with the hair
on their heads
(Poetry by Maranda Russell, marandarussell.com)
with the hair
on their heads
(Poetry by Maranda Russell, marandarussell.com)
I am feeling so incredibly stressed about my upcoming SSDI hearing and everything related to it. It has become an obsessive thought pattern that I can’t get out of. This always happens when something I am super nervous or scared about is looming on the horizon. My mind is a circular track of “what ifs”, incessant thoughts about things I need to do, fears that I will make a mistake and blow my last chance for SSDI benefits, and fear that if I fail and am denied again, it will once again send me into a suicidal spiral of feeling worthless, disbelieved, and like I will forever be a burden to society and those I love.
Tomorrow I have to ask my psychologist to fill out a RFC (Residual Functional Capacity) form for the hearing. I think she will be open to it and want to help, but I am still anxious about asking and scared of rejection. I have to ask my primary care physician to fill out a similar form when I see her next week, and am even more nervous about that because I know she is often rushed and I don’t want to be an inconvenience or annoy anyone by making demands.
As you can see, I struggle greatly with asking anyone to do anything for me. I’m not sure if it is just my lousy self-esteem or what, but I always feel like anything I need is an imposition on someone else. Maybe the result of being raised by a narcissistic parent? Growing up, I often was made to feel like anything I needed (emotionally or physically) was selfish and inconvenient to those around me. To this day, I struggle with feeling like I am actually entitled to anything – even basic human respect.
I think my fear of being disbelieved about my disabilities also stems from the fact that when I first started getting really sick, even my own husband and family didn’t believe me. My husband came around first, when he saw how much I truly was suffering every day and how even the things I loved most were being ripped away from me. He has even apologized for his initial doubts. Some of my family (including in-laws) still make me feel invalidated, but I’ve come to the conclusion I can’t do much about that.
Today has been a rough day 😦 I had to get up early to go to an appointment with my lawyer to talk about my upcoming SSDI hearing in February. I woke up feeling exhausted, achy, and sick to begin with, my stomach and digestive system freaking out from the anxiety of the change in routine as they always do.
The meeting went ok, I suppose. The lawyer seems really nice and genuine, but the whole thing depressed me. For one thing, it isn’t easy to have everything that is wrong with you physically and mentally just laid out on the table for everyone to see. It isn’t fun facing the reality of my own limitations and self-perceived flaws. I know I can’t help having mental and physical issues, but it SUCKS to have to dwell on them and think about them more than I already do normally.
The lawyer wants me to try to get my doctors to fill out some forms to take to the hearing and that gives me high anxiety. I hate having to ask anyone to do anything, it is just the way I am. I have a deep fear of rejection. What if they say “no” when I ask them to fill out the forms? Then I will feel even lower than I already do. I know my doctors are caring people who try to help me and they will probably be more than willing to help, but my brain just can’t shut off the “what ifs”.
I came home from the lawyer visit, cried for a little bit, then crashed for a few hours in bed. I still feel like absolute crud, but am trying to get back into my normal routine. I am desperately in need of some self-love and comfort right now, but that isn’t easy for me to do.
Do you ever wonder if it all matters? I sure do. I try to be positive most of the time when I think about the things I do and whether they make a difference, but when I get depressed, the voices of doubt tend to get louder. They say some pretty mean things:
Are you just wasting your time writing and making art? Who really cares?
Why would anyone care what you have to say? Who do you think you are?
You try to support others, but do they even notice? Does it even help them?
You only focus so much on art and writing because you can’t keep a REAL job.
Your own family never cared that much about you, why would anyone else?
If you died today, barely anyone would notice or care. Your funeral would be empty.
You are selfish and everyone sees through you.
You are a drain on your husband and society in general.
I know these are very negative (some would even say abusive) thoughts, but when I am feeling low, they play in my head like a stuck record. By writing them out, I am hoping they will finally shut the hell up. Do any of these thoughts (or similar ones) ever haunt you?
Today I was inspired by a blog post from Judith over at Artistcoveries, in which she asks the question – Who do I want to be as an artist? I love thinking about stuff like this, so I wrote the question down in my journal and brainstormed my own answers. Here is what I came up with:
Who do I want to be as an artist?
Do you relate to any of these wishes? Who do you want to be as an artist?
Just like with my thoughts and feelings, my self image changes so wildly with my mood. A good example of this is my view of my looks and/or attractiveness. Most days I think I look average when I look in a mirror. I’m not delusional, thinking I am some kind of supermodel or show-stopping beauty, but I also don’t feel like I am a troll or a goblin.
Once in a while, when I am slightly or fully hypomanic, I look in the mirror and think I am beautiful. I will never be gorgeous in the artificial Hollywood kind of way, but when my mood is just right I can see a kind of classic or wholesome beauty in myself that I like.
But then there are days, like one I had recently, when I feel as if I am sitting in the rock bottom level of despair and gloom. On days like these, I may accidentally catch a glimpse of myself in a mirror (because I wouldn’t intentionally look), and upon viewing my reflection, I feel down to my very soul that I must be the ugliest thing in existence.
Bipolar and other mood disorders can skew our view of reality so much, sometimes I feel like I am living in different realities from day to day. Today isn’t too good, but it ain’t too bad either, so I guess average wins out again.
Yesterday I had to make a choice to unfriend someone on Facebook, a choice that I hate to have to make, but am finding more necessary as time goes on. The person I ended up unfriending was an editor and small publisher I had worked with in the past, so there was a little bit of sadness at the loss of a professional relationship as well as a personal one, but to tell the truth, this person had always come across as rude, selfish, and impatient…so have I really lost all that much?
As I am getting older, I am just getting to the point that I am tired of being the kindly doormat that lets others walk all over me because I have a desperate desire to please everyone. I don’t at all mind people who have different opinions and beliefs than I do, in fact, I hope we can learn from one another, but when someone repeatedly shows a clear cruel streak and lack of empathy or compassion for others who are suffering greatly, it pisses me off. I also find it extremely hypocritical when someone throws a fit every time someone criticizes their viewpoint, but they refuse to even listen to any other point of view but their own, even going out of their way to silence any reasonable objection.
Sometimes I think that maybe all the therapy is helping me, because at one time I would have stressed greatly over unfriending someone because I would feel bad about it. But this time, I honestly only feel relief that I won’t have to be a witness to the negativity and mean-spirited vitriol anymore.
*By the way, BetterHelp has a great article on emotional abuse, I would recommend it!
I am not the type of person to typically “toot my own horn” or brag about my achievements, but my psychiatrist and psychologist both say I need to “become my own cheerleader” in a way and learn to celebrate small victories, so I figured I would take the time to mention that my YouTube channel, Maranda’s Toys & Books, just passed the 1 MILLION views mark! To me, this is huge!
I simply can’t believe that over 1 million people have wanted to watch something I created! That is simply crazy. I know for huge YouTubers, 1 million views is probably what they get on one single video, but for me, I am just so proud that I hit such a benchmark! So, just for today, I’ll say “Go me!!!” and do a little happy dance in my mind (since my body is too tired to do it with me)!