Poetry – Debt for Life

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My life
will never
run out of debt
until
the day
it ultimately
goes out of print.

Poetry – Money for Liberty

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(I wrote this new little poem the other day and have had a hard time deciding if it should just be shortened to contain the first stanza only, or if it is better with both. I figured I would share it with you guys and see if anyone had an opinion. Should I keep it as is with the two stanzas, or should I cut out the last four lines and have a much shorter, but perhaps punchier poem?)

He offered up money
for his liberty,
but could never quite reach
the asking price.

Though he bid
higher and higher,
the inflation would only
keep rising.

Water Heater Update

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Ugh. Turns out we have to replace the entire water heater. Over $1,800 (which we can’t afford)! This seriously sucks. To make matters worse, the guy couldn’t put the new one in until today, so we had to go all day and night without any water at all (they had to shut it off entirely due to the enormous leak). The guy said he would be here around 11am to put in the new water heater and it is now 12:30 and no sign of him yet, although he says he’ll be here soon.

Due to all this I am grumpy and feeling yucky and just want to whine lol. I can’t even flush the toilet!!! I know this may seem crazy to non-autistic people, but the huge change in my daily routine has driven me freaking crazy and brought on a nasty IBS flare. God, I hope this is over soon.

This seems like a good time to remind everyone that I do have a PayPal donation button set up on my blog if anyone ever wants to send a few bucks to help out or support my blog. You can donate any amount and don’t even have to have a PayPal account of your own. You can find the button on the right side panel of my blog home page, or access it through the Support My Blog page. If you are able to help out, that is great, but if you aren’t, your kind thoughts and well wishes mean the world to me.

Who Do I Want to Be as an Artist?

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Today I was inspired by a blog post from Judith over at Artistcoveries, in which she asks the question – Who do I want to be as an artist? I love thinking about stuff like this, so I wrote the question down in my journal and brainstormed my own answers. Here is what I came up with:

Who do I want to be as an artist?

  • Unafraid to experiment
  • Unafraid to offend
  • Unafraid of mockery
  • Confident in my creative abilities
  • Willing to share the good, the bad, and the ugly of my art
  • Use the materials I love, not feeling forced to use what is considered artistically “professional”
  • Confident enough to charge what my art is worth (probably one of the hardest parts of being an artist in my opinion)
  • I want to be loved and respected by other artists and art lovers, especially those in the autism, bipolar, and outsider art worlds
  • I want to create what I like
  • Overcome my fear of doing in-person art events (currently hindered by my crippling social anxiety)
  • Monetarily successful enough to rely on my art for my general income

Do you relate to any of these wishes? Who do you want to be as an artist?

Back Doctor and Pain Management Clinic Rant – Why So Insensitive?

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This is going to be a bit of a rant. Yesterday I received a letter from the orthopedic doctor and pain management clinic I was seeing for my upper back/neck pain. That letter turned my mood sour quickly. It said that I had been non-compliant with physical therapy and the spinal injections they had ordered, so they were kicking me out of the practice.

Why did it tick me off? Because the way they expressed it is totally not what we had discussed in person. First of all, I was not “non-compliant” with physical therapy. I tried it for several weeks and it WORSENED the pain rather than helping. It also caused widespread fibromyalgia and chronic fatigue syndrome flares throughout my body. This wasn’t the first time I had tried physical therapy, so I had been worried from the start, but they had promised they would accommodate my conditions, which they didn’t actually seem to do.

When I called the physical therapy office to explain that it was worsening my back pain and my fibromyalgia/cfs symptoms, they seemed understanding at the time. I was also having issues driving myself to therapy because when my back pain flares up, I can barely turn my head because of the neck pain. I asked the physical therapy office if I should perhaps try again in the summer when my husband could drive me, but the lady said that if the sessions were causing me that many problems, trying it again in the summer didn’t make much sense.

As for the spinal shots, the main reason I was fearful about going through with them is because they would not offer any kind of sedation. You see, I had been told how important it is for spinal injections that you be absolutely still during the process or you could cause damage to the spine. As an autistic person with severe sensory issues and intense over-sensitivity to any kind of sensory input (including pain), this worried me. I also have severe anxiety and that can sometimes make me shake and tremble involuntarily.

I had researched the shots and noticed that many other places offer sedation. I even talked to a few other people who had undergone the shots and had been sedated. I was not trying to be a pain or a drama queen, I was simply being cautious. Affording the shots was also a major issue at the time (since they required full payment up front), which I had explained to them.

In the end, I’m not upset that they were unable to further help me, I had already kind of figured that out. However, I am upset at the accusatory tone of the letter they sent me and the obvious insensitivity and lack of understanding for people who suffer from chronic pain/chronic illness and people who happen to have autism or other sensory processing difficulties. By the way, I will be sending them a letter back stating much of what I just said here. Hopefully they will learn something.

 

You Can Now Support My Blog Via PayPal if You Wish :)

I finally figured out how to set up a PayPal link here on WordPress! Please excuse my technological shortcomings, I’m not exactly the most efficient coder or anything like that.

Anyhow, if anyone would like to support my blog efforts, you can now donate any amount directly to my PayPal:

You can also access this PayPal link at any time on my website sidebar and the “Support My Blog” page.

I don’t expect a lot of donations, but if anyone does wish to help out it is definitely appreciated! Any money donated will most likely be applied to website maintenance fees (domain registration, WordPress account upgrades, etc.) If donations ever started regularly coming in, I would likely also try to invest in some advertising for the blog or use it for computer maintenance/repairs and stuff like that.

Social Security Disability Rant

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Ok, so I had another subject planned for today’s post, but I need to rant a bit, so I’ll save that topic for later. I hope you won’t mind listening to my frustration today.

So, I’m part of a group on Facebook for people with certain mental issues, and I have noticed many of the people in the group getting social security disability solely for those mental issues, which I happen to share. I am not upset that they got disability for their problems, but I can’t help but compare it to my own situation and feel angry at how I have been treated by the system.

I’ve been fighting for several years to try and get disability benefits, my worst conditions that affect my ability to work are: Bipolar Depression, Asperger’s, PTSD, social anxiety disorder, fibromyalgia, chronic fatigue syndrome, IBS, degenerative disc disease and bulging discs, chronic bronchitis/ear infections, and severe plantar fasciitis. ALL THAT and yet I am still fighting! It pisses me off because I know people who got it much quicker for SO MUCH LESS or just ONE of my conditions. And none of these conditions are light, even the last rejection letter from social security said the conditions are indeed severe…and yet I got turned down AGAIN? I have a plethora of medical evidence and have tried to follow medical advice to the letter. What more can I do???

I DO have an attorney (my 2nd actually), and I am now waiting for a court date, the 2nd time I will have to go to a hearing for this. The last judge I got had a record for barely approving anyone, which seems unfair in itself. How can it be a fair system when some judges approve a majority of people and other judges approve hardly anyone? Were it not for my husband, I would likely be homeless by now.

To make matters worse, one person in the Facebook group insinuated that plantar fasciitis and chronic ear infections/bronchitis aren’t severe enough to affect your ability to work long term. Well, I’ve had the plantar fasciitis for 15 YEARS. I’ve seen specialists, done meds, physical therapy, long-term steroid therapy, custom orthotics, cortisone shots, nothing helped. Doesn’t seem like it will magically get better at this point. It is so severe I have a noticeable limp and have almost passed out from the pain at times when I was forced to be on my feet for long periods of time.

As for the recurring infections, I’ve had chronic ear infections and bronchitis for many years, often getting up to six within a six month period. I’m now on my 3rd course of antibiotics this year (2018) for the chronic ear infections and bronchitis. Again, I’ve seen specialists, tried a host of medications and other treatments (both medical and alternative) and nothing has worked so far. The amount of antibiotics I have had to take has led to issues with antibiotics not working as well anymore, worsening IBS symptoms, and even episodes of MRSA, C Diff, and colitis which I had to be hospitalized for. These are not minor, fleeting problems.

To make matters worse, I have TRIED to work while fighting for disability. The last job I had (working only two days a week) I was let go from for missing work too much due to medical issues, most of which I was in the hospital or ER for, so they know I wasn’t just “faking”. I also tried being a greeter at Walmart, since it is about one of the only places that actually hires really disabled people and I couldn’t even do that due to my social anxiety, depression, and other health issues. I am not even fighting for welfare here, only the benefits I worked for over the years!

ArtSnacks March 2018 Subscription Box Review

First off, I want to let everyone know this will actually be the last ArtSnacks subscription box I will review. Honestly, I just didn’t feel like I was getting enough use out of it for the cost. I feel like I’m better off just shopping the discount art supplies at local shops. I did subscribe to a different fun subscription box that I will be reviewing from now on, but it isn’t an artist one (you’ll have to stay tuned to see what it is)!

Anyhow, here is what I got in this month’s ArtSnacks box:

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  • A custom ArtSnacks Pencil Case
  • ArtSnacks Sticker Sheet
  • Orange Copic Ciao Double Ended Marker
  • Copic Multiliner
  • 2 Lyra Color Giants Color Pencils (red and purple)
  • Warheads Candy

Even though I stopped subscribing to this box, this still might be my favorite box so far. I do really like the custom ArtSnacks pencil case and am sure I’ll get some use from that. The pencil case seems to be made of good quality materials and is double-zippered with two separate compartments. It isn’t big enough to hold a lot at a time, but it is still handy.

I was also thrilled to get a couple Copic products. I’ve always wanted to have the money to invest in some Copic markers, but haven’t done so yet because they are so pricey. Of course, I’m not sure how much I’ll get done with just one orange marker lol.

The Lyra Color Giants color pencils are really cool as well. They are from Germany and seem to be well made. Their huge size kind of reminds me of the big, thick colored pencils that are sometimes made for really little kids. I’m not sure how much I’ll actually use them, but they are pretty neat.

Overall, this was a cool box, but not enough to make me sorry I unsubscribed.

My Future Fund (supported by art and book sales!)

Recently I have been having quite a bit of success selling my artwork and I am so thankful! It means the world to me to know that people love my art and want to support my creative efforts! I do have something special I am doing with the proceeds I get from my art and I wanted to share that, so that if you are purchasing my art, you will know how you are helping me in multiple ways.

As many of you know if you follow my blog regularly, due to worsening chronic mental and physical health conditions, it has been hard for me to work outside the home for a while. I am hoping to get my SSDI benefits at some point in the future, but it can take years for that to happen due to backlog. I in no way feel bad for going after these benefits since they are not charity or welfare, but instead are the very benefits I paid into for years. I think it is ridiculous how long many of us have to wait to get a real person to make a decision for benefits we worked hard for over many years.

Due to my trouble working, I constantly fear that were something to happen to my husband, I would eventually end up homeless once the little bit of life insurance ran out. It is a terrifying thought that haunts me every single day. I am not guaranteed eventual approval of my SSDI claim, nor do I have any way to know for sure when I will find out since I am still waiting for a hearing date to even be scheduled.

So, I figured that instead of simply living in fear every single day without taking any real action to plan for the future, that I could take small steps to try to do what I can to provide any measure of security for myself. I have decided to start saving every bit of money I get from my art sales and book sales, to hopefully help build a nest egg to provide a little extra help if someday I need it. I have also been adding extra cash here and there that I manage to save to the “future fund”.