She could never let me sleep.
That would put us
on equal footing
and allow me
to be fully awake
she would sneak into my room,
shake me awake
and cry loud, calculated tears
while I practiced
hiding my true feelings
and tried my hardest
to become a limp, gray rock
held barely out of reach.
I am feeling so incredibly stressed about my upcoming SSDI hearing and everything related to it. It has become an obsessive thought pattern that I can’t get out of. This always happens when something I am super nervous or scared about is looming on the horizon. My mind is a circular track of “what ifs”, incessant thoughts about things I need to do, fears that I will make a mistake and blow my last chance for SSDI benefits, and fear that if I fail and am denied again, it will once again send me into a suicidal spiral of feeling worthless, disbelieved, and like I will forever be a burden to society and those I love.
Tomorrow I have to ask my psychologist to fill out a RFC (Residual Functional Capacity) form for the hearing. I think she will be open to it and want to help, but I am still anxious about asking and scared of rejection. I have to ask my primary care physician to fill out a similar form when I see her next week, and am even more nervous about that because I know she is often rushed and I don’t want to be an inconvenience or annoy anyone by making demands.
As you can see, I struggle greatly with asking anyone to do anything for me. I’m not sure if it is just my lousy self-esteem or what, but I always feel like anything I need is an imposition on someone else. Maybe the result of being raised by a narcissistic parent? Growing up, I often was made to feel like anything I needed (emotionally or physically) was selfish and inconvenient to those around me. To this day, I struggle with feeling like I am actually entitled to anything – even basic human respect.
I think my fear of being disbelieved about my disabilities also stems from the fact that when I first started getting really sick, even my own husband and family didn’t believe me. My husband came around first, when he saw how much I truly was suffering every day and how even the things I loved most were being ripped away from me. He has even apologized for his initial doubts. Some of my family (including in-laws) still make me feel invalidated, but I’ve come to the conclusion I can’t do much about that.
Unfortunately, I’ve faced a great deal of abuse in my somewhat short lifespan. Physical abuse, verbal abuse, mental abuse, and emotional abuse. Most of this abuse happened when I was growing up and happened at the hands of people I should have been able to trust and look to for protection.
There is a part of me that desperately wants to be open about all the things that happened and purge my heart and soul of them publicly. I want to speak the truth out loud and shed light on things that have always lived alone in the darkest part of my psyche. However, I find myself so scared to share the truth and feeling immense guilt at the thought of outing those who were responsible. I feel protective towards my abusers because I still love them through it all and feel guilty at the thought of tarnishing their reputations, both the living and the dead.
Why, oh why do I still feel such loyalty and duty to those who hurt me the most deeply and betrayed me the most selfishly and cruelly? Why am I swamped in guilt for just wanting to be open and honest about my own experiences? Why must this battle between my need for expression and my sense of loyalty tear me apart? How do I ever find healing?
* Art by Maranda Russell