smooth sailing all the way…but I am running into some issues now. For one thing, the combination of antibiotics, pain killers, and NSAIDS started causing a good amount of nausea the last couple days. I often feel like throwing up, although I have been able to refrain from actually vomiting so far. I have suffered from emetophobia (fear of throwing up) almost my entire life, so I fight tooth and nail against it, but sometimes it can’t be stopped.
I am also starting to highly suspect that the tooth they took out on the left side of my jaw might be developing dry socket. There isn’t a blood clot in sight on that side and all you can really see is a big empty space with what looks like a little bit of bone sticking through at the bottom. I am trying to follow all the directions for recovery, including using a special mouthwash and doing warm salt water rinses, but the salt water is definitely making the nausea worse.
So, to sum it all up….I’m feeling pretty miserable today. My jaw is still sore, my ears are now aching as well, and it almost feels like it is getting harder to eat rather than easier. I’m trying to not let it get me down, but I am a little bummed that complications seem to be arising. I know if I wait it out, even the dry socket should resolve itself within 7-10 days, but that sounds like a long time right now.
Hi everyone! I wanted to write a short post just to say that I might be MIA this weekend (and maybe longer, who knows?) because I am having wisdom teeth surgery tomorrow. The teeth are impacted and oddly placed, so unfortunately, it isn’t expected to be a simple tooth-pulling operation (which definitely shows in how much I have to pay for it lol). Thank goodness they put you out for it!
I’m sure I will be fine, but as those of you with chronic illness/pain know, nothing is ever easy when you have autoimmune issues and inflammatory conditions that crop up every time your body is put under any kind of stress. I am hoping it won’t lead to a major flareup of my fibromyalgia or CFS, but I am preparing for the worst just in case.
I hope you guys will keep me in your thoughts and prayers (if you do that kind of thing). I could definitely use some positive energy sent my way!
Not long ago I had an infected wisdom tooth, so unfortunately, the surgery I have been putting off to get my wisdom teeth out is now more of a necessity. I am scared shitless, and I’m not even sure why.
I keep telling myself it is a minor surgery. Outpatient even. I’ll go, get them out, come home, and likely crash for a few days. Then hopefully it will all be behind me. The teeth are impacted, which makes the surgery more complex, but I will be put out for the operation, so I’m not sure why I am so panic-stricken at the idea of having to do this.
To make matters worse, the first appointment I could make to get it done isn’t until the end of August, so I have an entire month to keep freaking myself out. I keep trying to distract myself or think positive thoughts, but I feel such a sense of dread that I just can’t shake, and it is making me spiral into a depression as well.
I did the typical Aspie thing, and tried to make myself feel better by finding as much information as I could about the procedure to lessen the anxiety, but it hasn’t helped much. I could quote you stats of all the risk factors (and ways to prevent them), draw you a diagram of the procedure, or explain step by step what will be done, but it isn’t helping me to let it go.
Maybe this is my OCD coming out in full force (an inability to NOT fixate on something I wish I wasn’t thinking about at all), or maybe it is just the anxiety of the unknown, since I have never had surgery of any kind before or been put out for any kind of operation…but I wish my brain would just shut the hell up about it! I’m sure my poor husband would find that a relief too since he has to deal with his basket case wife for the next month 😦
I went to the doctor today because my ear is still killing me and I’ve been running a fever for several days. Turns out I have another middle ear infection…this has to be about the sixth one in six months. Boy, am I getting tired of this. Not much I can do either, since I have tried many “alternative medicine” cures for ear and sinus infections and have went the whole ENT and allergy specialist route, only to find that nothing really works. In the end, I feel like it is just my own immune system working against me.
The doctor also said that she suspects the mouth sores I was dealing with might have been related to Coxsackie Virus (or Hand, Foot, and Mouth Disease). Adults don’t catch that illness nearly as often as kids do, but it can happen, and with my autoimmune issues, I guess it wouldn’t surprise me to find out I did get it.
So, I am on ANOTHER course of antibiotics. Something that depresses me to no end because I fear with all the antibiotics I have had to take lately that I may end up developing C Diff again, which caused me to be hospitalized for almost a week a few years ago. Needless to say, I am not in a good place physically or mentally and am just tired of it all. This chronic illness shit sucks.