Just 17 days after my last ER visit for the same reason, I had to pay another visit this past Sunday because I had yet another migraine lasting 3 days or longer. This is getting to be a habit and that is really not a good thing. Some of these migraines are lasting longer than 72 hours which puts them into a dangerous category that less than 1% of migraine sufferers have called status migrainosus. Reportedly this is one of the 4 ways that migraines can actually kill.
Needless to say, this is not reassuring. I am meeting with my doctor to reevaluate my meds and hopefully that will help, but who knows. I’m afraid to get my hopes up at this point. If I’m not as active on WP, please don’t think it is because I am ignoring you all, I am just not up for much right now.
Three days straight of migraines that won’t go away. They’ll ease up a bit when I take migraine medicine, but then they come back. Sadly, my migraine medicine (Sumatriptan) is one that you aren’t supposed to take more than 4 pills a week, so I don’t know what I’m going to do if they keep coming back. Please keep me in your thoughts and prayers. If I’m not very active on WP, you’ll understand why.
First off, I got my covid results back yesterday. No coronavirus detected! That was certainly a big relief! Now I don’t have to worry about staying quarantined for weeks!
On the sucky side of things, I did have a full-blown migraine last night. I’m not sure if it was caused by my anxiety about the test results the past few days, or something else, but it was miserable. When I get migraines like that my neck kills me too (you can actually feel the tension and swelling in the back of the neck). Like most migraine sufferers, I can’t stand sound or light, and I get nauseated and dizzy as well. I went to bed early and slept about 9-10 hours, but still feel the aftereffects of it today and fear it coming back in full force.
I’m also a little sad because while I was unsure of my covid status, some friends of mine got together for the first time in forever, and of course didn’t invite me (I don’t blame them, they knew about the covid possibility), but it still bummed me out that I missed the chance to see them.
- My cat will die tomorrow. After 14+ years together.
- A meetup group that I was truly enjoying and was beginning to feel part of disbanded for the foreseeable future.
- I feel artistically lonely. I wish I had others in my “real” life who had the passion for art and literature (especially poetry) that I have.
- There is a good chance I am going through early menopause and that is triggering my major increase in migraines and making my hormone levels go crazy, affecting my mood as well. The doctor says this could go on for years 😦
- I have been fighting off migraines the last few days.
- I wish I had someone to watch movies and tv shows with that really got into them like I do. My husband is just not a movie/tv guy.
- There will always be a huge hole in my life where my family should be, as all of my immediate family members are dead other than my mother, who I have a shaky relationship with.
- Climate change catastrophe and human ignorance. The realization that if scientists are right about climate change, we are likely causing our own extinction, as well as the extinction of much of life on earth. It is pretty much too late now and we humans are not willing to make the changes needed to save ourselves and the world even if there was time. In the end, industrialization may have been the absolute worst thing that could have happened to the world. I guess we can hope the scientists are wrong, but it isn’t looking good from what I see.
Been feeling stressed. I don’t know if it is because I am autistic or just part of my personality, but even the smallest changes to my routine tend to throw me off and cause a lot of anxiety…and the holidays seem to be filled with those kinds of routine manglers.
For instance, tonight I have a friend’s Yule party to go to and tomorrow I am supposed to meet my mom for an early Christmas dinner/present exchange. Part of me is looking forward to these events and even wants to go, but part of me is stressed out and just wants to go back to bed and hide under the covers until the weekend is over.
All the anxiety takes a physical toll too. It turns my tummy into a wreck and brings on headaches that can easily slip into migraines if I’m not careful. The anxiety last night about the events this weekend was so bad that it did give me a migraine, so I had to take my migraine prescription. Hoping that won’t happen again.
I often tend to think depression is worse than anxiety because its symptoms are more obvious and immediate, but I think I underestimate the compounding ability of high anxiety.
Yesterday I had my regular neurologist visit to follow up about my migraines and while there I was also diagnosed with Essential Tremor, a genetic condition that is often confused with Parkinson’s from the symptoms. It most commonly affects the hands, head, and voice, but can affect any body part. It can also affect balance, mood, and possibly memory.
My balance, hands and voice are already affected pretty bad at times which scares me since it can be a degenerative condition and it can eventually become hard to speak, eat, write, or in my case, make art, since I am an artist.
My tremors started out in both hands a few years ago and have definitely worsened. At first, I only noticed that I could never take a good picture because I couldn’t keep the camera steady enough to take one. It has worsened since then and affects more daily activities, such as writing, typing, pouring/drinking liquids, dropping almost everything, etc. I noticed the voice tremors starting probably a year or two after the hands.
My balance has noticeably worsened to the point that I often start to fall over while just walking around the house or even standing still. It isn’t unusual for my husband to push me back up as I start to fall over like the Leaning Tower of Pisa.
For a long time I tried to dismiss it because I didn’t want to think something might really be wrong. I tried to blame it on anxiety or weird medicine side effects. I am glad that I don’t have MS or Parkinson’s which I feared sometimes. What finally made me bring it up with the neurologist is that the geneticist I saw for my Ehlers Danlos testing a few months ago seemed concerned by how much my hands shook.
The last thing I want to do is take yet more prescription medicines, but I am considering it in hopes that it might slow down the progression and alleviate the symptoms a bit. The only bad thing is that all the meds they use to treat this condition can worsen my depression, so the neurologist wants me to get the ok from my psychiatrist before we decide on a med to try.
My migraine, neck, and back issues have been flaring up on and off ever since my bad MRI experience almost two weeks ago. I feel like I’m not getting anything done and am struggling to get the bare minimum of my daily routine done. All this has me feeling depressed and has killed my enthusiasm for the new book I started writing.
The logical side of me knows the pain will eventually subside, but while I am stuck in this misery it feels infinite and everlasting. Chronic pain wears you down, destroys creativity, and can stomp all over your goals – at least anything short term. I hope I’ll be back to normal someday soon.
First off, I want to thank the person who made a supportive donation to my blog through Paypal today! I believe this is the second donation I’ve received that way and I really appreciate the support! If you are interested in ways to support me, please check out the Support My Blog page on this website.
Also, I got some good news today that I don’t have to do the second part of the MRI that went disastrously last week. That is such a relief. I was afraid if I did the rest of the MRI it would just trigger another migraine. The MRI results I did receive were pretty good, with no seeming worsening of my cervical issues! Thank goodness!
I did have to visit the GI doctor today and found out I need to have an endoscopy, which I am nervous about, but I realize it is important if they are to find out why I am having such horrible bouts of esophageal pain and difficulty swallowing. At least I will be sedated for the procedure and hopefully won’t feel or be aware of what they do. My appointment for that test isn’t until next month, so at least I get a little break from medical tests.