I was tempted to just post a poem or something today, but I know some of you are worried about me after my last post and I could use your support right now, so I’m going to share what I’m comfortable sharing about what is going on.
Those of you who have followed me for a long time have figured out some of it I’m sure. I’ve mentioned enough times how my husband is my whole world and my main support system. So it will come as no surprise that we are having trouble right now. We are not separated or planning to divorce or anything like that, but my husband made some very foolish decisions lately that hurt me deeply, destroyed my ability to trust him fully, and have set us on a long road to relationship recovery.
He didn’t fully cheat (thank God), but his inability to deal with his feelings of depression/isolation, feeling drained at work, and overwhelmed at times by being a caretaker to someone with severe chronic illness (me), caused a perfect storm, and instead of handling it the right way by communicating with me or someone who could really help, he started acting out stupidly, doing things behind my back, and lying to me.
It isn’t even so much what he did that bothers me, but the lying and sneaking around. That has to change and end. He shows an immense amount of remorse, and I can tell it is genuine. We do plan to get help by doing couples counseling. Both of us can sometimes struggle with communication when it comes to anything that might cause confrontation or that we think might upset the other and I know we need to work on that to solve this.
At this point I’m cautiously optimistic. Trust is such a hard thing for me anyway because of my abusive past, and I fear I may never be able to get that back. I think that is what I’m most scared of. And if we can’t work through that, I don’t know what to do.
It’s been a minute since I just did a life update, so let’s take a minute to do so! I’ll break it up into categories for ease:
Physical health – Thank God, the Topamax increase seems to have helped the migraines quite a bit. They aren’t gone entirely, but have been much better lately. Still having some digestive issues, so I’m seeing the GI doctor soon. We suspect Gastroparesis or some other motility disorder might be at play. I’ve already been following a gastroparesis diet and it has been helping my symptoms, but we won’t know till I get a test obviously. That condition is really common with Ehlers Danlos though.
Mental health – Uh, all over the place. Anxiety like crazy. Kinda hyper. Hard to concentrate and focus…that one has been a real pain lately. Even getting stuff like this done isn’t easy. My brain wants to go in fifty million directions, none of them what they are supposed to be doing. Depression too, but kind of medium level. Like just the blahs. Apathetic. Need constant positive stimuli to not start feeling blah again, but that isn’t reality, is it?
My writing – Finally, some good news!!! First off, I was contacted by a music professor at Central Washington University in Washington state who wants to use one of my poems to set to music for a project she and her colleagues and a few students are working on. They will compose music for the poem (for instrument and voice) and then put together a concert music video for it (because covid and all I assume) and it will be released in April. Of course, I will be credited for my part in the project, and will share the video when I can.
Also, I just got an email today that the educational resources website Twinkl has chosen my blog to be one of their Top Autism Blogs of 2020! They get pretty high traffic on their site, so it is quite an honor and I’m psyched about it!
Well, I did get the test done yesterday at a drive-thru testing center. I was so glad it was drive-thru, because the last thing I wanted to do was be around a bunch of other potentially covid-infected people when I wasn’t sure if I have it yet or not. My doctor decided to go ahead and test my husband too. (By the way, the test wasn’t that bad, I’ve had MUCH worse medical tests!)
We won’t know the results for about a week probably. I’m not sure what to do in the meantime? Do we go ahead and quarantine ourselves in the house since we don’t know? If we do that and we are infected, we will end up being quarantined for about 3 weeks at least.
I don’t know how that will work when someone has to go get milk, prescriptions, and other essentials and it is just the two of us living here. I guess we just minimize going out as much as possible? We definitely won’t be visiting anyone, going out to eat, or shopping for unnecessary items.
Any of you had to self-quarantine at home? Any tips?
Ok, I had a weird experience this morning. I woke up to a loud, male voice urgently calling out my childhood nickname (Mandy). At first, I thought it was my husband, so I got up to see if he was ok, but quickly saw he wasn’t here and his car was gone. I texted him to make sure he was ok because I felt kind of weirded out, then went back to bed.
Right before I fell back to sleep, I had an image flash before me (with my eyes closed) of some children’s alphabet blocks spelling out the word “Dad”. I found that weird too, but went back to sleep.
When my husband got home, he had to have me unlock the door, because somehow the lock that can only be unlocked from inside was locked. I hadn’t touched the door all morning, and my husband couldn’t have possibly locked it from the outside.
When I sat down to breakfast, I decided to use the GhostRadar app (similar to the spirit box they use on ghosthunting shows) on my phone to ask if my dad (who passed away when I was 12) had been here. The first three words I got were “house”, “visit”, and “parent”. I was a bit blown away by that.
Lately I have really been struggling with motivation to blog. Due to a depressive slump, I’ve been having trouble with the desire to do much of anything, but blogging especially has fallen by the wayside.
It makes me feel bad because I truly do appreciate this community and love the interaction I get with all of you, but when the whole world feels dark, it is hard to even try to reach for some light.
I’m not sure if my current state is just a continuation of the depression I was already feeling, or if it is worsened by gradually switching mood stabilizers (Seroquel to Lamictal), but I am hoping the situation improves soon. I have only been on the Lamictal since Monday and am only on the first dosage level, with at least two increases planned, so maybe my brain is just struggling to adjust.
I’m hoping my passion for blogging will return eventually, but for now, I’m trying to hang in there. If I’m not as active as usual, all of this stuff is probably why.
I didn’t write for a few days because my husband and I went on a mini vacation to the Hocking Hills area of Ohio. It is beautiful country with tons of state parks, nature preserves, hiking trails, caves, etc. We also had some fun looking up haunted places in the area (I’m always hoping to see a ghost, but didn’t have any luck this time).
We had a great time, although there was still a lot of stuff closed in the area due to Covid. We had to eat in our car several times due to restaurant dining areas being closed. And we got kicked out of one state park that was closed (we didn’t know that of course), but the ranger was nice and just told us to get out instead of ticketing us or anything bad.
Here are a few of my fave pics from the trip:
We found this little guy in the middle of a country back road. We chased him off the road. I hope his mama came to get him soon after!
This large rat snake crossed our path on a nature trail. He wasn’t friendly lol, but we were still thrilled to see him.
This is the coolest pic from the ghost hunts. That rainbow orb is super weird. Especially since their hadn’t been any rain whatsoever that day. It didn’t show up on any other pictures. This was an old asylum turned into a museum. Sadly they were closed, so we couldn’t go inside 😦
This stain image in one of the limestone cliffs reminded me so much of Anubis. It just needed to be black lol.
Me posing at Ash Cave (the state park we got thrown out of later lol). This cave was a huge amphitheater-style structure that was so cool. In the past it was used for ancient Native American rituals and was even used as a Christian church many years ago.
I think I had the most messed up dream of my life last night!
In the dream, I was a little girl and my mom (who wasn’t the same mom I have in real life) had just gotten together with this creepy guy. The guy told me he had some weed, but if I told my mom, he would kill me. Of course, I had to then go tell my mom. When the guy got home and found out I had told on him, he decided to kill my mother in front of me instead of killing me.
How did he kill her? By stapling her to death. Yes, with a stapler. At one point, he used the stapler to beat a small hole in the side of her head, then decided to rape her in front of me, but instead of normal rape, he raped her by sticking his dick in the hole in the side of her head, which pushed her brains and other stuff in her head out the other side.
What the fuck is wrong with my brain?!! How did it come up with this shit???
I didn’t really have a good idea for a blog post today, so here are a few random little bits of prose from my journal that I like and thought I’d share:
I want to cause chaos. I want the entire world to feel the insecurities and fragility that creates the glass enclosure I dare not shake or shatter.
I lean towards darkness, but not cruelty or evil. The comforting dark. The mysterious dark. The exciting dark. The natural dark. The darkness inside is strong, but it need not be frightening.
I believe in justice, in fairness, in self protection, and in reflecting negativity back to its source, but I do not believe in malevolence.
I should have been a whore when I was younger. I was a good girl – I ran from impropriety. I feared intimacy. I swam in self-doubt and self-consciousness. I was afraid to be sexual. I was afraid to be sensual. I was afraid to be attractive.