Yesterday I was supposed to go to therapy, but I was feeling really sick and ended up calling off. Whenever I have to do that, I always end up feeling bad, like it is my fault that I have these health problems and often have to cancel appointments or activities.
Honestly, nowadays I don’t even schedule much of anything outside of medical appointments because I would rather not plan anything than have to feel like I’m letting myself or others down if I’m too sick, depressed, or anxious to go. It really isn’t a fun way to live, and it frustrates me. I often feel like I’ve almost given up on living a normal life and that saddens me.
On the plus side, I am fortunate to have a supportive husband and still have a place to live and food to eat even though I am too sick to work a regular job. I really don’t know how people like me make it without support, especially since it can often take years to get any help from disability. If I had tons of money, I would spend it helping out those who are in similar predicaments, whether they struggle with autism, mental illness, physical illness, or a combination of all of the above like me.
Sometimes I worry that I come across as too negative or focused only on the bad on this blog. It is really a fine line to walk, because as someone who is chronically ill, constantly feeling sick, and dealing with several mental health issues, it can often feel like the negative in my life does far outweigh the positive. Most of the things I used to love to do (hike, play tennis, roller skate, go dancing, etc.) are now virtually impossible for me. I haven’t been able to work in a couple years and even when I did, I was constantly in trouble for missing work due to health issues. I used to find a great deal of meaning in being a foster parent, but there is no way I could handle that anymore either. I feel like I’ve lost SO MUCH that it is hard to cope. I’ve always struggled with anxiety and depression, but since becoming sicker and sicker physically, the levels of those mental issues have skyrocketed.
I want to be honest on this blog above all else. Even when it hurts and even when it is ugly and dark. However, I don’t want to give the impression that there are never good moments in my life. There are times my husband makes me laugh uncontrollably. There are days when I do feel well enough to go out to eat or browse through a bookstore. Sometimes I get to watch a tv show I’m addicted to and excited to see. I still get to paint and play with art materials. My crazy cats continue to be crazy and adorable. It isn’t all bad, and I am grateful for the good times, but most days are a struggle and I don’t want to lie about that either.
* Art by Maranda Russell
I’m at the point I think I’m going to have to make peace with the fact that my freelance writing career is over in many ways. Now, don’t get me wrong, I still plan to blog and do this kind of personal writing when able, but over the past years I also supplemented our income a bit by taking freelance writing gigs from various clients. I covered a wide variety of writing assignments: reviewing books, writing promotional materials and press releases, writing children’s books, editing and proofreading, and many other oddball writing jobs.
Now, I find I just can’t do it. Partly due to physical health conditions (particularly my back/neck pain, chronic fatigue syndrome, and fibromyalgia), but also due to my mental health conditions (depression, anxiety, bipolar type 2, etc.) Sometimes I’m not even sure which condition is really at fault. Is it the CFS making it almost impossible for me to get out of bed and function at all, or is that the depression? Is my back pain causing me anxiety, or are the panic attacks causing me to tighten up and the back pain to worsen? Which came first, the chicken or the egg? Much of the time, I really don’t know. But I do know I can’t go on like this forever, and I definitely can’t take the additional stress of taking on freelance writing jobs anymore.
* Art by Maranda Russell
I’m still struggling with this nasty cold I caught, so I am spending pretty much all day laying on the couch or in bed. Since it is New Year’s Eve, I am watching The Twilight Zone marathon on Syfy Channel, which has pretty much become a yearly ritual for me. I love this show and wish it was on more often.
Other than watching that all day, I don’t have much in the way of plans. I doubt I will even stay up to watch the ball drop tonight or anything like that. I’m not sure if it is just the illness or the depression, but I haven’t felt like doing anything this week and the weekend is pretty much proceeding the same way. I haven’t even been making art, which is kind of sad, especially considering all the cool new art supplies I got for Christmas. I am sharing an artwork I made right after Christmas while playing with some new acrylic pens I got. Hopefully I’ll be motivated to do more soon.