You ever go to a doctor’s appointment and feel like you somehow disappointed them? That’s how I’m feeling today. I went to see my psychiatrist and while he didn’t say anything overly negative or mean, I just left with the feeling that somehow he was a little disappointed in me.
Perhaps I am projecting here, but I kind of feel like he isn’t quite as supportive as my other doctors about my going on SSDI. Not because he doesn’t think I have real problems and medical conditions, but because he seems to think I have a lot of potential and maybe he thinks if I get disability I’m just going to sit around and do nothing the rest of my life.
This may be partly my fault if he has that impression. After all, I don’t normally talk about all the stuff I do enjoy doing while there. I only see him every couple months for a short visit, so I tend to focus on what is going wrong, not what is going right. I don’t talk about all the art I make and sell or the books I write and sell. I don’t talk about my blogging. I don’t talk about all the people I correspond with on social media. I didn’t mention that I was recently made a board member on the International Board of Sensory Accessibility. I didn’t tell him about the art contest I submitted three artworks to this month. I don’t tell him about the online communities for chronic illness, chronic pain, autism, and other conditions that have given me a chance to support others and receive support myself.
I kind of wish I had mentioned some of those things now. Maybe next time.
I’m still struggling quite a bit. Feeling lethargic, numb, and exhausted all the time. Still not wanting to get out of bed, even though I’m not finding much refuge in sleep either, since my dreams the last couple nights have been overrun by nightmares. Quite an assortment of bad dreams too: A dream about my husband not loving me anymore, a dream about giant ants, a dream about trying to get kicked out of high school. Even in my dreams I’m miserable. During the high school dream the reason I wanted to get kicked out was because I was so depressed I just couldn’t function and wanted to go home and crash.
I’m hoping this depressive episode passes soon. I’m not sure if it is maybe exacerbated by seasonal affective disorder since I haven’t seen the sun in a while, or if this is just a shitty coincidence, but I wish I felt better.
Ugh. Turns out we have to replace the entire water heater. Over $1,800 (which we can’t afford)! This seriously sucks. To make matters worse, the guy couldn’t put the new one in until today, so we had to go all day and night without any water at all (they had to shut it off entirely due to the enormous leak). The guy said he would be here around 11am to put in the new water heater and it is now 12:30 and no sign of him yet, although he says he’ll be here soon.
Due to all this I am grumpy and feeling yucky and just want to whine lol. I can’t even flush the toilet!!! I know this may seem crazy to non-autistic people, but the huge change in my daily routine has driven me freaking crazy and brought on a nasty IBS flare. God, I hope this is over soon.
This seems like a good time to remind everyone that I do have a PayPal donation button set up on my blog if anyone ever wants to send a few bucks to help out or support my blog. You can donate any amount and don’t even have to have a PayPal account of your own. You can find the button on the right side panel of my blog home page, or access it through the Support My Blog page. If you are able to help out, that is great, but if you aren’t, your kind thoughts and well wishes mean the world to me.
A couple days ago, I was watching Kanye West’s “interview” in the White House Oval Office with Donald Trump. I must admit I mostly wanted to watch it just to see what kind of crazy stuff Kanye would come up with. To be frank, he has always seemed a little like a loose cannon, even back in the days when he announced that George W. Bush didn’t care about black people, or when he interrupted Taylor Swift during her award speech to say that Beyonce should have won.
However, when I heard Kanye say during his recent interview that he had been diagnosed bipolar, suddenly, a lot of things clicked into place. I hadn’t really thought of it before, but Kanye does come across as highly manic in his speech sometimes, especially when he is all worked up about things and causes a scene. He definitely seems to have pressured speech (his words just flow out everywhere and in every direction), and I recognize flight of ideas as well (his train of thought is often hard to follow, he shares his thoughts in a way that definitely isn’t always linear or seemingly coherent). Kanye often appears paranoid during these times as well.
I heard that after the interview, Kanye was asked about the bipolar diagnosis and said something along the lines that he thought he was misdiagnosed or he had somehow been cured (contradictory thoughts together). Even this reminds me of manic episodes, after all, what is more predictable than someone with bipolar denying their disease or refusing treatment when in the throes of mania?
Anyhow, my main point is that as someone who has bipolar type 2 myself, I do have empathy for whatever Kanye is dealing with mentally, even if I don’t agree with some of his bizarre or outlandish statements.
By: Maranda Russell
Why do I feel like
my poetry sucks?
I try to write,
only to find myself
poured out like milk
and starting to
I went to the doctor today because my ear is still killing me and I’ve been running a fever for several days. Turns out I have another middle ear infection…this has to be about the sixth one in six months. Boy, am I getting tired of this. Not much I can do either, since I have tried many “alternative medicine” cures for ear and sinus infections and have went the whole ENT and allergy specialist route, only to find that nothing really works. In the end, I feel like it is just my own immune system working against me.
The doctor also said that she suspects the mouth sores I was dealing with might have been related to Coxsackie Virus (or Hand, Foot, and Mouth Disease). Adults don’t catch that illness nearly as often as kids do, but it can happen, and with my autoimmune issues, I guess it wouldn’t surprise me to find out I did get it.
So, I am on ANOTHER course of antibiotics. Something that depresses me to no end because I fear with all the antibiotics I have had to take lately that I may end up developing C Diff again, which caused me to be hospitalized for almost a week a few years ago. Needless to say, I am not in a good place physically or mentally and am just tired of it all. This chronic illness shit sucks.
The past week or so has been rough on me mentally. I’ve had way too many weepy days where I would cry for seemingly no good reason. Several times I had anxiety/frustration meltdowns. You could argue about whether they were “autistic meltdowns” or “bipolar meltdowns”, but at the end of the day, does the label really matter? What matters is the suffering and finding a way to get through it.
I’ve been upset partially because I feel misunderstood by everyone, including my therapist. Mental health professionals in my experience are generally kind, caring people who truly try to understand, but I think some things can’t truly be understood unless experienced personally. Unless someone has experienced the same level of trauma throughout their childhood and adulthood, been blessed and cursed with Asperger’s and Bipolar, been dealt the same personality and experiences, and developed the same chronic physical conditions, they probably can’t relate exactly to my plight….anymore than I can relate exactly to theirs.
In the end it often feels like we are all fundamentally alone in our experience of the world, even though we desperately want to feel connected and understood. Fortunately, we can connect with others through some aspects of our experience, so perhaps that is what needs to be focused on. It is easy to feel completely separate and different from everyone else. At a base level, it is true for all of us, but that doesn’t mean we should quit trying to reach out. And so, I continue to write and seek out common ground with others, both online and in person. Quite frankly, I’m not sure what else to do.
What I thought was an IBS attack might actually be a bug or food poisoning or something else. This is the third day straight now I’ve been feeling sick to my stomach and having bowel issues, so it seems much longer than my typical IBS attacks in length. Due to that, I’ve had a rather lazy and boring weekend. I was intending to go to a mental health support group today but didn’t feel up to it and ended up actually sleeping through at least half of it since I didn’t get up until almost 2pm.
Sometimes when I talk about stuff like this it is almost embarrassing lol. I can’t help but imagine old men and women who talk about their daily bowel habits. I promise I’ll try to not make it a daily conversation, but it is part of living with chronic illness and it sucks if you have never experienced chronic digestive issues. Even if I do get an actual stomach bug or something like that, it seems that it takes much longer to get over it now that I have digestive issues anyhow.
One thing that sucked was that my husband went for a walk in the park without me because I was sick and he saw an owl! One of my favorite animals, and a rare one to sight in the daylight 😦 I guess at least he got a picture:
I obviously felt jealous since I dreamed last night that I found a mama owl and her babies in a tree. I guess I had to one-up him 🙂 Unfortunately, I pissed off the mama owl and she attacked me in the dream.