I’m still struggling with bad neck pain. Yesterday it felt a little bit better, so I figured I would try to get out of the house for the first time in a while (other than ER visits). Unfortunately, once I got in the car, the vibrations from the car itself and the movement from driving kicked the pain back into high gear. I did at least make it to Wendy’s so my husband and I could get some dinner, but then it was straight back home because I was in too much pain to do anything else.
Honestly, after two weeks of these headaches and severe neck pain, I’m starting to worry this might be a long-term problem, just like my right shoulder blade and the arches of my feet. I’ve been incredibly depressed the last few days, partly because of the pain itself, partly because I can’t do much of anything, and lastly because I worry if my body continues to deteriorate at the rate it seems to be going, I may eventually become completely home-bound. I believe that all these chronic pain issues are mostly related to my Ehlers Danlos Syndrome, which sucks even more because there is no cure for connective tissue disorders 😦
You ever go to a doctor’s appointment and feel like you somehow disappointed them? That’s how I’m feeling today. I went to see my psychiatrist and while he didn’t say anything overly negative or mean, I just left with the feeling that somehow he was a little disappointed in me.
Perhaps I am projecting here, but I kind of feel like he isn’t quite as supportive as my other doctors about my going on SSDI. Not because he doesn’t think I have real problems and medical conditions, but because he seems to think I have a lot of potential and maybe he thinks if I get disability I’m just going to sit around and do nothing the rest of my life.
This may be partly my fault if he has that impression. After all, I don’t normally talk about all the stuff I do enjoy doing while there. I only see him every couple months for a short visit, so I tend to focus on what is going wrong, not what is going right. I don’t talk about all the art I make and sell or the books I write and sell. I don’t talk about my blogging. I don’t talk about all the people I correspond with on social media. I didn’t mention that I was recently made a board member on the International Board of Sensory Accessibility. I didn’t tell him about the art contest I submitted three artworks to this month. I don’t tell him about the online communities for chronic illness, chronic pain, autism, and other conditions that have given me a chance to support others and receive support myself.
I kind of wish I had mentioned some of those things now. Maybe next time.
I’m still struggling quite a bit. Feeling lethargic, numb, and exhausted all the time. Still not wanting to get out of bed, even though I’m not finding much refuge in sleep either, since my dreams the last couple nights have been overrun by nightmares. Quite an assortment of bad dreams too: A dream about my husband not loving me anymore, a dream about giant ants, a dream about trying to get kicked out of high school. Even in my dreams I’m miserable. During the high school dream the reason I wanted to get kicked out was because I was so depressed I just couldn’t function and wanted to go home and crash.
I’m hoping this depressive episode passes soon. I’m not sure if it is maybe exacerbated by seasonal affective disorder since I haven’t seen the sun in a while, or if this is just a shitty coincidence, but I wish I felt better.
I’m going through a depression slump right now. I can tell because I am sleeping half the day away and not wanting to get out of bed even when I do finally wake up. I don’t feel like writing, creating art, talking to anyone, or simply functioning. I want to stay in bed and either sleep my life away or curl up under all my heavy blankets and leave reality behind.
I have some important appointments coming up soon (my Ehlers Danlos testing and my SSDI hearing top the list), but right now I don’t even care about those things. I don’t feel like doing them and the thought of dealing with them is overwhelming. I hope this slump passes soon.
I’ve had a rough few days. I think the main problem is that I’ve been out of my anxiety meds for a while because Buspirone is on national back-order for some reason, and my pharmacy doesn’t know when/if they will get it back in. I contacted my psychiatrist today to ask him to prescribe something else, hopefully he will do so soon. I was going to try to just hang on until my appointment with him at the end of the month, but I am having some real anxiety issues cropping up without my meds.
For one thing, I’ve been having some body dysmorphia issues, which happens now and then. I’ve heard that issues like these are common among high-functioning autistic people. I’m not trans or anything like that. I don’t want to be a man. But, for some reason, ever since I hit puberty, I’ve always felt kind of uncomfortable in my own body. I’m not sure why. I don’t think I’m extremely ugly or anything like that, but it is like there is some kind of disconnect in my brain when I look in the mirror. I feel like my body looks wrong somehow or like it isn’t the body I should have. It is hard to explain.
I think part of it has to do with always feeling unfeminine. Like I said, I don’t want to be a man, but I’ve always felt like I’m not very good at being a woman either lol. I feel like a tomboy, I always have, yet sometimes when I look in the mirror I look more like a woman than I feel. It is weird. I also have always wished I was thinner, more flat-chested, and athletic-looking overall, but my genes just don’t cooperate with me. It is funny to me when I hear women saying they want bigger boobs. I’m always like “why would anyone want that?”, but I know everyone has their own insecurities, and some people obviously have different ones than I do.
Yesterday I had rather a bit of a breakthrough moment. Now, to most people with healthy backgrounds and relationships, this will likely be a bit of a “duh” moment, but to people like me who were groomed to be codependent caretakers, it is an immensely important realization.
My “eureka moment” can be summed up in one sentence:
I don’t owe anyone ANYTHING, and no one owes me ANYTHING.
Of course, this does not mean that I can’t give to others out of the goodness of my heart, or that they can do the same, but none of us should feel required to do so. I would say the one exception to this rule would probably be children. If you bring children into this world, you do owe them something – and that is to do your best at providing them a safe, stable, and loving childhood. I guess pets fit that category as well. If you sign up to take care of something that can’t care for itself, you are essentially accepting that responsibility.
Outside of that, I’m not sure if any of us should feel like we have to fully take care of others emotionally, mentally, physically, or materially. We all have a responsibility to do our best to meet our own needs, and while that may mean reaching out for help now and then, we have to realize that sometimes we may be turned down and that is ok. If so, we just need to keep looking I suppose.
As someone with disabilities though, I do want to say that I do feel it is vitally important to have public programs and assistance available (whether these be government or charity systems) for those of us who sometimes struggle more than others at being “functioning adults”. To me, it is just a simple matter of society welfare and empathy that should strive to help anyone who falls through the cracks.
Last night I had an interesting dream. In the dream, there was a big snake loose in our house and I was trying to stay as far away from it as I could because I feared getting bit. Every time I would see it somewhere, I would run to another room. Then, the dream took an unexpected turn when the snake attacked my cat, Spyder. Spyder has been my baby since the day he came home to us and has been with us almost 12 years.
When I realized the snake was attacking Spyder in the dream, I was suddenly like “HELL NO!!!” and I ran into the room with a small sword (that suddenly appeared out of nowhere) and I cut that snake’s head clean off! I was suddenly as brave as an Amazon warrior, or like a mother bear defending her cubs.
When I woke up today, I was trying to decode this dream a bit, and I think what I was actually dreaming about was the fear of death. Just last night I was talking to someone about the short spans our pets live and about how my last two cats died around the same age Spyder is now. I think the snake symbolized death coming to take a loved one from me, and while I clearly have a self-preservation instinct and a healthy fear of my own death, that fear pales in comparison to the terror I feel at losing a loved one.
Lately I’ve been dealing with a lot of resentment and anger towards my mother. To explain why, let me share a specific incident that kind of illustrates why I am upset.
When I was 14/15, my mother worked with a guy named Danny who met me and developed a huge crush on me. He was in his late teens or early twenties, but was definitely an adult already. I DID NOT share his romantic interest and made that plain. I had absolutely no interest in dating him or getting to know him better. He bought me an expensive bracelet as a gift, which I immediately returned to him to make it clear I wasn’t interested.
Even with my mother knowing how I felt and that I was stressed out by the attention, she actually egged him on in spite of how I felt or what I wanted. She even gave him our home address and told him when I would be home. So, he ended up coming to my house while I was there alone and banged on the door and called my name for what felt like forever. He yelled about how he knew I was home because my mom had told him so. I never answered the door or responded to his calls. In fact, I hid in the closet because I was scared at the aggressiveness he was displaying.
I felt like I was being stalked, and worst of all, my own mother was encouraging it. This is just one small incident that portrays an issue with boundaries and respecting my privacy that was even more disturbing in other ways which perhaps I will share someday if and when I am ready to do so. I know it might sound odd, but I almost have a feeling like my mother WANTED to whore me out for some reason. I can’t even describe what that did to me psychologically.
Recently my therapist and I have been talking about and working on my hypersensitivity to criticism. I have always had some hypersensitivity to any kind of criticism or rebuke. As a kid, I was the one you could make cry by looking at me wrong or even gently scolding me. I still tear up over things like that, even though I wish I didn’t.
This inability to deal constructively with any kind of feeling of failure has haunted me throughout my adult life, especially in the work world. I think this fear of not living up to expectations is partly why I struggle with immense anxiety around any kind of authority figure (bosses, teachers, doctors, police, etc.) Many times this anxiety is so strong that I am almost struck dumb (probably a type of selective mutism), such as when I have had to go for job reviews or any other kind of personal evaluation.
I have noticed though that my hypersensitivity to criticism focuses mainly on 5 areas. If I am criticized on something outside of these 5 topics, I am likely to be able to shake it off better or not let it bother me in the first place. Here are the subjects I am referring to:
My art or writing. I am extremely sensitive to any criticism about my art and writing. However, I think this one is fairly normal for creative types. We all put a bit of our heart and soul into the things we create, in a sense they are our “babies” and we gave birth to them. This does create problems for me when it comes to having the confidence to share my art and writing publicly, especially in person.
My looks and weight. I have always felt that I was rather plain or average-looking, so I have a bit of an achilles heel here. I was bullied quite a bit in middle school when I gained some weight after my dad died, and although I lost the weight a couple years later, those mean words about being “fat” have stuck with me. I have always relied on my intelligence, not my looks, to get me anywhere. I am proud of that fact, but sometimes I wish I felt more confident about the way I look.
Any accusation of laziness or incompetence. I think the laziness thing bothers me because my mom would accuse me of that all the time. “Lazy”, “good for nothing”, “useless”…words like that stick with you. As for the incompetence, it doesn’t even have to be someone else that says something. If I feel even slightly incompetent (at anything) within myself it is enough to send me into a meltdown, probably a result of my perfectionism.
Any perceived insult to my intelligence. As I said before, I have always relied on my intelligence to get through life, so if that is questioned or doubted, I feel worthless.
Any insinuation implying that I am childish/immature or a crybaby. I have a lot of “childlike” qualities, as do many with Aspergers syndrome, and those can be endearing, but when people turn it into a bad thing and accuse me of childishness or immaturity, I feel misunderstood and hurt. I am extremely sensitive in some ways, but I hate the term “crybaby”.
So, what do you guys think? Do you share any of these insecurities? Are you also hypersensitive to criticism in these areas or others?