Poetry – At Your Service

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At Your Service
By: Maranda Russell

One more
lost little girl
at your service.

Actually,
that’s a lie.
I’m not
at your service.
I’m not
at your anything

and I never
shall be
again.

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Back Doctor and Pain Management Clinic Rant – Why So Insensitive?

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This is going to be a bit of a rant. Yesterday I received a letter from the orthopedic doctor and pain management clinic I was seeing for my upper back/neck pain. That letter turned my mood sour quickly. It said that I had been non-compliant with physical therapy and the spinal injections they had ordered, so they were kicking me out of the practice.

Why did it tick me off? Because the way they expressed it is totally not what we had discussed in person. First of all, I was not “non-compliant” with physical therapy. I tried it for several weeks and it WORSENED the pain rather than helping. It also caused widespread fibromyalgia and chronic fatigue syndrome flares throughout my body. This wasn’t the first time I had tried physical therapy, so I had been worried from the start, but they had promised they would accommodate my conditions, which they didn’t actually seem to do.

When I called the physical therapy office to explain that it was worsening my back pain and my fibromyalgia/cfs symptoms, they seemed understanding at the time. I was also having issues driving myself to therapy because when my back pain flares up, I can barely turn my head because of the neck pain. I asked the physical therapy office if I should perhaps try again in the summer when my husband could drive me, but the lady said that if the sessions were causing me that many problems, trying it again in the summer didn’t make much sense.

As for the spinal shots, the main reason I was fearful about going through with them is because they would not offer any kind of sedation. You see, I had been told how important it is for spinal injections that you be absolutely still during the process or you could cause damage to the spine. As an autistic person with severe sensory issues and intense over-sensitivity to any kind of sensory input (including pain), this worried me. I also have severe anxiety and that can sometimes make me shake and tremble involuntarily.

I had researched the shots and noticed that many other places offer sedation. I even talked to a few other people who had undergone the shots and had been sedated. I was not trying to be a pain or a drama queen, I was simply being cautious. Affording the shots was also a major issue at the time (since they required full payment up front), which I had explained to them.

In the end, I’m not upset that they were unable to further help me, I had already kind of figured that out. However, I am upset at the accusatory tone of the letter they sent me and the obvious insensitivity and lack of understanding for people who suffer from chronic pain/chronic illness and people who happen to have autism or other sensory processing difficulties. By the way, I will be sending them a letter back stating much of what I just said here. Hopefully they will learn something.

 

The Real Problem with the World

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The problem isn’t me. Not really. The problem is the world. The gossips. The bullies. The abusers. The narcissists. The shallow. The cruel. The snobs. The judgmental. The callous. The ignorant. The rude. The contentious. The angry. The passive aggressive. The sadistic. The jealous. The violent.

Is it any wonder I fear humanity? Is it any wonder I fear humiliation, rejection, and being misunderstood?

My experiences have taught me that life is harsh, and that is what I’ve come to expect. Not long ago, my psychiatrist warned me about the danger of “expecting everyone to treat me the way my abusers did”, but how easy is that to accomplish when so many others HAVE turned out to treat me that way? I often feel like a wounded gazelle surrounded by lions. I look for empathy, but instead I find savagery.

Relationship PTSD

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Everywhere I go
I fear I’ll find you.
I skulk around the edge
of each aisle,
scanning faces
to make sure it is safe.
I play out
our fearfully planned reunion
again and again
in my mind.

When the inevitable collision
happens, I consider
speaking Spanish
or pretending I don’t know you.
In every scenario
you see past the lie,
but you don’t always
call me out on it.

Instead, you give me
that knowing smirk
(the one I hate so much),
turn your head
and walk on by –
leaving me convinced
that a knock-down, drag-out
confrontation
might have been better
in the end.

~ Maranda Russell

A Few Words About Applying for Government Disability Benefits

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(The below was written out of simple outrage from what I have seen happen to fellow human beings who are genuinely too sick and weak to work, but are expected to wait years for any help from the government programs they have paid into all their lives. I am fortunate to have other resources to survive on while unable to work, but not everyone is so lucky. Many homeless you see on the streets are actually disabled veterans and citizens who deserve so much better…)

Applying for government benefits, even those you have worked for and earned yourself, can be a ridiculously long, complicated, and humiliating process BECAUSE they design it to be so. They want to break you down, make you give up, make you give in. They expect the sickest and weakest among us to jump through hurdles on command, knowing it is almost an impossibility unless there are others propping us up.

Honestly, I think they hope that you will die on your own before they have to do a damn thing. I can picture Uncle Sam with fingers crossed, hoping you buckle under the stress and poverty, or even end up taking your own life from the hopelessness and despair of feeling useless, discounted, and vilified by a media that touts how “easy” it is to fool the system and labels those who are disabled as leeches or lazy.

Apparently discrimination laws don’t apply to the government either, since they clearly indulge in age discrimination, something every lawyer will blatantly tell you up front. Even publicly, you can find legal representatives in the field explaining why you are simply fucked if you dare get too sick before age 35, 40, or even 50. So if you are a young adult or middle aged person struggling with a chronic illness or severe pain condition, you had better tell it to get lost and come back in 10 or 20 years. Yeah, that works. After all, young people aren’t allowed to be sick or disabled.

You know, it is really funny, that many of the same people who are so public about being pro-life are also always trying to cut social safety net programs like disability or make them harder to access. If they could, I think sometimes that the government would perform adult abortions on those too weak or sick to continue to prop up their sick, twisted system. Getting rid of us all would be so much easier, wouldn’t it?

Video: My Experiences with Emotional Pain or Abuse from a Church or Religion

Hi everyone! I wanted to share this video I made recently for my Spiritual Agnostic YouTube vlog channel, in the hopes that perhaps others who have experienced similar things or even much worse, might find some comfort and strength in knowing they aren’t alone and that it is possible to heal and move on from things like this. In no way did I make this video to be mean or vengeful, but just to express my own process of growth and learning through these experiences.