Here is what I wrote on my Facebook page today, I think it pretty much sums it all up:
Six long years, and I finally won my SSDI case! Fully favorable! Feel like crying and screaming. Been sick and in pain so long, sometimes I wanted to give up hope and die, but glad I hung in there.
All those people who doubted me or thought I was just being “lazy” or “dramatic” can kiss my ass. To all those who have showed love, empathy, and encouragement, thank you so much for helping to keep me alive and fighting.
My fellow bloggers here on WordPress definitely fall into the second category of supportive, encouraging people, so thank you all so much!!!
By the way, the decision was just made yesterday and my lawyer was the one who called and told me, so it will still be a little while before I get the back pay or monthly payments started, but I’m on my way!
Yesterday I saw my new neurologist for the first time to try to figure out why I am suddenly having so many migraines. I must say the visit didn’t start out well. For one thing, they only see new patients first thing in the morning, and I am NOT a morning person. However, I did make it there on time at 9am in the morning, but then I ended up waiting to see the doctor until after 11am!!! Needless to say, I was not a happy camper.
The doctor seemed rather grumpy when he finally came in too. Maybe he was having a bad morning (I would think so with being that behind schedule for a specialist), but after waiting two hours, dealing with a grumpy doctor was not ideal. I will say that even though he was a bit grumpy, he was thorough at least. He asked tons of questions and investigated all the leads I could provide, even bothering to request additional medical records and taking a second look at my imaging tests that have already been done.
By the end of the visit, he had decided to send me for an EEG to check for possible mini strokes or seizures, and another head/neck MRI to see if my cervical issues have worsened in the past two years or if anything else has changed. He also wants me to be tested for Meniere’s disease, an inner ear disorder that may be contributing to my vertigo, ear pain/pressure, and tinnitus.
He noted that my neck was constantly spasming, so he switched me to another muscle relaxer and also put me on Topamax to try to help prevent the migraines (we are hoping it might help my fibro pain some too). I guess we’ll see how it goes from there.
Check out the cute stuff my mom sent to me for an Easter care package! She did really good this year! It definitely helped cheer me up since I had been feeling pretty lousy lately between my depression and my chronic health issues.
Been super unmotivated and blah today. I wanted to write a post but didn’t want anything that would take too much brain power lol, so decided to list the things I DID manage to get done today as a way to give myself a little pat on the back for even trying!
Stuff I Got Done Today:
- Writing this post (still in process)
- Put dishes up and cleaned kitchen (it desperately needed it)
- Got my husband to change the trash
- Listed several new artworks on my Ebay for sale
- Called my mom back (had to leave a message, but that is actually preferred in the mood I’m in lol)
- Had a tuna sandwich and the last Reese’s Pieces cookie for lunch
- Gave all my kitties some love
- Read a picture book about Mary Shelley (the creator of Frankenstein)
- Showered and all that other hygienic stuff
- Watched some Disney Channel
- Watered my plants that are still alive after a week! World record for me probably!
I think the title and video pretty much say it all:
I hated you
the first time we met.
You had replaced my old love
before I had the chance
to even say goodbye.
You dared to appear
right as he vanished –
and for that
you had to take the blame.
Over the weekend my husband and I visited Indianapolis to see the Star Trek exhibit at the Indianapolis Children’s Museum. My husband was in heaven lol. I was there. I did find a few fun things to concentrate on though.
I annoyed my husband by sitting in the captain’s chair like this:
My personal favorite in the exhibit was this painting of Data’s cat from The Next Generation, I would hang this in my house:
My husband got assimilated and beamed up (along with a little friend):
I did get to ride the museum’s carousel (one of my favorite things to do at any museum, zoo, or park). Unfortunately, I threw my hip out climbing onto it. I think from now on I may need to sit on the little benches on the carousel like all the other old, broken down bodies:
I also got a photo op at Candyland:
Now I am back home, exhausted, sore, and will probably need a few days to recuperate.
I’ve started livestreaming on my YouTube channel just for something to do and another way to connect with people. I’m doing most of the streams on my personal channel, rather than my toys and books channel. My personal channel has a lot less subs (around 200 compared to over 3,000), so if you are a YouTube watcher, please consider subbing to my channel! Here are a couple recent livestreams if you are interested:
The YouTube playback for the livestreams is a bit blurrier than normal vids, but I’m working on that! You probably want to watch them in the highest quality available to minimize blurriness.
Yesterday my husband and I went for a short walk at a local garden/park. We saw our first snake of the year:
I also tried to take some artsy nature photos:
I found a perfect crow feather that I put aside to pick up on my way back out of the park, but someone stole it before I got back to it! That bummed me out. I didn’t realize crow feathers were that popular!