I’m still struggling with migraines, but am starting to think that they might actually be cervicogenic headaches (caused by issues in the neck). The last few days, the left side of my neck has been visibly swollen and extremely tight, causing a great deal of pain. I can’t help but notice that the worse the neck pain is, the worse the headaches, nausea, dizziness, and fatigue become as well.
One person on Facebook who also suffers from Ehlers Danlos even suggested that perhaps the migraines may be due to a chiari malformation or craniocervical instability, which are both common issues associated with Ehlers Danlos Syndrome. I have wondered about the neck instability possibility, as I often feel like my head is excessively heavy, not supported well by my neck, and sometimes bobbles around almost like a bobblehead. Whenever I sit for long, I have to have a neck rest because my pain worsens quickly if I have to hold my head up without support.
Unfortunately, it looks like if instability is the issue, the answer might be this huge, horribly-uncomfortable-looking neck brace that looks like it would be sensory hell for me. Of course, I do know from a prior MRI that I also have degenerative disc disease throughout my cervical and thoracic spine, and at least a couple herniated cervical discs. Whatever the issue, I wish it would clear up soon! This is miserable and I feel like I am living on NSAIDS, muscle relaxers, and Lidocaine right now.
Hello everyone! Lately I have implemented a few things into my life that I do feel are helping my depression and chronic pain symptoms, at least to an extent. No, I am not cured, and I still have some really bad days, but I feel like these small changes have been for the better, so I wanted to share:
- My psychiatrist has been trying to get me to take Omega-3 supplements for months now, and I finally decided to make sure I actually take them on a regular basis. I have been trying to take 2 supplement pills a day, one in the morning and one at night. It is supposed to be really good for depression and inflammation, so it is worth a try. I don’t like the taste or how huge the pills are to swallow, but I am making it work anyways.
- I have read multiple places that people with fibromyalgia are almost always lacking in Magnesium when tested, so I started taking a daily supplement of that as well. I do think it has lessened the severity of the body aches and cramps I experience on a daily basis. I also started taking a Vitamin C supplement in hopes it will help boost my immune system and prevent some of the chronic ear infections I have. I am trying to eat healthier, more natural foods too.
- I have started practicing mediation on a regular basis again. I try to take at least a few minutes most days to meditate, focus on positivity, and allow the spiritual side of myself to shine. My husband and I have also been attending a once-a-week meditation group when we are able to. Having that time to connect with others on their own spiritual paths has been helpful. They all seem to be very open-minded and open-hearted individuals, which are the kind of people I would like to have in my life more.
- Lately I have renewed my dedication to my own creative process and have felt inspired to create art again, something I have definitely been missing in my life. I simply feel better when I can create beautiful or unusual artwork, even if others don’t always understand it. Honestly, I create for ME. Yes, I sell my artwork and it fills my heart with joy to know that others appreciate and collect my efforts, but deep down, I create simply because I need to express myself.
- Make it a priority to spend time with nature. Whether it is going to a park, hiking through the woods, sitting on a swing outside your own front door, or bringing plants, animals (pets), crystals, and other natural objects into your home, reconnecting with nature always seems to be healing and comforting for myself. Maybe it will be so for you as well.
Well, I’ve officially started allergy shots. Not long ago they conducted a skin allergy test on me to see if that might be contributing to my chronic ear/sinus/respiratory infections. They had already once run an allergy blood test on me (which showed I was only allergic to dogs), but they said the skin allergy test was more accurate and wanted to see what it read. So, I took a week off from all allergy medicines (which was awful in itself in many ways…and who knew that going off Zyrtec could cause withdrawal symptoms???), and then went for the allergy test.
They ended up poking me almost 100 times, checking various strengths of 27 different common allergens. By the time the lady had gotten to the third round of testing (around the 60th shot), I was really struggling to make it through. Fibromyalgia makes your pain response to anything worse anyhow, and getting stuck that many times can begin to feel like some kind of medieval torture device. By the end, my arms looked like cheese graters, with rows of holes all over them.
I waited a few minutes for the nurse to tally the results and found out I was allergic to 22 of the 27 things they tested for, which means 3 vials worth of shots that I’ll have to take for the next 3-5 years. While the ENT doctor does not think this alone is at the root of my chronic infections, she definitely thinks it could help.
The thing that frustrates me greatly is that I was tested for all this stuff by blood test a few years ago and it only showed ONE allergy! How in the world could the blood test be that inaccurate that it didn’t show one other allergen, when I am allergic to at least 21 other common allergens to the point that I need long-term treatment? I know for a fact many of the things I tested greatly allergic to in the skin test WERE also things they tested for in the blood test. In fact, for the skin test, I tested LESS allergic to dogs than many of the other allergens that didn’t show up at all in the blood test! How could the first test have been so inaccurate, and do physicians know exactly how inaccurate the test can be? If so, it sure would have been nice if someone would have told me back then. Maybe it could have helped prevent a few years’ worth of pain and suffering!
I’m curious, has anyone else had both tests and had such widely varying results? If so, did anyone ever explain to you why? I would sure like to know for myself.
Since I have openly talked about some of my health problems and how they affect my life, I have had a few people ask me how I developed the foot condition plantar fasciitis and why it limits the kind of jobs I can do. So, I decided to make a vlog video about the pain and problems related to plantar fasciitis and why the condition has greatly affected my personal and professional life. I didn’t make this video to whine or try to get sympathy, I just wanted to share my story in hopes that I can educate people about the condition and let anyone else going through similar problems know that they are not alone.