I have a lot of amazing talents (thank you, autism)…now, if only more of those remarkable abilities were marketable! Here is a list of things I am awesome at that I wish I could get paid to do:
- Sudoku Master
- Snake Spotter
- Hidden Pictures or Spot the Difference Finder
- LEGO put-together-er
- Build a Bear Expert (no, I do not want to work in the busy store, I just want to be paid for collecting/playing with Build a Bears and knowing a lot about the brand lol)
- Video Game Babysitter (I am awesome at babysitting on video games, I’ve gotten a promotion twice in the past week on my new Nintendo DS game)
- Online Medical Information Gatherer and Hypochondriac
- Dance Moms super-fan (I’m way too obsessed with that show)
- The ability to quote The Lion King (the original of course) from beginning to end – every spoken word, every song lyric.
- Cartoon character/toy identifier
- Unicorn admirer
Sorry I didn’t update you all yesterday after the hearing, but I was just too exhausted mentally, emotionally, and physically after the stress of the day. Overall, I think the hearing went ok. It didn’t start out very well since my husband and I had trouble locating the right building and ended up walking through the thick, slushy snow so far that I had an asthma attack, started crying, and was totally soaked from the knees down by the time we actually found the right building. The roads were bad too from the snowstorm and parking was almost impossible since none of the parking lots had been cleared yet.
Once we got into the building, I had a few minutes to recover from the asthma attack and calm down at least. I also had about 15 minutes to meet with my lawyer before the hearing to go over everything again. During the hearing itself, I was quite nervous. I was doing a lot of rocking back and forth (“stimming” in autistic terms).
I think I only had the nerve to look at the judge two or three times the entire hour I was in there. I mostly stared at the microphone and tried to block out everyone else there while answering questions. That seemed to help my social anxiety. I think I did a decent job answering the judges questions…and she asked a lot. I never lost control of myself, although in my closing remarks I did tear up a bit and got a little emotional talking about how hard it had become for me to keep a job due to my physical and mental disabilities.
Unfortunately, the judge did not tell me her decision yesterday. I will have to wait to receive the official verdict letter. On the positive side, my attorney did say afterwards that he thought it went great and even on the off chance that the judge gave a negative verdict, he thought I had a strong enough case that he would appeal that. I hope it doesn’t come to that though, God only knows how much longer that would make the whole thing drag out…and quite honestly, we need the money as soon as possible, especially since I just got a $1,500 ER bill (our deductible sucks).
You ever go to a doctor’s appointment and feel like you somehow disappointed them? That’s how I’m feeling today. I went to see my psychiatrist and while he didn’t say anything overly negative or mean, I just left with the feeling that somehow he was a little disappointed in me.
Perhaps I am projecting here, but I kind of feel like he isn’t quite as supportive as my other doctors about my going on SSDI. Not because he doesn’t think I have real problems and medical conditions, but because he seems to think I have a lot of potential and maybe he thinks if I get disability I’m just going to sit around and do nothing the rest of my life.
This may be partly my fault if he has that impression. After all, I don’t normally talk about all the stuff I do enjoy doing while there. I only see him every couple months for a short visit, so I tend to focus on what is going wrong, not what is going right. I don’t talk about all the art I make and sell or the books I write and sell. I don’t talk about my blogging. I don’t talk about all the people I correspond with on social media. I didn’t mention that I was recently made a board member on the International Board of Sensory Accessibility. I didn’t tell him about the art contest I submitted three artworks to this month. I don’t tell him about the online communities for chronic illness, chronic pain, autism, and other conditions that have given me a chance to support others and receive support myself.
I kind of wish I had mentioned some of those things now. Maybe next time.
On Facebook I shared a post about some tax changes that are being made to churches and non-profit institutions. The debate that started, made me think about my own experience working for a non-profit organization and I wanted to share a little bit of that here. For around 6 months or so, I worked for a non-profit religious hospital system. My job was to be one of the people in the emergency department who collected patient information (especially insurance information) and processed payments.
From the beginning, it was drilled into us that it was about the money. We were hounded to make sure we collected certain percentages of money from patients while they were still there in the building, whether they could afford it or not. We were encouraged to apply pressure to them to pay at least a percentage that day, regardless of their personal circumstances. Although patients could legally ask to be billed later, we were told to NEVER tell them that, and only offer that option if they brought it up first.
We were told bluntly that the hospital had to make sure to look like they were doing enough “public outreach” to keep their non-profit tax status, so when they did run public assistance programs we were told to advertise them when talking to patients. It became clear that they didn’t necessarily do programs for the poor because they CARED about them, it was so they could continue to get the tax breaks and other non-profit advantages. I heard so much negative talk there about Medicaid patients and the poor. I was also told flat out that the company was purposefully looking into opening more locations in areas where the people were more likely to pay, and closing locations where the populations were poorer.
One huge issue I had was that even when someone was brought to the ER and died, we were pressured to try to get money from their grieving relatives. More than once, those in charge actually chose not to tell family members that their loved one had passed away until AFTER we collected insurance information and copays/deductible payments. They would send us in, and we would know the family’s loved one was gone, but we were told to lie and pretend we knew nothing. This killed me to have to do. One time a lady begged me for information on her husband who was dead, and I couldn’t tell her anything. I also struggled to go up to a mother whose child has just tried to commit suicide and ask her for money. I felt like scum.
In the end, I couldn’t keep this job due to my own health issues, but I couldn’t have kept doing it with a clear conscience either.
I finally figured out how to set up a PayPal link here on WordPress! Please excuse my technological shortcomings, I’m not exactly the most efficient coder or anything like that.
Anyhow, if anyone would like to support my blog efforts, you can now donate any amount directly to my PayPal:
You can also access this PayPal link at any time on my website sidebar and the “Support My Blog” page.
I don’t expect a lot of donations, but if anyone does wish to help out it is definitely appreciated! Any money donated will most likely be applied to website maintenance fees (domain registration, WordPress account upgrades, etc.) If donations ever started regularly coming in, I would likely also try to invest in some advertising for the blog or use it for computer maintenance/repairs and stuff like that.
I’m at the point I think I’m going to have to make peace with the fact that my freelance writing career is over in many ways. Now, don’t get me wrong, I still plan to blog and do this kind of personal writing when able, but over the past years I also supplemented our income a bit by taking freelance writing gigs from various clients. I covered a wide variety of writing assignments: reviewing books, writing promotional materials and press releases, writing children’s books, editing and proofreading, and many other oddball writing jobs.
Now, I find I just can’t do it. Partly due to physical health conditions (particularly my back/neck pain, chronic fatigue syndrome, and fibromyalgia), but also due to my mental health conditions (depression, anxiety, bipolar type 2, etc.) Sometimes I’m not even sure which condition is really at fault. Is it the CFS making it almost impossible for me to get out of bed and function at all, or is that the depression? Is my back pain causing me anxiety, or are the panic attacks causing me to tighten up and the back pain to worsen? Which came first, the chicken or the egg? Much of the time, I really don’t know. But I do know I can’t go on like this forever, and I definitely can’t take the additional stress of taking on freelance writing jobs anymore.
* Art by Maranda Russell
Hi everyone! This is just a short post to share a recent video I made showing off some of my newest ACEO art trading card artworks (both those I make and sell and those I have collected from other artists!) I love the world of miniature art and hope others get into the hobby too! It is an affordable, space-saving way to collect and display original art! Lately I’ve really been into mixed media collage artwork, which I’m sure you can tell from the video:
Since I have openly talked about some of my health problems and how they affect my life, I have had a few people ask me how I developed the foot condition plantar fasciitis and why it limits the kind of jobs I can do. So, I decided to make a vlog video about the pain and problems related to plantar fasciitis and why the condition has greatly affected my personal and professional life. I didn’t make this video to whine or try to get sympathy, I just wanted to share my story in hopes that I can educate people about the condition and let anyone else going through similar problems know that they are not alone.
I know income inequality has become a sensitive issue somewhat with people on both sides arguing for their point of view. I don’t mind people having different feelings about the issue and what can or should be done about it. However, there are a few key things I just don’t get when it comes to the subject. I have heard many arguments that make absolutely no sense to me and would like to share my thoughts on them…
1) First off, I want to go ahead and tackle the elephant in the room when it comes to gender income inequality. I WILL NEVER understand why more women aren’t outraged at the politicians who fight against women making the same amount of money for the same exact work. The arguments I have heard from politicians who voted against this issue were weak at best. I do not see how paying women the same pay for the same exact work affects women who want more flexible schedules or who want to work part-time. You know, some men want flexible schedules and work part-time too….but that still has NOTHING to do with people getting the same pay for the same work and the same level of education, which is the real issue in the first place!
2) I have heard the argument many, many times that “people who flip burgers” shouldn’t expect to make a real living doing it. First off, let me say this argument tends to make people sound like real elitist jerks. Now, don’t get me wrong, I have no problem with people making more money for harder work or work that takes more education. That is fine, within reason. However, I truly believe that ANYONE who works a full time job should at least make enough for the absolute necessities (food, clothing, housing, health care). Yeah, maybe people who work entry level jobs can’t expect a whole lot more than that, but everyone should at least be able to survive and take care of their family if they are out working a full time job. By the way, I’ve had many different jobs over the years and some of the fast food restaurants I worked at were HARDER WORK than the variety of other jobs I have held, including those that are considered more skilled.
3) Why are the people who say that the poor are that way because they choose to be and are uneducated, often the very same people who do everything in their power to refuse help to those who want to pursue education but can’t afford it? If you truly believe that education is the way out of poverty, why vote for people who constantly cut funding for education in all its many capacities? If you believe education is the way out of the income inequality issue, then fund it! Realize that those living in poverty may not have access to the same educational funds you have. Loans of any kind are hard to get (and pay back) when your family lives in poverty. Also, many people struggle with the ridiculous interest on student loans even if they do manage to graduate and find a job in their field. I know this first hand since my husband has a Master’s Degree in education, landed a good job and still struggles to pay back his student loans (and we live exceptionally simple lives, I don’t even own a cell phone!).