I am feeling so incredibly stressed about my upcoming SSDI hearing and everything related to it. It has become an obsessive thought pattern that I can’t get out of. This always happens when something I am super nervous or scared about is looming on the horizon. My mind is a circular track of “what ifs”, incessant thoughts about things I need to do, fears that I will make a mistake and blow my last chance for SSDI benefits, and fear that if I fail and am denied again, it will once again send me into a suicidal spiral of feeling worthless, disbelieved, and like I will forever be a burden to society and those I love.
Tomorrow I have to ask my psychologist to fill out a RFC (Residual Functional Capacity) form for the hearing. I think she will be open to it and want to help, but I am still anxious about asking and scared of rejection. I have to ask my primary care physician to fill out a similar form when I see her next week, and am even more nervous about that because I know she is often rushed and I don’t want to be an inconvenience or annoy anyone by making demands.
As you can see, I struggle greatly with asking anyone to do anything for me. I’m not sure if it is just my lousy self-esteem or what, but I always feel like anything I need is an imposition on someone else. Maybe the result of being raised by a narcissistic parent? Growing up, I often was made to feel like anything I needed (emotionally or physically) was selfish and inconvenient to those around me. To this day, I struggle with feeling like I am actually entitled to anything – even basic human respect.
I think my fear of being disbelieved about my disabilities also stems from the fact that when I first started getting really sick, even my own husband and family didn’t believe me. My husband came around first, when he saw how much I truly was suffering every day and how even the things I loved most were being ripped away from me. He has even apologized for his initial doubts. Some of my family (including in-laws) still make me feel invalidated, but I’ve come to the conclusion I can’t do much about that.
This is a question I struggle with myself on a regular basis. Can abusers really ever change or is it just theater to try to pull you back in so they can mistreat you again? Should you ever let a prior abuser back into your life if they seem to have changed for the good?
None of these are easy questions and there are certainly many contributing factors that should be considered as well. Perhaps abusers who once had drug or alcohol addictions and have now gotten clean for a significant period of time will have changed enough to give them a second chance.
What about those who lived for years with undiagnosed, untreated mental illness and finally get the help they need? How much of the abuse was who they truly were and how much was the influence of the untreated mental illness? This scenario is one I personally have experienced to some extent with my own family. How much responsibility should they hold for the abuse, especially any times they may have actually dipped into psychosis?
I know many abusers find religion at some point in their lives and claim to have been completely changed. I must admit I am suspicious of this claim. Perhaps religion truly does change the hearts of some, but much of my personal experience has taught me that if someone is a bad person before they find religion, they will likely be a bad person after they find it. Superficialities may change, but does their behavior/attitude/actions?
Unfortunately, I have no real answers to the question of whether abusers can ever change, but I hope that they can. I would warn everyone to be cautious in extending an olive branch to anyone who has deliberately hurt you again and again, but I do understand the desire to believe in the power of change.
I found out recently that my Social Security Disability (SSDI) hearing has been set for February 2019. When I found this out, I contacted my attorney’s office to ask for a copy of my medical records since I honestly don’t even know what all is in them other than what my doctors have told me and what little is available on the online portals. I was rather shocked when they told me that they could give me the physical health records, but it is a HIPAA violation to allow me to see my complete mental health records.
To be honest, this bothered me. I’m not allowed to see some of my own mental health records? This doesn’t seem right to me. Maybe I could understand if I were violent or a real danger to others and they feared me getting pissed at what the doctors wrote and trying to harm them or something, but the closest I’ve ever come to violence is just having a meltdown and yelling at someone because I was overwhelmed (normally this has only happened at work places when I was put under a lot of pressure). Even yelling is pretty rare for me though. I am much more likely to just burst into tears, lock myself in the bathroom, or try to get away from the situation by finding another “safe” area where I can be alone.
Am I alone in being frustrated by the seemingly patronizing system hiding my own truth from me? Who else deserves to know my doctors’ real, honest perception of me more than myself? I’m not a child. I can handle knowing what my doctors really think of me and maybe knowing those things would help me in my own personal growth.
Yesterday I had rather a bit of a breakthrough moment. Now, to most people with healthy backgrounds and relationships, this will likely be a bit of a “duh” moment, but to people like me who were groomed to be codependent caretakers, it is an immensely important realization.
My “eureka moment” can be summed up in one sentence:
I don’t owe anyone ANYTHING, and no one owes me ANYTHING.
Of course, this does not mean that I can’t give to others out of the goodness of my heart, or that they can do the same, but none of us should feel required to do so. I would say the one exception to this rule would probably be children. If you bring children into this world, you do owe them something – and that is to do your best at providing them a safe, stable, and loving childhood. I guess pets fit that category as well. If you sign up to take care of something that can’t care for itself, you are essentially accepting that responsibility.
Outside of that, I’m not sure if any of us should feel like we have to fully take care of others emotionally, mentally, physically, or materially. We all have a responsibility to do our best to meet our own needs, and while that may mean reaching out for help now and then, we have to realize that sometimes we may be turned down and that is ok. If so, we just need to keep looking I suppose.
As someone with disabilities though, I do want to say that I do feel it is vitally important to have public programs and assistance available (whether these be government or charity systems) for those of us who sometimes struggle more than others at being “functioning adults”. To me, it is just a simple matter of society welfare and empathy that should strive to help anyone who falls through the cracks.
The Comfort Trap
By: Maranda Russell
The comfort trap
has closed around me,
its cold metal arms
crueler than a vice.
But don’t help me out,
for I’ll only find
a creative way
to crawl back in.
I enjoy taking prompts and writing six word stories. I find it challenging to come up with something truly original and attention grabbing with only a handful of words. Here are a few more I wrote just for fun:
I often quarrel with my squirrel.
Introduce me to your soul asylum.
Wake me up, slow me down.
Is there room amidst your gloom?
Build a bridge. Don’t jump off.
I feel like most of these have at least a general association with mental health and mental illness (not surprisingly), even though that wasn’t planned. You are welcome to use these prompts if you wish to have some fun and play with words!
“Without Tess”, written by Marcella Pixley, is one of the best YA novels I have read in a while. I rarely give books five stars when rating them, but this one I did. The story revolves around the main character (Lizzie), and her dead sister (Tess). Lizzie is the younger sister by a couple years and was only 10 when her older sister tragically passed away.
The real star of the novel is Tess. As you read through the book and relive vibrant memories Lizzie shared with Tess, you come to both love and sometimes dislike Tess. Tess was a true believer in magic. She was creative and passionate. She was both loving and loyal, but at times cruel and violent. She was mentally ill, and at times downright psychotic. This novel is a lifelike retelling of what it is like to grow up with an extremely mentally ill sibling. It addresses the love, the hate, the sadness, the pain, the rage, the guilt, and all the other emotions that come along with such a disturbing family dynamic.
I had a deeply personal connection with this book, both as someone who grew up with a mentally ill sibling, and someone who eventually lost that sibling, mostly due to that mental illness. At one point the book even made me tear up, which is extremely rare for any book to do. Definitely recommended!
Cook Me With Tenderness
By: Maranda Russell
and not yet
I seem to
But I beg of you,
don’t roast me –
just smash me to bits
and cook me
For at least a year or two now, I have been debating with my husband whether we should get a handgun for home protection. You see, I have an intense fear of home invasions. I often have nightmares about it. I think part of it may stem from being robbed at gunpoint when I was 17 years old. Or maybe some of it comes from living in several areas over my lifetime that were crime ridden in one way or another. A history of physical abuse and c-ptsd certainly doesn’t help either.
That is why I believe that I might feel a little more safe with a handgun in the house (most likely locked up in a safe). My husband worries about keeping a loaded gun in the house though because of my intense periods of depression. I have bipolar type 2, and while I have never had a psychotic episode, have never tried to commit suicide, and do not think I am generally a danger to myself, my husband has seen me go through some extreme emotional lows that worried him. He fears that if we had a loaded gun in the house there is always the possibility that in a moment of intense depression I might make a rash decision.
I am thinking that perhaps I should discuss the possibility with my therapist and psychiatrist. I know both of them have said they do not think I would ever actually commit suicide. Personally, I agree that I am very unlikely to commit suicide unless my husband died and I was somehow left all alone without any help in the world. I do not think I could kill myself unless the prospect of living genuinely became worse than death. I also would not want to cause anyone who cares about me pain, as I know first hand what it is like to lose someone close to suicide.