I Froze My Butt Off at a Christmas Theme Park!

I’m feeling rough tonight, maybe because last night I went to a little Christmas-themed park and got really cold, which often tends to aggravate my CFS, Fibromyalgia, and Ehlers Danlos joint issues. I had a great time though and wanted to share a few fun pics of the night.

Here is me getting cozy with the Gingerbread Man:

49389755_2269143023120044_1111054193470210048_n

Who doesn’t love a big fire pit when it’s cold out?

48939829_2269143253120021_7193352042138566656_n

Here is some crazy guy climbing the giant Christmas tree (I’m guessing he wasn’t supposed to be doing that):

49019364_2269143193120027_4977273935310618624_n

Is it just me, or are these trees a bit spooky?

49124842_2269141853120161_686243148636094464_n

49245658_2269142869786726_2029941547138547712_n

Pretty lights on the water:

49174396_2269142246453455_1744421119256952832_n

Advertisements

Why Doctors Frustrate Me – Trying to Get Testing Done

upset-534103_960_720

I want to begin this post by sharing a horrible dream I had last night. I was sitting in row G of a live outdoor show (my dreams are pretty specific sometimes), when someone behind me threw up all over my head. It was disgusting! I still remember the smell and feel of the vomit as it trickled down my face and hair. Ick! By the way, how do you “smell” things in a dream? I don’t know, but I sure did!

Ok, now that I got that off my chest, on to the main topic of this post. I am frustrated with doctors. Why? Because time and time again, I have had to fight to get testing that I feel is important, because many doctors tend to think I am just being a hypochondriac or overly anxious when I tell them I suspect a particular diagnosis.

However, time and time again, I have been proven RIGHT when I finally got the testing. C Diff, MRSA, medication allergies, asthma, CFS, fibromyalgia, costochondritis, pancreatitis, Aspergers, bipolar…all of these are conditions I highly suspected long before I actually got diagnosed, and yet, I had to fight to even get them checked out because doctors thought I was just being paranoid.

The most recent testing I am fighting for is Ehlers Danlos (EDS). I meet the major and most of the minor criteria for the condition, but have been fighting to even get a referral for testing. EDS is often comorbid with high-functioning autism, so that is what first made me interested in the condition. I am positive I score at least 6 or 7 out of 9 on the Beighton Score (higher on the Brighton Score).

I guess I can sum up this post in one sentence: Why is it so damn hard to get a simple test done???

New Blog Theme, TMJ, and Being Silly for Halloween!

Hi everyone! First off, I want to say that I changed the theme (appearance) of my blog slightly. I don’t know if you all will notice or not, especially if you read most of my posts on WordPress’s reader function, but for those who actually visit my blog address, I hope you like the changes. I thought it was a bit more visually appealing, especially for sharing art and poetry, which I like to do.

Yesterday was the first day since my wisdom tooth surgery I was able to get out and have some fun. We didn’t do anything major, just went out to eat (still having to eat soft foods, so we opted for pasta), and did some Halloween shopping at Goodwill, where I decided to try on a couple “spooky” accessories:

40919591_2111167215584293_3067309318878527488_n

40765082_2111163382251343_2521331843555393536_n

It was fun just playing around and being goofy after being sick at home for so long. The surgery pain is much better, although I’m pretty sure that this whole ordeal has brought on a flare-up of TMJ (a jaw joint disorder), which I have had issues with in the past. It still hurts to open my mouth very wide, talk much, chew anything, or smile big.