I’m Super Grumpy and Annoyed Today

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I am in a mood today. Seriously grumpy and feeling like crap both mentally and physically. I was supposed to go to a support group meeting today, but the absolute last thing I want to do when I feel like this is socialize or go anywhere. Instead, I just want to cocoon on the recliner or in bed, watching tv or YouTube and letting my grumpy butt get over this particular mood swing.

I could feel this irritability building and creeping up on me the last few days. Even when my husband and I took a walk in the park and I posted those pictures of snakes, turtles and frogs in my last blog post, I was starting to feel more and more off kilter. Every time a couple or family crept up behind us on the trail and made noise, I just wanted to throttle them, which isn’t like me. I normally love kids and adore having them around, but that day I just wanted to ship them all off to Siberia. I felt somehow personally offended that other people were simply sharing my space…and even though I knew how irrational that was, I still felt that way.

Last night I noticed that I was falling into one of those moods where I wanted to spit and hiss like a cat at anyone who dared touch me or even looked at me wrong. I’m still feeling that way today, so it is probably a good thing that I’m home alone right now lol. Hopefully this feeling will pass soon and I will get back to my more humane self.

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Literally Drowning My Sorrows…

Well, today has been a really shitty day 😦 I only got about 2-3 hours of sleep last night, even with my Seroquel. Something happened last night that really upset me and made me just want to run away. Unfortunately, I have nowhere to run to.

Today I decided to go to a local park with a dam. I knew it would be crazy there with all the recent rain and snow, and felt that maybe seeing the turbulence roaring inside me portrayed in front of me might make me feel somehow better:

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Even way above the dam, and behind a fence, the water was so violent that I got splashed pretty good. You can’t see it in the photo below, but my pants were much wetter than my jacket. Even my hair got a little bit soaked by the spray:

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I was crying a good bit of the time I was there, just from all the stuff going on inside me, and I think one poor guy thought I was going to jump in. He came over and started telling me horror stories about people who had jumped in and died. One was truly sad about a family dog that fell in, so the mom jumped in to save it, and the dad jumped in to save her, so the two kids watching behind the fence watched all three of them drown. Such a horrible story. It made me forget my own pain for a little bit and feel empathy for those poor kids.

Missing the Old Me…

Today I’m missing the old me. The me that existed before chronic pain, chronic illness, and worsening depression and anxiety robbed me of so many things.

The me that used to climb trees:

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The me that often used to hike up a trail and sit at the edge of a waterfall:

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The me that was up for outdoor adventures in any weather:

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The me that used to do silly things like go ghost hunting at night:

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I know it’s not my fault that things have changed, but I still miss that old me.

My Poor Husband…

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Sometimes I feel truly sorry for my husband. From what I have read and been told by psychologists and psychiatrists, he has a rough road to travel. Asperger’s can be extremely hard on intimate relationships. Bipolar can be extremely hard on intimate relationships. Long-term chronic pain and chronic illness can be extremely hard on intimate relationships. PTSD can be extremely hard on intimate relationships. And my poor husband has to deal with them all on a daily basis…

Of course, when we married fifteen years ago, I didn’t know I had any of these conditions or that I would develop some of the others. I did already have chronic foot pain and issues with depression and anxiety, but nowhere near as bad as I have them now. Nor did I have a true understanding of what was causing the symptoms I sometimes experienced, whether they be mental or physical. I wish I could have warned him, but I simply didn’t know myself.

On the positive side, he has definitely been a trooper. He always steps up to the plate and is there for me and willing to do anything he needs to do to take care of me and help me through the confusing mess that is my mind and my body. If anyone in this world has shown me the meaning of true love, it is him. And I am thankful.

Anger, Mania, and Standing Up for Myself

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Last night I had a definite episode of mania. Wanting to stay up all night again, feeling like doing a million things at once, wanting to jump out of my skin, tempted to spend way more money than I should, barely able to sleep. If you read my rant yesterday, then you know that I was already dealing with a lot of anger, so I can’t help but wonder if anger can bring on a manic episode? I honestly don’t know whether that is possible or not, I should probably ask my psychiatrist, but it does seem interesting that after being upset and angry I became so manic.

Something else happened last night that made me even angrier than I had been when I wrote the rant post yesterday. Someone else in that Facebook group commented on the post I had written that only 1 or 2 of my mental or physical conditions could be disabling. They said that the Asperger’s and Bipolar might be disabling, but the PTSD, Social Anxiety Disorder, Fibromyalgia, CFS, Plantar Fasciitis, IBS, chronic infections, Degenerative Disc Disease, and bulging discs are NOT disabling. That really set me off.

At first I just told the girl that she should research the conditions and learn more about them if she thought that. However, she went on to say that I was the one who was ignorant and that I would probably “argue with a brick wall”. That really made me mad. I even asked her why she was being such a bitch because I hadn’t done anything to her. For me, saying something like that is EXTREMELY CONFRONTATIVE, but I also felt so proud of myself for standing up for myself for once in my life. Standing up for myself has always been a real challenge for me, so much so, that many people have told me over the course of my life that I needed to stop being a doormat and quit letting people walk all over me.

In person, I would still likely have a really hard time standing up for myself, mostly because when things become confrontative or stressful, I tend to struggle with selective mutism, which is a common thing for people with autism to deal with. Throughout my life, whenever I was bullied or abused, I almost always found myself temporarily struck dumb, unable to formulate a response or rebuttal. It generally only happens when I feel threatened in some way, but it is very frustrating. I figure standing up for myself online is at least a start though!

Social Security Disability Rant

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Ok, so I had another subject planned for today’s post, but I need to rant a bit, so I’ll save that topic for later. I hope you won’t mind listening to my frustration today.

So, I’m part of a group on Facebook for people with certain mental issues, and I have noticed many of the people in the group getting social security disability solely for those mental issues, which I happen to share. I am not upset that they got disability for their problems, but I can’t help but compare it to my own situation and feel angry at how I have been treated by the system.

I’ve been fighting for several years to try and get disability benefits, my worst conditions that affect my ability to work are: Bipolar Depression, Asperger’s, PTSD, social anxiety disorder, fibromyalgia, chronic fatigue syndrome, IBS, degenerative disc disease and bulging discs, chronic bronchitis/ear infections, and severe plantar fasciitis. ALL THAT and yet I am still fighting! It pisses me off because I know people who got it much quicker for SO MUCH LESS or just ONE of my conditions. And none of these conditions are light, even the last rejection letter from social security said the conditions are indeed severe…and yet I got turned down AGAIN? I have a plethora of medical evidence and have tried to follow medical advice to the letter. What more can I do???

I DO have an attorney (my 2nd actually), and I am now waiting for a court date, the 2nd time I will have to go to a hearing for this. The last judge I got had a record for barely approving anyone, which seems unfair in itself. How can it be a fair system when some judges approve a majority of people and other judges approve hardly anyone? Were it not for my husband, I would likely be homeless by now.

To make matters worse, one person in the Facebook group insinuated that plantar fasciitis and chronic ear infections/bronchitis aren’t severe enough to affect your ability to work long term. Well, I’ve had the plantar fasciitis for 15 YEARS. I’ve seen specialists, done meds, physical therapy, long-term steroid therapy, custom orthotics, cortisone shots, nothing helped. Doesn’t seem like it will magically get better at this point. It is so severe I have a noticeable limp and have almost passed out from the pain at times when I was forced to be on my feet for long periods of time.

As for the recurring infections, I’ve had chronic ear infections and bronchitis for many years, often getting up to six within a six month period. I’m now on my 3rd course of antibiotics this year (2018) for the chronic ear infections and bronchitis. Again, I’ve seen specialists, tried a host of medications and other treatments (both medical and alternative) and nothing has worked so far. The amount of antibiotics I have had to take has led to issues with antibiotics not working as well anymore, worsening IBS symptoms, and even episodes of MRSA, C Diff, and colitis which I had to be hospitalized for. These are not minor, fleeting problems.

To make matters worse, I have TRIED to work while fighting for disability. The last job I had (working only two days a week) I was let go from for missing work too much due to medical issues, most of which I was in the hospital or ER for, so they know I wasn’t just “faking”. I also tried being a greeter at Walmart, since it is about one of the only places that actually hires really disabled people and I couldn’t even do that due to my social anxiety, depression, and other health issues. I am not even fighting for welfare here, only the benefits I worked for over the years!

Good Therapy Session Update, and Books for Emotional Healing

I had a really good therapy session today. We talked more about the symptoms I am currently experiencing which might be related to a mood disorder vs what might be related to PTSD and my past. On the mood disorder (or Bipolar) front, I think I have made some progress, especially when it comes to sleeping and making hasty decisions I later regret during hypomanic phases. Unfortunately, not much seems to help the depression side of it, whether it be cognitive therapy techniques or medicine.

As I told my therapist today, I feel like my personal “normal” emotional state starts at -1 (mildly to moderately depressed), so I only really have down to go from there if the depression worsens, which it often does. According to my mood charting so far, I have about the same number of mildly to moderately depressed days as I have moderately to severely depressed days. And then I have a day here or there where it goes even lower and those are the dangerously depressed days. It actually makes me feel a little better though to know some of it is probably the mood disorder and not just me “refusing to get well”, which I have sometimes accused myself of in the past. After all, if I really WANT to be well, why aren’t I yet? That is the way I used to think about it, but with a mood disorder it doesn’t work that way.

We also talked about the affirmations I have been doing, which I have actually been doing a good job of keeping up with! I even do some mirror work (where you say positive affirmations to yourself while looking into your eyes in the mirror). It really does help! Below I have attached a photo of two inspirational books I am currently reading regarding affirmations:

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The first, “The Body Heals Itself” by Emily A. Francis is a fascinating look at the emotional connection to our muscular system and chronic pain conditions. I know for sure that my physical problems DEFINITELY flare up when emotional issues surface, so there is no doubt a strong mind-body connection. The book includes research, affirmations, stretches, and other practical modalities to try for relief, each separated into specific sections about each body part. I am most interested in the back pain and foot pain sections myself, as I suffer greatly from chronic back pain and plantar fasciitis.

The second book is Jack Canfield’s “Success Affirmations”, which I haven’t been as impressed with, but am giving a chance. For me the affirmations in this book are a bit too long and drawn out. I tend to like simple and to-the-point things better overall.