Discouragement – Getting Healthy with Chronic Pain Diary

Image by naobim from Pixabay

Feeling a little discouraged today about the whole getting healthy thing. This always happens when I try to change my bad habits. At first I’m all gung ho, ready-to-change-the-world optimism, but normally after a little bit of time, the excitement starts to fade and then when the pain gets bad or chronic illness creeps up on me again, I start feeling like it is hopeless and that nothing I do does any good.

I AM NOT giving up, but just wanted to be honest about where I’m at right now. Yesterday was a bad IBS day, so I spent most of the day in bed and having to be super careful about what I eat. Today hasn’t been much better. Also, am dealing with low level migraine symptoms and still having significant pain in my injured hand. If it isn’t better by tomorrow, the doctor wants me to get more xrays, and at this point it is hard to believe it will be better by then.

Lastly, It is raining today, so most of my favorite exercise activities aren’t as attractive 😦

Day ll – Getting Healthy with Chronic Pain Diary

Image by Jill Wellington from Pixabay 
  • It’s the 4th of July, so did some celebrating, but kept it pretty chill and close to home. My husband and I cooked out (butter burgers, chips, and corn on the cob) and then followed that up with some ice cream (strawberry shortcake flavored).
  • I did get a little bit of exercise in by going swimming at our community pool. It was actually less crowded than I expected for the 4th of July. Guess many of our neighbors went out for the holiday rather than staying home.
  • Healthwise, my hand is still hurting, worried I may have to get that second set of xrays. Also, I am discontinuing the Emgality injections due to side effects and tomorrow will be a month from the last injection, so I am a bit worried about migraines attacking more when I don’t take the shot again. Not much I can do to change that, so hoping for the best but nervous.

Day 6 – Getting healthy with chronic pain diary

  • I knew I was overdo for an injury…went for a short electric bike ride again and everything went great, until I got home, went to park the bike, stumbled, and then fell, with the bike falling on top of me (and electric bikes are heavy!). I seem to have most seriously hurt my right hand, especially around the 2nd finger. Hoping it is just a sprain and will heal ok on its own. Even with all that going on, I still went for a walk with my husband at the local park to get the rest of my exercise for the day in. Persistence baby!
  • Also saw the migraine doctor today. Yet more CGRP blockers he wants me to try (Nurtec & Qulipta). I’ll try them, but the one I was already on (Emgality) quit working and was causing nasty side effects. At least the new ones he gave me are pills, not injections, so I won’t be stuck with them in my system for a month if they give me negative side effects. I can’t help but wonder if it is really a great idea to block something the body naturally produces anyway. Even though CGRP does some negative stuff to the body, it does some positive stuff as well.
  • I also applied online to get a prescription for low dose Naltrexone from AgelessRx. I’ve heard many, many good things about low dose Naltrexone for chronic pain relief and have to at least give it a try. My doctor wouldn’t prescribe it (their office doesn’t prescribe it at all), so I found one who would!

Horrible ER Experience

Yesterday was kind of hellish. My migraines were worsening and I had already reached my limit of medicine I’m supposed to take in a week for them, so I ended up going to the ER. There they gave me what they call the “migraine cocktail”, which includes Toradol, Benedryl, and a nausea medicine.

Unfortunately, I had a horrible reaction to the Benedryl. It is really weird because I take it all the time at home, but I guess the IV version doesn’t agree with me. As soon as they started giving it to me, I could already feel chest pain around my heart area and the room started spinning, but figured it was just my anxiety. However, within a few minutes, my resting heart rate had jumped from below 100 to over 165!

I felt like I was dying. It was a horrible feeling. My body was trying to throw up the offending agent, but of course it couldn’t, as it was administered by IV. It was at least a half hour to an hour before I didn’t feel like screaming and stopped thrashing around in incredible discomfort.

I ended up having to stay in the ER longer so they could do an EKG and blood work, which they hadn’t originally intended to do, but with the heart rate spike they wanted to make sure nothing else was going on. Luckily, that stuff came back ok (although I was deficient in potassium and had to drink a nasty concoction to help that).

On the plus side, the migraine is better, but still not feeling great. Going to try to take it easy all weekend.

Last Night was a Disaster

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That headline is not an exaggeration. First off, my MRIs went bad. I had MRIs for my brain and neck scheduled last night, both with and without contrast. I didn’t even get to the contrast part because the first part gave me a migraine, triggered severe neck pain, and gave me a major panic attack. I was almost sobbing by the time they got ready to give me the contrast, so they sent me home.

I left feeling embarrassed for not being able to keep myself from crying in public yet again. I also felt feelings of failure as I couldn’t do something as simple as completing two MRIs. Now I have to contact the neurologist that ordered the tests and tell him I wasn’t able to make it through and see if he wants to make separate orders for the contrast part. So, I might have to go through it again soon.

Also, we ate at a local restaurant yesterday that served me some bloody chicken. I didn’t notice right away because the blood pooled beneath the chicken breast. Anyhow, last night I got really sick and had to sleep with a trashcan beside me. I took both Mylanta and Zofran and nothing helped the nausea. I suspect I might have gotten a little bit of food poisoning from the underdone chicken.

At least I’m not fighting down vomit anymore, but still feeling nauseated and sick. Understandably, all this has made my mood rather blah too. I just want to huddle under the covers and hide from reality right now.

My Four Day Migraine – Ouch!

Well, my one-day migraine from Wednesday turned into a four-day migraine that I finally had to go to the emergency room to get rid of this morning. They pumped me full of a bunch of drugs that did take the worst of it away, although I must admit I’m scared it will come back once those wear off. They did give me a steroid shot to help stop rebound migraines, so hopefully that will work.

I’m exhausted and somewhat depressed about the whole situation. I went at least a couple years with barely any migraines and then this just pops up out of nowhere. I can’t help but think part of it might be all the stress about my upcoming SSDI hearing. I try not to consciously think about it, but that doesn’t work so well for obsessive minds like mine.

I’m sure you guys understand that this will be a short post since I’m not feeling too great, but here is a picture of an extremely ugly, grumpy stuffed lion for you to enjoy:

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