(The Pixabay image above doesn’t have anything to do with the subject of the blog post, but I thought it was cool-looking!)
Things have been busy lately. A few good things have happened and a few not-so-good things have happened. Here is a short summary:
- My husband was sick over the weekend with a fever, chills, and body aches and yesterday I started running a fever. Still not feeling well today, but I have a doctor’s visit already scheduled for this evening, so I guess that is good timing.
- I finally heard from my mom the other day after a month of hearing nothing. I guess she wasn’t upset or mad or anything after all, she just had neglected to call me back like she had said she would. At least she did apologize. I think she genuinely meant it too.
- I have become kind of obsessed with reborn dolls! I ordered my third doll from Paradise Galleries the other day and am excited to receive her! I’m not sure if this is just my latent maternal instincts coming out to play since I never had a child of my own or what, but it is a comforting and fun hobby. Having an excuse to shop for adorable baby stuff is awesome lol.
- The weather is finally stabilizing somewhat and becoming nice most days! So happy about that! I don’t like the cold!
- After a few weeks of being uninspired entirely with my art, I have gotten a bit of interest back in it lately and am enjoying making fun little collages.
- Even though my last therapy session made me feel pretty crappy the day I had it, a couple things the therapist said have stuck with me and might help in the long run. One thing I keep thinking about is how the therapist said it was “interesting and not weird” how I have such an interest in toys and other “child-like” things. I have always felt kind of ashamed for liking “kids stuff” as an adult, whether it be toys, books, movies, or whatnot, but maybe I have been judging myself too harshly for just having unusual interests. I can be extremely obsessive about those interests, but when you have Asperger’s, that kind of comes with the territory.
- Anxiety and depression have been high (as always) but I’m still here! I’m still fighting for the kind of life I want, even if I do make missteps here and there.
Today hasn’t been the best day mental-health wise. I just woke up around an hour ago and it took me until now to drag myself out of bed because I honestly just didn’t want to move, let alone get up and face the day.
Yesterday wasn’t a good day either. I’m not sure what was going on, but I felt sick and exhausted the whole day. I did make myself go to a group meeting yesterday (a recovery from religion support group). My husband is helping to lead the group and it is fascinating to hear everyone’s personal stories about religion and how specific forms of indoctrination affected each of them differently. Some of those who come truly have experienced abuse at the hands of religious leaders and organizations, much like I have in my past (mostly due to my messed up family).
The meeting lasted almost three hours, which socially exhausted me. Maybe some of you don’t experience social exhaustion, but when you are autistic, being social takes so much focus and attention to do it “right”, that it always leaves me burned out and just wanting to go home and nap. Add to that, the social anxiety I had about going to the group in the first place, and I guess it is no wonder that I felt like crap both physically and mentally most of the day.
I think today I’m just going to try to take it easy and recover from the exhaustion as much as I can. I need to have my precious time alone and indulge in some distractions to take my mind off real life. I definitely welcome hearing from you guys though!
Yesterday I was supposed to go to therapy, but I was feeling really sick and ended up calling off. Whenever I have to do that, I always end up feeling bad, like it is my fault that I have these health problems and often have to cancel appointments or activities.
Honestly, nowadays I don’t even schedule much of anything outside of medical appointments because I would rather not plan anything than have to feel like I’m letting myself or others down if I’m too sick, depressed, or anxious to go. It really isn’t a fun way to live, and it frustrates me. I often feel like I’ve almost given up on living a normal life and that saddens me.
On the plus side, I am fortunate to have a supportive husband and still have a place to live and food to eat even though I am too sick to work a regular job. I really don’t know how people like me make it without support, especially since it can often take years to get any help from disability. If I had tons of money, I would spend it helping out those who are in similar predicaments, whether they struggle with autism, mental illness, physical illness, or a combination of all of the above like me.
Sometimes I worry that I come across as too negative or focused only on the bad on this blog. It is really a fine line to walk, because as someone who is chronically ill, constantly feeling sick, and dealing with several mental health issues, it can often feel like the negative in my life does far outweigh the positive. Most of the things I used to love to do (hike, play tennis, roller skate, go dancing, etc.) are now virtually impossible for me. I haven’t been able to work in a couple years and even when I did, I was constantly in trouble for missing work due to health issues. I used to find a great deal of meaning in being a foster parent, but there is no way I could handle that anymore either. I feel like I’ve lost SO MUCH that it is hard to cope. I’ve always struggled with anxiety and depression, but since becoming sicker and sicker physically, the levels of those mental issues have skyrocketed.
I want to be honest on this blog above all else. Even when it hurts and even when it is ugly and dark. However, I don’t want to give the impression that there are never good moments in my life. There are times my husband makes me laugh uncontrollably. There are days when I do feel well enough to go out to eat or browse through a bookstore. Sometimes I get to watch a tv show I’m addicted to and excited to see. I still get to paint and play with art materials. My crazy cats continue to be crazy and adorable. It isn’t all bad, and I am grateful for the good times, but most days are a struggle and I don’t want to lie about that either.
* Art by Maranda Russell
I’m at the point I think I’m going to have to make peace with the fact that my freelance writing career is over in many ways. Now, don’t get me wrong, I still plan to blog and do this kind of personal writing when able, but over the past years I also supplemented our income a bit by taking freelance writing gigs from various clients. I covered a wide variety of writing assignments: reviewing books, writing promotional materials and press releases, writing children’s books, editing and proofreading, and many other oddball writing jobs.
Now, I find I just can’t do it. Partly due to physical health conditions (particularly my back/neck pain, chronic fatigue syndrome, and fibromyalgia), but also due to my mental health conditions (depression, anxiety, bipolar type 2, etc.) Sometimes I’m not even sure which condition is really at fault. Is it the CFS making it almost impossible for me to get out of bed and function at all, or is that the depression? Is my back pain causing me anxiety, or are the panic attacks causing me to tighten up and the back pain to worsen? Which came first, the chicken or the egg? Much of the time, I really don’t know. But I do know I can’t go on like this forever, and I definitely can’t take the additional stress of taking on freelance writing jobs anymore.
* Art by Maranda Russell
I’m still struggling with this nasty cold I caught, so I am spending pretty much all day laying on the couch or in bed. Since it is New Year’s Eve, I am watching The Twilight Zone marathon on Syfy Channel, which has pretty much become a yearly ritual for me. I love this show and wish it was on more often.
Other than watching that all day, I don’t have much in the way of plans. I doubt I will even stay up to watch the ball drop tonight or anything like that. I’m not sure if it is just the illness or the depression, but I haven’t felt like doing anything this week and the weekend is pretty much proceeding the same way. I haven’t even been making art, which is kind of sad, especially considering all the cool new art supplies I got for Christmas. I am sharing an artwork I made right after Christmas while playing with some new acrylic pens I got. Hopefully I’ll be motivated to do more soon.