Worries about My SSDI Hearing Tomorrow

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Tomorrow morning is my SSDI hearing. I’m super anxious about it. I feel a little nauseated just thinking about it. I’m afraid I’ll do or say the wrong thing. I’m afraid I’ll burst into tears and feel embarrassed. I’m afraid I’ll somehow misrepresent my reality. I’m afraid the judge will say no and ruin my foreseeable future.

I know the judge probably won’t even give a straight “yes” or “no” answer tomorrow, but that makes it even worse because then I have to wait who-knows-how-long in suspense and worry. I hope I’ll feel better when it is over, but knowing me, I’ll probably spend the next few months picking apart the experience and everything I think I did wrong until I get an answer.

 

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I Am An Obsessive Collector

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Part of my toy/collectibles/art room, unfortunately you can’t see all the stuff organized in the closet or in the cabinets behind me.

I collect too many things. I collect tons of toys/action figures/dolls/squishies/stuffed animals/minifigures (Barbie, My Little Pony, Sesame Street, Looney Tunes, Lego, Nickelodeon, Disney, Schleich, Funko Pops, Reborns, Cabbage Patch Dolls, Coraline, etc.) I have an entire room for all my toys and collectibles. I collect books, especially children’s books and books about subjects I am obsessed with, ranging from Michael Jackson, Nirvana, and Dance Moms, to art/artists, writing/writers, poetry, comics/manga, and antique books. The books also have a room of their own, which they share with my husband’s smaller but still sizable book collection (mostly history, true crime, and science fiction grace his shelves).

I have a huge collection of art supplies and stickers (which also get shoved into my extra “toy room”). I have a large collection of cds, especially from my favorite artists (MJ again, Nirvana, Foo Fighters, Enya, Simon & Garfunkel, The Beatles, 60’s 70’s & 90’s hits, Disney soundtracks, etc.)

I have an entire dresser drawer full of bookmarks, a wide selection of cute or nerdy notebooks/journals/stationery and a cabinet full of magickal/pagan themed objects I use for my little ritual altar. I also have a large collection of sentimental items I have saved ranging from photos to cards to letters to objects from loved ones who have passed on.

I am emotionally connected to many of the things I collect and the idea of parting with them is traumatic. I figure this need to collect things is part of the autistic side of me, but sometimes I become overwhelmed by the size of my own collections!

Out of Anxiety Meds & Body Dysmorphia

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I’ve had a rough few days. I think the main problem is that I’ve been out of my anxiety meds for a while because Buspirone is on national back-order for some reason, and my pharmacy doesn’t know when/if they will get it back in. I contacted my psychiatrist today to ask him to prescribe something else, hopefully he will do so soon. I was going to try to just hang on until my appointment with him at the end of the month, but I am having some real anxiety issues cropping up without my meds.

For one thing, I’ve been having some body dysmorphia issues, which happens now and then. I’ve heard that issues like these are common among high-functioning autistic people. I’m not trans or anything like that. I don’t want to be a man. But, for some reason, ever since I hit puberty, I’ve always felt kind of uncomfortable in my own body. I’m not sure why. I don’t think I’m extremely ugly or anything like that, but it is like there is some kind of disconnect in my brain when I look in the mirror. I feel like my body looks wrong somehow or like it isn’t the body I should have. It is hard to explain.

I think part of it has to do with always feeling unfeminine. Like I said, I don’t want to be a man, but I’ve always felt like I’m not very good at being a woman either lol. I feel like a tomboy, I always have, yet sometimes when I look in the mirror I look more like a woman than I feel. It is weird. I also have always wished I was thinner, more flat-chested, and athletic-looking overall, but my genes just don’t cooperate with me. It is funny to me when I hear women saying they want bigger boobs. I’m always like “why would anyone want that?”, but I know everyone has their own insecurities, and some people obviously have different ones than I do.

Spiral of Anxiety and Fear

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I am feeling so incredibly stressed about my upcoming SSDI hearing and everything related to it. It has become an obsessive thought pattern that I can’t get out of. This always happens when something I am super nervous or scared about is looming on the horizon. My mind is a circular track of “what ifs”, incessant thoughts about things I need to do, fears that I will make a mistake and blow my last chance for SSDI benefits, and fear that if I fail and am denied again, it will once again send me into a suicidal spiral of feeling worthless, disbelieved, and like I will forever be a burden to society and those I love.

Tomorrow I have to ask my psychologist to fill out a RFC (Residual Functional Capacity) form for the hearing. I think she will be open to it and want to help, but I am still anxious about asking and scared of rejection. I have to ask my primary care physician to fill out a similar form when I see her next week, and am even more nervous about that because I know she is often rushed and I don’t want to be an inconvenience or annoy anyone by making demands.

As you can see, I struggle greatly with asking anyone to do anything for me. I’m not sure if it is just my lousy self-esteem or what, but I always feel like anything I need is an imposition on someone else. Maybe the result of being raised by a narcissistic parent? Growing up, I often was made to feel like anything I needed (emotionally or physically) was selfish and inconvenient to those around me. To this day, I struggle with feeling like I am actually entitled to anything – even basic human respect.

I think my fear of being disbelieved about my disabilities also stems from the fact that when I first started getting really sick, even my own husband and family didn’t believe me. My husband came around first, when he saw how much I truly was suffering every day and how even the things I loved most were being ripped away from me. He has even apologized for his initial doubts. Some of my family (including in-laws) still make me feel invalidated, but I’ve come to the conclusion I can’t do much about that.

Autism Sensory Issues – Me vs. the Crickets

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Some of you will probably find this post funny (honestly it is rather amusing), but if you happen to be autistic, OCD, or have a sensory processing disorder, you may relate to my very real struggles here lol.

So….I am at war with the crickets. Every single night they seem to congregate outside my bedroom window and conspire to drive me crazy and keep me from sleeping. Their constant noise is maddening and sometimes enraging.

I’ve tried several strategies to deal with the issue so far:

  • Sometimes I just lay in bed and imagine stepping on them all and squishing the life out of them. Or I envision dog-size crickets that I blow apart with an assault rifle. Imagining their cricket heads exploding brings a momentary sense of satisfaction from the annoyance.
  • A few nights I have gone outside at around 2am (when I normally go to bed), and took a broom to try to sweep them all away from the area or sprayed bug spray all around the area. Unfortunately, one night it was raining and windy when I did the bug spray thing and most of it ended up blowing back in my face and I think I might have poisoned myself instead of them. I don’t know if any of my neighbors have seen any of these late-night confrontations, but if they have, I do wonder what they think…
  • Yesterday we went to Home Depot and got some outside insect repellent pellets to put all along the yard on that side of the house. Not sure if that will work either, but it’s worth a try I suppose. The crickets were still around last night, so it definitely hasn’t worked yet.
  • Before you suggest noise-cancelling headphones or ear plugs, please know that those things are sensory hell to me in themselves. I do not like the feeling of headphones and certainly couldn’t sleep with them in. Same with ear plugs.

And so, the war rages on…

Mental Illness Labels : Alphabet Soup Poem

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Yesterday I commented on a post by blogger Myloudbipolarwhispers about mental illness labels. In the comment, I explained how one of my foster kids once had a therapist who talked about the dangers of “alphabet soup”, which is when people start collecting so many labels (ADHD, ADD, ASD, PTSD, SAD, OCD, DID, BPD, RAD, and so on and so on) that they lose sense of themselves as a person or even worse, those treating them lose sight of their humanity and just see them as a list of diagnoses.

I shared in the comment that I even wrote a short poem about “alphabet soup”, which ended up in my book about foster care (From Both Sides). Myloudbipolarwhispers mentioned that she would like to see the poem, so I figured I would just share it in a post here, since it definitely fits the themes of this blog:

Alphabet Soup
By: Maranda Russell

Some good old-fashioned RAD,
a touch of PTSD,
just a hint of OCD,
a generous helping of ADHD
and a pinch of ODD
to taste.

Add it all together
and what do you get?

Alphabet soup…

and a kid
made entirely
of labels.

Wisdom Teeth Surgery Anxiety

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Not long ago I had an infected wisdom tooth, so unfortunately, the surgery I have been putting off to get my wisdom teeth out is now more of a necessity. I am scared shitless, and I’m not even sure why.

I keep telling myself it is a minor surgery. Outpatient even. I’ll go, get them out, come home, and likely crash for a few days. Then hopefully it will all be behind me. The teeth are impacted, which makes the surgery more complex, but I will be put out for the operation, so I’m not sure why I am so panic-stricken at the idea of having to do this.

To make matters worse, the first appointment I could make to get it done isn’t until the end of August, so I have an entire month to keep freaking myself out. I keep trying to distract myself or think positive thoughts, but I feel such a sense of dread that I just can’t shake, and it is making me spiral into a depression as well.

I did the typical Aspie thing, and tried to make myself feel better by finding as much information as I could about the procedure to lessen the anxiety, but it hasn’t helped much. I could quote you stats of all the risk factors (and ways to prevent them), draw you a diagram of the procedure, or explain step by step what will be done, but it isn’t helping me to let it go.

Maybe this is my OCD coming out in full force (an inability to NOT fixate on something I wish I wasn’t thinking about at all), or maybe it is just the anxiety of the unknown, since I have never had surgery of any kind before or been put out for any kind of operation…but I wish my brain would just shut the hell up about it! I’m sure my poor husband would find that a relief too since he has to deal with his basket case wife for the next month 😦

What I Believe, Do Not Believe, and Am Unsure About

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Like many others with Aspergers and OCD traits, I enjoy making lists and organizing my thoughts in a linear fashion on paper. While flipping through an old notebook, I found the following lists of “What I Believe”, “What I Do Not Believe”, and “What I Am Unsure Of”, and thought I would share it just for fun. Since I am not religious anymore, I made this list to try to figure out and pinpoint what I personally believe or no longer believe.

What I Believe

  • There is probably some kind of all-encompassing spirit or energy in the universe. Whether that energy is conscious and/or aware can be argued.
  • There is an inter-connectedness of all things.
  • I believe in the power and goodness of love, kindness, and forgiveness.
  • I believe in the power and strength of nature.

What I Do Not Believe

  • Any form of religious dogma. It is ALL man-made.
  • I do not believe that any human or religion has all the answers, no matter how much they think they do.
  • I do not believe in eternal punishment or “hell”.
  • I do not believe that everyone needs to or should follow the same path.

What I Am Unsure Of

  • Are there any Gods or Goddesses in any form?
  • Is there an afterlife? Are ghosts, hauntings, or reincarnation real?
  • Are there other “realms”? For example, do fairies, aliens, alternate realities, mythical monsters, etc. exist in this current reality or any other?
  • Is there such a thing as a personal soul? If so, do only humans have them, or all living beings? Can a non-organic being (like Artificial Intelligence) have or develop a “soul”?

A Theory About Personality Disorders

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While I was writing yesterday’s post about personality disorders, I kind of came up with a theory of my own. That theory is that all of us likely fall somewhere on the spectrum of personality disorders – ALL of us. Granted, it is definitely to greater or lesser extents depending on your experiences, personality type, and genetic makeup, but all of us fall somewhere on the spectrum of narcissism. We all fall somewhere on the spectrum of avoidance and anxiety. We all fall somewhere on the spectrum of neediness and emotional dysregulation. We all fall somewhere on the spectrum of eccentricity.

This theory is very similar to theories I have heard that claim we are all somewhere on the autistic spectrum. Some of us clearly fall heavily on the side of autistic traits, some of us fall in the middle somewhere, and some of us fall heavily on the other side of the spectrum, but we are all on there somewhere.

For personality disorders though, I feel that most of us probably do more closely fit one (or perhaps even two) of the clusters overall. In case you were unaware, there are 3 clusters of personality disorders:

Cluster A (the “odd” or “eccentric” cluster), with Paranoid, Schizoid, and Schizotypal personality disorders.

Cluster B (the “dramatic”, “emotional”, or “erratic” cluster), with Borderline, Narcissistic, Histrionic, and Antisocial personality disorders.

Cluster C (the “anxious”, “fearful” cluster), with Avoidant, Dependent, and Obsessive-Compulsive personality disorders.

I don’t know about you, but almost everyone I know fits quite nicely at least into one of those groups when I consider their overall personality traits. Either I know a lot of messed up people…or maybe having some personality problems is just part of being human? Of course, some take it to the extreme. I myself am so highly anxious and fearful that I would consider it abnormally so. I believe most of that has to do with early attachment issues in childhood and a history of trauma and abuse.

I guess what I am trying to say is that people with personality disorders are not monsters or rare weirdos like many tend to think of them. They are just normal, somewhat dysfunctional people like the rest of us, but perhaps they have a harder time coping due to negative experiences and traumas they have endured. Sure, some of them are assholes, but so is a significant portion of the human race in general…