It’s been a minute since I just did a life update, so let’s take a minute to do so! I’ll break it up into categories for ease:
Physical health – Thank God, the Topamax increase seems to have helped the migraines quite a bit. They aren’t gone entirely, but have been much better lately. Still having some digestive issues, so I’m seeing the GI doctor soon. We suspect Gastroparesis or some other motility disorder might be at play. I’ve already been following a gastroparesis diet and it has been helping my symptoms, but we won’t know till I get a test obviously. That condition is really common with Ehlers Danlos though.
Mental health – Uh, all over the place. Anxiety like crazy. Kinda hyper. Hard to concentrate and focus…that one has been a real pain lately. Even getting stuff like this done isn’t easy. My brain wants to go in fifty million directions, none of them what they are supposed to be doing. Depression too, but kind of medium level. Like just the blahs. Apathetic. Need constant positive stimuli to not start feeling blah again, but that isn’t reality, is it?
My writing – Finally, some good news!!! First off, I was contacted by a music professor at Central Washington University in Washington state who wants to use one of my poems to set to music for a project she and her colleagues and a few students are working on. They will compose music for the poem (for instrument and voice) and then put together a concert music video for it (because covid and all I assume) and it will be released in April. Of course, I will be credited for my part in the project, and will share the video when I can.
Also, I just got an email today that the educational resources website Twinkl has chosen my blog to be one of their Top Autism Blogs of 2020! They get pretty high traffic on their site, so it is quite an honor and I’m psyched about it!
I’ve been having a tough time lately mentally and physically. These constant migraines and stomach/digestive issues have really got me down. Sometimes I feel like life isn’t even worth it if every day is going to be like this. If you’ve ever had chronic, unrelenting migraines day after day, you probably understand how I feel.
I am trying hard to get this fixed or at least lessened and my doctors are trying different things, but nothing has come close to solving the issue yet. I feel like I’m just being dragged through each day and the only time I feel good is when I’m asleep.
This is my favorite time of year and I normally love to go out and do Halloween-ish or fall-ish things, so not being able to do so compounds my sadness. This weekend my husband has plans to take me several hours away for my birthday to see the Jack-o-lantern spectacular in Louisville, Kentucky. I want to go so bad and will try to go if at all possible, but I fear I won’t be able to if the health issues are acting up bad.
Luckily, the event is a drive-thru event, so I wouldn’t have to do much physically, but if I have a migraine or stomach issues, driving that far obviously wouldn’t be fun and would kind of spoil the weekend. Keep your fingers crossed for me!
I’ve had a really bad couple days. The day before yesterday I had a total meltdown because I couldn’t get a painting right. It was kind of the last straw, as I have been struggling terribly with irritability, anxiety, ocd, and anger lately. At first I thought it was just a phase or one of the mood swings that mood disorders bring, but it has lasted a long time now and I am starting to wonder if it has to do with the new med I have been put on (Lamictal). The irritability and worsening ocd definitely seem to have started as I began taking higher doses of the drug.
Yesterday all the anger, irritation, and anxiety turned into depression and I cried a lot, felt helpless and hopeless, and entertained some pretty dark thoughts. I was in one of those moods where I felt utterly worthless and felt that no one liked me or cared about me, I even felt like my husband was sick of me. That was probably projection as I’M sick of being around me in this state.
Today I’m a bit better (no crying yet), but still feeling low and exhausted. I haven’t been sleeping well lately at all, which isn’t helping. Just not in a good place right now.
Maybe it is the bipolar, but I tend to go through cycles where I stop taking my antidepressant or bipolar medicine because I start thinking either it doesn’t really work for me, I decide I would rather try natural alternatives, or I start thinking that the new agers are right and the pharmaceutical industry is trying to poison us all or trying to block or destroy our pineal gland with the medicine so that we can’t have real, meaningful spiritual experiences (or so that we can’t exercise any innate psychic powers – whatever they may be).
During these times, I do at least taper off. I’m not stupid. I don’t do the cold turkey thing. And honestly, I DON’T notice much of a difference with some of the meds, even after being off them for a month or more. However, I do notice a difference with the antidepressant and I notice it quickly. I’m not sure sometimes though if it is really the medicine or my fear of going off of it since I have taken antidepressants for YEARS and feel almost dependent on them at this point.
Anyone else experience anything like this cycle of suspicion, doubt, and desire to be off the psych meds for good?
Lately I have really been struggling with motivation to blog. Due to a depressive slump, I’ve been having trouble with the desire to do much of anything, but blogging especially has fallen by the wayside.
It makes me feel bad because I truly do appreciate this community and love the interaction I get with all of you, but when the whole world feels dark, it is hard to even try to reach for some light.
I’m not sure if my current state is just a continuation of the depression I was already feeling, or if it is worsened by gradually switching mood stabilizers (Seroquel to Lamictal), but I am hoping the situation improves soon. I have only been on the Lamictal since Monday and am only on the first dosage level, with at least two increases planned, so maybe my brain is just struggling to adjust.
I’m hoping my passion for blogging will return eventually, but for now, I’m trying to hang in there. If I’m not as active as usual, all of this stuff is probably why.
I had my first appointment with my new psychiatrist yesterday (my old doctor unexpectedly retired last month). Yesterday’s appointment had to be via video because of Covid. I was super anxious about it beforehand, not knowing what he was like or if we would be a good match. For a first visit, I would MUCH prefer an in-person appointment, but that wasn’t an option for now.
Fortunately, he seems caring and understanding and listened to me very well. I felt like he was trying hard to understand my situation and symptoms and that he took all of my concerns seriously. I guess I couldn’t ask for much more.
Because my anxiety and depression have both been bad lately, we are trying a new medication combo to see if that helps. I will no longer be taking the Seroquel and instead will be taking Lamictal. He is hoping I might be able to wean off the Prozac too if the new med works, since the antidepressants don’t seem to do much for me anymore (and if I take higher doses it tends to cause hypomanic symtoms).
Lamictal is known for not causing as much weight gain as other mood stabilizers, so I am all for that! I hope I won’t have many side effects from it, but we’ll see.
Here in Ohio, non-essential retail stores reopen today! I have been in a depressed funk this past week, so I plan to go out and try to cheer myself up. I know I want to go to the bookstore (bookstores, how I have missed you!) and probably Goodwill. Don’t worry, I will be cautious and try to maintain my distance from others, but I need to feel a bit of normalcy return to my life!
Honestly, I think I likely already had coronavirus a couple months ago anyhow, although I would need to be tested for the antibodies to know for sure. Of course, I have heard reports that you might be able to get it more than once, so still doesn’t hurt to be careful.
Hair salons reopen at the end of the week I think, and it will feel good to get my hair cut again. Funny how you miss little things like that when you can’t do them for a while.
What is going on where you live? Are you still under lockdown? Are things slowly opening back up? Do you plan to go back to normal activity if they do reopen?